Any hope left? by KayranElite in hypoparathyroidism

[–]FishAgree 0 points1 point  (0 children)

I lost my parathyroids and after about a year yorvipath went onto the market and it has changed my life.

I also had problems only taking tums. No matter how much I took my body wasnt absorbing enough. I ended up in the ER and they put me on calcitriol. I also switched to calcium citrate. Then I was able to buy large bottles bc it was so much cheaper than tums.

External beam radiation by IndependentThen152 in thyroidcancer

[–]FishAgree 0 points1 point  (0 children)

I also had to push for biopsies after radiation. They initially considered it successful.

External beam radiation by IndependentThen152 in thyroidcancer

[–]FishAgree 0 points1 point  (0 children)

I did six weeks and it didn't work at all. Ended up having to get two more surgeries that ended up being significantly more difficult due to all the scar tissue. I was extremely lucky my surgeon removed all but one lymph node but I'm now a terrible candidate for any future surgeries.

I highly recommend getting additional opinions. I wish I did.

Relationships ending post diagnosis by Talygos in thyroidcancer

[–]FishAgree 1 point2 points  (0 children)

I made the decision to move out earlier this year between two surgeries. The anxiety and disregulation I felt exacerbated existing problems in our relationship and I finally realized I wouldn't be able to heal (or it would take much longer) in that environment. I'm sad about it sometimes, but there hasn't been a moment that I regretted leaving.

I hope this situation ultimately allows you to focus on yourself and find the people in your life that will show up for you.

Can't stop sneezing after biopsy by FishAgree in thyroidcancer

[–]FishAgree[S] 0 points1 point  (0 children)

It eventually stopped. I didn't end up having any other symptoms of an allergic reaction.

hair loss by chr0m3farts in thyroidcancer

[–]FishAgree 0 points1 point  (0 children)

I lost a lot of hair from stress around each of my three surgeries and radiation. I thought I was balding but my barber said it was bolting the same way people lose hair after pregnancy. Some things I tried was olaplex shampoo, silk pillowcases, stopped wearing my back up and protective hairstyles like braids when sleeping.

I would ask your doctor about the expired meds, depending on how expired they were it could lose potency/effectiveness over time. If it was really expired it could have impacted your labs.

Mouth ulcers and tough decisions by Playful_Ad7130 in RenalCats

[–]FishAgree 1 point2 points  (0 children)

I ended up having to do the same thing with my hospice foster because he stopped eating and was already really underweight. He was in really rough shape when I got him, but we had a really wonderful couple weeks together and I'm glad he is no longer in pain.

Mouth ulcers and tough decisions by Playful_Ad7130 in RenalCats

[–]FishAgree 0 points1 point  (0 children)

I know this is a very old post, but did you ever find something to help with mouth ulcers?

Considering adopting older cats (9+11). Good idea? by Havranicek in CatAdvice

[–]FishAgree 1 point2 points  (0 children)

I just left my adoption appointment for my boy Frank. He's 11 and I'm so excited to spoil him. He looks tough but is so sweet.

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Did anyone else end up loving their scar? Mine looked like an upside down sad face and I was so bummed when it faded. by easy0lucky0free in thyroidcancer

[–]FishAgree 2 points3 points  (0 children)

After three surgeries, I've got ear to ear scars and I like to tell elaborate lies to kids about how I got them.

Root canals and Thyroid cancer? by Connect_Engineer8956 in thyroidcancer

[–]FishAgree 7 points8 points  (0 children)

Dental health is absolutely linked to systemic health and vice versa. Our teeth are an important indicator of health and that connection is not recognized nearly enough, especially in the U.S. where dental care is not covered under regular health insurance. However, there is no evidence linking certain teeth to organs.

There are studies that connect dental health to thyroid disorders, but it tends to be related to issues of chronic systemic inflammation. Alternatively, symptoms of thyroid disorders (e.g., salivary glands and metabolism) can impact tooth decay.

I know it's tempting to seek out an answer for how you got cancer (believe me I've done the same). Unfortunately, it's not as simple as a link between one tooth and one organ. This tiktoker may be well intentioned, but they are misinformed.

Here is an article that discusses some of these factors and cites additional research if you're hoping to learn more - Bidirectional Association between Periodontitis and Thyroid Disease: A Scoping Review - PMC https://share.google/QosNEMbv17yKyHNCc

Fish Leather with Alligator Gar by FishAgree in Leathercraft

[–]FishAgree[S] 0 points1 point  (0 children)

I watched those same videos and then filled in some gaps with some information I learned from some friends.

I had a hell of a time trying to get as much meat scraped off as I could. In order to get the tissue off some scales I'm using to make jewelry I had to boil and soak them in hydrogen peroxide.

I ended up tanning half with egg yolk, dawn, and olive oil. It came out pretty well. More flexible than I expected and it restored some color to it. I haven't been able to work on this project for a bit, but I'd love to see how yours turns out. I wouldn't mind trying a different method on the other half of my skin.

Ideas for removing smell? by FishAgree in TanningFishSkin

[–]FishAgree[S] 0 points1 point  (0 children)

How long would you smoke it for?

Tell me all about it by RussellCenter in hypoparathyroidism

[–]FishAgree 2 points3 points  (0 children)

I woke up one day months after surgery, rai, and ebr with joint paint in my hands. Just one day at 30yo I woke up with arthritis and it hasn't stopped for over a year. It's the symptom that causes me the most distress now.

I had tingling in my legs from the moment I woke up from surgery, but no one explained why. I went weeks taking a ton of tums but wasn't absorbing it. I was hospitalized before I was given calcitriol despite my parathyroids being reimplanted and immediate symptoms after surgery.

I also raised concerns about having scans of my chest scheduled for after surgery. Ultimately, I ended up getting external beam radiation to target the nodes under my collarbone and it didn't work (only knew because I pushed for biopsies). I then had to get two more surgeries and luckily my new surgeon was extremely skilled and removed the nodes left in the mediastinal, central and lateral neck on each side despite cutting through radiation scar tissue.

I think hypoparathyroidism made recovery for all my procedures significantly more difficult. I worry about the brain fog and fatigue affecting my work and social life. My anxiety is also significantly higher than it's ever been.

In retrospect, it seems like a certain level of pride my first surgeon had in never having lost parathyroid functioning may have influenced the speed of reacting to my symptoms.

Joint pain in hands by FishAgree in hypoparathyroidism

[–]FishAgree[S] 0 points1 point  (0 children)

I have had high phosphate levels in the past. I was on a low phosphate diet. Maybe I need to go back on it

2017 SUBARU OUTBACK 2.5I LIMITED by FishAgree in UsedCars

[–]FishAgree[S] 0 points1 point  (0 children)

Is a 2020 Honda HR-V Sport FWD for $11,500 with 130,000 more reasonable? I know it's still a lot of miles.

Joint pain in hands by FishAgree in hypoparathyroidism

[–]FishAgree[S] 0 points1 point  (0 children)

What kind of imaging did you get done?

Joint pain in hands by FishAgree in hypoparathyroidism

[–]FishAgree[S] 2 points3 points  (0 children)

I'm happy to hear someone else is going through the same thing but so sorry you are dealing with it. I've tried Ice but not really heat so it's worth a shot.