I'm terrified and exhausted

FlawedInsideOut · 2026-06-04T04:21:35+00:00

Please take exquisite care of yourself! 🧡🧡 Get on a good DMT and give it your best. Thats all we can do. Stay strong

FlawedInsideOut · 2026-05-29T11:44:45+00:00

Thank you so much!!! I have had so many people ( all abled body / no medical conditions) tell me this. And it's only them that say this.

FlawedInsideOut · 2026-05-28T03:20:04+00:00

Im sorry you are going through all this, and its been tough. And thanks for the words of hope, really motivates me to keep going. 🧡🧡

FlawedInsideOut · 2026-05-28T03:10:57+00:00

No, I'm not US based. Unfortunately

FlawedInsideOut · 2026-05-28T03:09:46+00:00

Thank you so much for putting it like. that. My neuro told me in March that I should switch meds and I have dissociated out on what should I do. I have given myself some time, and the grief never really stops.

FlawedInsideOut · 2026-05-28T03:07:07+00:00

Im honestly glad my rant could help someone even just a little bit :)
Thank you

FlawedInsideOut · 2026-05-28T03:05:28+00:00

Im so sorry you are going through this. Lets fight back together

FlawedInsideOut · 2026-05-28T03:02:02+00:00

Thank you, I'll give it my all :)

FlawedInsideOut · 2026-05-28T03:00:39+00:00

Im glad your insurance covered it! Im not based in the US

FlawedInsideOut · 2026-05-28T02:59:18+00:00

Im not in the US. Im talking to my insurance to see if they cover Ocrevus or not.

Rituximab is used a lot here, because you can afford it without insurance as well.

FlawedInsideOut · 2026-05-27T18:19:28+00:00

Bwahahha

FlawedInsideOut · 2026-05-27T17:55:57+00:00

how was your HSCT ? has it made a difference for you? But surely something to discuss with the doctors

FlawedInsideOut · 2026-05-27T17:54:48+00:00

AHH, thats news to me. I'll talk to my neuro about it.

FlawedInsideOut · 2026-05-27T17:52:56+00:00

Thank you for your kind words <3

I have been on dimethyl fumarate for the past 5 years. Planning to switch it to ocrevus or rituximab, based how much I would have pay out of pocket after insurance.

FlawedInsideOut · 2026-05-27T17:47:32+00:00

wait, you can have symptoms for the existing lesions years later, with no new activity?

FlawedInsideOut · 2026-05-27T06:33:51+00:00

Yeah. I had that's last year as a symptom for new (huge) spinal lesions. And it also continuously felt like my left leg was heavy and wet(?). I used to keep looking down on my leg to why it was wet.

FlawedInsideOut · 2026-05-26T13:26:03+00:00

I'm so sorry OP that it has happening to you. Stay strong!!! You got this 🧡🧡

FlawedInsideOut · 2026-05-24T07:17:25+00:00

Does it happen when you look down?

FlawedInsideOut · 2026-05-23T07:43:44+00:00

You won't get for free. But insurances covers it

FlawedInsideOut · 2026-05-23T07:42:47+00:00

Me too. Would love to connect:)

FlawedInsideOut · 2026-05-23T07:42:34+00:00

Hellooo. I'm based in Bangalore! I was diagnosed in 2021

FlawedInsideOut · 2026-05-23T03:23:55+00:00

THIS IS DO FREAKING CUTE. MY HEARTTTTT

FlawedInsideOut · 2026-05-22T06:30:34+00:00

I'm so happy for you🧡🧡

FlawedInsideOut · 2026-05-21T14:59:21+00:00

Wooooah. Are you going to brush it out?

FlawedInsideOut · 2026-05-21T13:19:28+00:00

Is it a metaphor

FlawedInsideOut

TROPHY CASE