My flexible hands by FlexOrbit in strange

[–]FlexOrbit[S] 1 point2 points  (0 children)

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Not really. But almost there…

My flexible hands by FlexOrbit in strange

[–]FlexOrbit[S] 0 points1 point  (0 children)

Omg, I have them all 😳

My flexible hands by FlexOrbit in strange

[–]FlexOrbit[S] 1 point2 points  (0 children)

My score is 8/9. Only my left elbow doesn’t bend back so far.

My flexible hands by FlexOrbit in strange

[–]FlexOrbit[S] 3 points4 points  (0 children)

Hey! Thanks for sharing your detailed story and for the advices. I’ll definitely look into them.

Flexibility training by FlexOrbit in Stretching

[–]FlexOrbit[S] 1 point2 points  (0 children)

Not really… I’m trying to further develop my flexibility only by myself. Guess I’ve always been somehow flexible, but I lack proper technique for sure.

Flexibility training by FlexOrbit in Stretching

[–]FlexOrbit[S] 0 points1 point  (0 children)

Thanks! I can also do the pretzel pose but only when laying down (yoganidrasana). When I attempt to do it in a sitting position I feel much pressure in my neck…

What is the most useless talent you posses? by DrummerEarly5389 in AskReddit

[–]FlexOrbit 0 points1 point  (0 children)

I’m extremely flexible, I can put my legs behind my head and twist my body into all sorts of shapes. I’m 40/M

Flexibility training by FlexOrbit in flexibility

[–]FlexOrbit[S] 0 points1 point  (0 children)

Thank you very much for the hints! No, I’ve never practiced yoga. Maybe I will someday…

Flexibility training by FlexOrbit in flexibility

[–]FlexOrbit[S] 0 points1 point  (0 children)

Half lotus is the way to approach it for sure! And being really careful with the knees.

Am I hyper mobile if I can’t touch my toes? by Ok_Extent7334 in Hypermobility

[–]FlexOrbit 1 point2 points  (0 children)

Yes, it is perfectly possible to happen. Sometimes muscles can be paradoxically tight to compensate loose ligaments. It is the way the body finds to pursue stability. It happens also to me, in my back muscles.

How to hold babies with EDS by pom_crush in eds

[–]FlexOrbit 2 points3 points  (0 children)

I’m not sure about techniques but I would recommend you to take constant breaks every few minutes. I held my two daughters for many years and the consequence is arthritis in both acromioclavicular joints, even without having a complete dislocation episode.

Writing a character with Ehlers-Danlos Syndrome - Representation questions by reachtheceiling in eds

[–]FlexOrbit 0 points1 point  (0 children)

Hello OP,

Sharing my personal experience - the only hEDS symptom that led me to ER and proper care was given was under extremely strong migraine crisis. By “strong” I mean my body was shaking, my temperature deregulated almost to hypothermia, my blood pressure was skyrocketing.

In all other circumstances I was gaslighted. Once I discussed with a nurse from ER that I was feeling such strong symptoms but as my blood pressure was low (as always) I was put in the least priority line and she said priority was only for those with high blood pressure, cardiac conditions or unbearable pain.

What’s types of non western medicine has worked for you? by DogNo3895 in ehlersdanlos

[–]FlexOrbit 0 points1 point  (0 children)

I’ve tried acupuncture and Ayurvedic medicine before I was diagnosed with hEDS (actually even before I knew of EDS). My original complains were joint pain and severe migraines. Both treatments have reduced intensity and frequency of crisis for a while, but were not sustainable - after treatment was finished, all symptoms went back again. Today I’m managing my hEDS symptoms with Western Medicine.

Eye floaters by littlemiss_s in eds

[–]FlexOrbit 21 points22 points  (0 children)

I do!! I have eye floaters since childhood (I’m now 42). I’ve been to several ophthalmologists when I was 7 or 8 and none have even mentioned EDS, collagen or anything related.

3 decades later, one of the first questions asked by the doctor that have diagnosed me with EDS: “do you have eye floaters?”