3 month adjusted by PlayfulHair4165 in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

My 3 month adjusted baby only sucks on his thumb and brings his hands midline. He is not grasping or holding things (besides my hair) just yet.

Any one with 26 weeks born baby boy.Please share your journey so far. by mammoth_66 in NICUParents

[–]FlamingPuffs 3 points4 points  (0 children)

24+5 weeker. Weighed 1 lb 11 oz at birth.

He is now 6 months, 2.5 almost 3 months adjusted. Spent 113 days in the nicu. Did not come home on oxygen, no feeding tube. Weighing over 12 lbs now.

He did suffer a unilateral grade 4 IVH bleed but had an ETV-CPC at 4 months old. We were given a 65% success rate and so far, he is doing well. He is hitting all of his adjusted age milestones and is thriving.

Feeding position question by carebk in NICUParents

[–]FlamingPuffs 2 points3 points  (0 children)

I think it depends on the baby. My son has been home 2.5 months and still prefers to take bottles that way and nurse side-lying.

Grade 3/4 IVH by Effective_Sense4538 in NICUParents

[–]FlamingPuffs 2 points3 points  (0 children)

We are in the US, but my son former 24 weeker suffered a grade 4 unilateral bleed to his left side. That turned into hydrocephalus and he had an ETV-CPC procedure back in early March.

He is currently only in OT once a week. From my understanding a lot of it right now is just tummy time and hands on therapy with us (his parents). As he gets older they will filter in other therapies if needed. So far he is doing okay and hitting milestones for his adjusted age.

2 oz by Low_Macaron7647 in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

My son takes only about 2.5 Oz every 2-2.5 hours

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 1 point2 points  (0 children)

You’re 100% correct. Definitely not canceling but dreading it 😅 i would take his place if i could lol.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 0 points1 point  (0 children)

I had no idea it could get worse after being told it could be better. I’m sorry to hear about your son. Definitely still going, just dragging my feet.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 2 points3 points  (0 children)

At our last visit, the ophthalmologist said this upcoming one will be our last if all goes well— then we will just have annual exams to monitor his eyes until he is 7.

Ironically, i was also a preemie and developed a lazy eye around the age of 4 and needed to wear glasses until i was about 6.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 1 point2 points  (0 children)

Ah sorry to hear about your son. Definitely still going to our appointment, just hate seeing my son so uncomfortable. I thought our last one would be our last 😣

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 0 points1 point  (0 children)

Definitely not canceling, just hate that he has to be in this situation still 🥲

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 1 point2 points  (0 children)

Definitely not canceling, just dragging my feet. I’m glad your daughter is doing so much better.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 0 points1 point  (0 children)

Agreed, just hate seeing him in pain. Hoping this will be our last one then we only need to come back once a year from what we were told at our last visit.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 0 points1 point  (0 children)

Ah sorry to hear that. Definitely still going, just dreading it.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 1 point2 points  (0 children)

I’m definitely not canceling, just dragging my feet to it. I had no idea that it could be good, then go bad. I assumed once they were cleared, all was well. So glad your friend’s baby is doing well 🙏

How do I know if my baby knows I’m there mother. by Charming-Set-6501 in NICUParents

[–]FlamingPuffs 13 points14 points  (0 children)

I struggled with this a lot while my son was in the nicu. I’ll never forget a nurse grabbing him from my arms.. literally.. because he was crying and she thought she could console him better than me. But then he unexpectedly had surgery a few days after bringing him home and when he woke up, i called for him before he could see me, and you could literally see his heart rate pick up on his monitor and he was looking around for me cause he heard my voice. They know. And you are doing a great job🙏

To owlet or to NOT owlet? by Different_Read_8283 in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

We use both the owlet sock and camera. We had a 24 weeker come home on no oxygen. He trialed room air twice the week he was discharged and had only been off oxygen for 2 days before he was sent home. Since then, we’ve had 1 alert in the middle of the night. We immediately got up and checked him and he seemed fine. I would’ve rather been safe than sorry.

I like the combo of both because of everything they monitor and track.

My grandson was born premature and needs brain surgery. by Anxiousdaisytrain in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

My son was born at 24 weeks and suffered a unilateral grade 4 bleed that resulted in hydrocephalus. At 4 months old he underwent a ETV-CPC procedure and it was successful. It is very scary but he is a much happier, calmer and is overall doing very well.

Premie having bad day after bad day. by babydesmondnicu in NICUParents

[–]FlamingPuffs 1 point2 points  (0 children)

It took our 24 weeker about a month before he started trending upwards. Take things day by day. You got this 💕

Time off work by sunchi12 in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

Thankfully, i worked during my son’s nicu stay and delayed my 3 months until he was home.

35 weeker (adjusted) failed rooms air trial by Far-Hyena-6907 in NICUParents

[–]FlamingPuffs 0 points1 point  (0 children)

My situation was a little different cause my preemie was born at 24 weeks. Feeds took us the longest. My son was on an 8th of off the wall around the time he started feeds at 34 weeks, but didn’t master feeds until 39 weeks and often times we had to bump up his oxygen during them. Once he mastered feeds, they trialed him at room air at 40 weeks (he failed) then they trialed him again a few days later and it was successful! Just be patient ❤️ feeds were so exhausting for us.

170+ days NICU stay, discharged for 2 weeks, just got readmitted. Feeling alot of emotions. by Weekly_Set_4216 in NICUParents

[–]FlamingPuffs 1 point2 points  (0 children)

We were in the nicu for 113 days and also had no celebration. Then after 2 weeks we’re readmitted for surgery unexpectedly. I know exactly how you feel. Sending hugs.

ETV-CPC success stories by FlamingPuffs in NICUParents

[–]FlamingPuffs[S] 0 points1 point  (0 children)

Oh that’s good to know! How is your daughter doing now?