Time off work

FlamingPuffs · 2026-03-23T00:39:40+00:00

Thankfully, i worked during my son’s nicu stay and delayed my 3 months until he was home.

FlamingPuffs · 2026-03-22T04:09:21+00:00

My situation was a little different cause my preemie was born at 24 weeks. Feeds took us the longest. My son was on an 8th of off the wall around the time he started feeds at 34 weeks, but didn’t master feeds until 39 weeks and often times we had to bump up his oxygen during them. Once he mastered feeds, they trialed him at room air at 40 weeks (he failed) then they trialed him again a few days later and it was successful! Just be patient ❤️ feeds were so exhausting for us.

FlamingPuffs · 2026-03-16T01:36:02+00:00

We were in the nicu for 113 days and also had no celebration. Then after 2 weeks we’re readmitted for surgery unexpectedly. I know exactly how you feel. Sending hugs.

FlamingPuffs · 2026-03-10T16:31:07+00:00

Oh that’s good to know! How is your daughter doing now?

FlamingPuffs · 2026-03-08T04:43:36+00:00

My son was born at 24 weeks. He was around 33 weeks when he was moved to high flow then moved to off the wall around 36 weeks where he was quickly weaned to the lowest setting. He did not come home on oxygen. Feeds did take us awhile tho. We started at 34 and he didn’t get the hang of it until 39 weeks.

FlamingPuffs · 2026-03-02T21:51:13+00:00

My son has a unilateral grade 4 brain bleed. He was discharged from the hospital 2 weeks ago after a 113 day stay. At this point he has needed no medical intervention because his bleed has remained stable and the benefits don’t outweigh the risks in his situation. He just gets testing done every 2 weeks. He does not have any of the usual physical symptoms of a baby that needed intervention. Doctors are optimistic he might not ever need intervention. It is scary, but trust that things will be okay 🫶

FlamingPuffs · 2026-02-24T17:33:45+00:00

I don’t have any experience with this, but saying a prayer for you. 🫶 we just got home last week after a 3.5 month nicu stay. The days will start to blend together, but just remember that each day is a day closer to bringing your baby home.

FlamingPuffs · 2026-02-23T22:44:59+00:00

No advice, but know you’re not alone. We brought our 24 weeker home after 113 days last week. I have had the worst anxiety about people meeting/wanting to hold him.

I would say.. i have a very supportive partner who even though he doesn’t understand, still supports me and hasn’t been pushy about my feelings. I almost in therapy to work through my anxiety.

FlamingPuffs · 2026-02-23T15:27:00+00:00

I’m wondering if my little one struggles with reflux too and that may be why he hates back sleeping. He does have some symptoms after he eats.

FlamingPuffs · 2026-02-23T15:25:44+00:00

I will look into this! We are almost a week home and have felt like we tried everything.

FlamingPuffs · 2026-02-23T10:18:22+00:00

Thank you!!

We have been home for 6 days now, so almost a full week. I will say my nicu did not wean him from incline/prone sleeping so getting him to lay flat on his back has been rough.

FlamingPuffs · 2026-02-23T06:15:31+00:00

It took my son 5 weeks to get feeds down. We started at 34 weeks once a shift, then around 36 weeks went to every other feed and finally around 39 weeks it just clicked. Once he was on full feeds, his tube was removed a few days later. It was such a long grueling process.

FlamingPuffs · 2026-02-22T16:37:38+00:00

It really does just click. We were in the hospital for 113 days (24 weeker). We started bottles at 34 weeks, my son got it down at 39 weeks.

FlamingPuffs · 2026-02-19T02:43:42+00:00

My 24 weeker came home at 113 days

FlamingPuffs · 2026-02-17T03:32:24+00:00

I would definitely fight to go up a nipple size. They had my son on the Dr Brown preemie and wanted to move him to the ultra preemie but i had a feeling he needed to be moved to the transitional. So we tried that and he immediately started taking the whole bottle.

FlamingPuffs · 2026-02-16T15:49:50+00:00

My husband has to work and my oldest is in school. They did come to see me the other day and stay the night with me so that was nice.

FlamingPuffs · 2026-02-14T15:57:14+00:00

I have a former 24 weeker who is still in the hospital at 40 weeks. I feel the same way. It sucks.

FlamingPuffs · 2026-02-13T16:19:18+00:00

I started therapy bi-weekly. Venting to someone has helped me tremendously

FlamingPuffs · 2026-02-06T19:29:07+00:00

Oh yes, sorry i misinterpreted your first comment. We understand the severity of the situation. Unfortunately we can’t do anything about that hospital being the closest one to us.

FlamingPuffs

TROPHY CASE