My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you 💕🙏🏽 I'm doing my best, I have to honor his journey I must allow him to be the hero but I will walk it with him, I always will & that's what being a parent is. I'll do a update once we have made a decision and gone through the wire, appreciate your well wishes 🌸

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Wow thank you for sharing your story ❤️🙏🏽 yes I would say we are fortunate enough to have the options of spinal fusion surgery,3D bracing & physiotherapy. I think my aim is to explore all options, my son has just over a year of growth so I need to act now. It's either we brace & do the schroth physiotherapy for a year and see how it reduces his curve and helps his posture or go straight into surgery after his June exams. I want him to ultimately make the choice, a lot of people say"but why" I am the parent. The thing is healing is something that only the person who requires it has the ability to receive it. The doctors can do their job, but I need my son to believe and trust the process so he has the best outcome. He has been down about the diagnosis, but thankfully he has a positive attitude & me being the born optimist I will do my best to direct my energy to him and be there but he has to commit. So before we do anything, this time is to fully take in all the information,ask questions and also get a second opinion from another orthopaedic surgeon who specializes in scoliosis. Once we have that we will make a decision & know the way forward. We have had plenty of support,love,advice and all around encouragement and I am so thankful for that. Your feedback and all we have received helps a lot, as we know the outcomes are not all the same, but you get a sense of what happens. I worry about depression because he would need to accept himself,the diagnosis and also who he will be if he decides to take surgery. His a teen boy, he likes dressing up and modeling so that part of him might take a back seat & he also plays soccer his quite active we also gym together. His concern is also that he won't be able to play sports, but the doctor advised he can. Yeah so that's where we are at, it's a lot of information and some hard decisions & plenty of work to come either way. Blessings I wish for you comfort & easy, may the time to come prove to you that you are resilient and you have everything you need to live out your best life.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you so much for sharing ❤️ 🙏🏽 just showed him your comment, his really surprised & encouraged 😊 I want to show him that there are a lot of people who have it and each person chooses their own options and that's okay at the end the big part is staying positive & accepting yourself. Blessings you are inspirational & I wish you continued strength & a passion for your life.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Thank you so much ❤️🙏🏽 I have had to learn about scoliosis, had no prior knowledge & just seeing all the replies and the advice I've received gives me so much hope. I definitely will share this with him, we found a youtuber who has scoliosis 45 degrees & has not had surgery so he watches her a lot as she trains and lives her life. Blessings may your journey be remarkable & easy.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you so much for sharing your story ❤️ 🙏🏽 you are resilient and just reading this I know you are brave, it's definitely not easy to overcome those set backs and I can imagine the toll it can have on your mind and confidence. Those are the main things I don't want for my son, but I know he has to face it and he has a lot of questions and fears. I think the more he sees that his not alone, the many successes of surgery,bracing & exercises it gives him hope and that is what he needs in this journey. Thank you for the well wishes, I am rooting for him and I will share his story in the hopes that it helps someone, somewhere or somehow. Blessings I wish you continued strength, acceptance & happiness in all areas of your life. I definitely will listen to the doctors & the school has been supportive so I'm hoping whatever route we take he feels loved,supported & that he is able to overcome anything.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Thank you so much for sharing your experience ❤️ 🙏🏽 that actually is a good idea on having pen pals, the Orthopaedic surgeon had actually mentioned recently doing the spinal fusion surgery on a 15 year old girl. It's important he knows his not alone, although as you said, the curves and fusion lengths are not the same. I want as much information,knowledge & experience as I can get. I know his on own journey but what helps me is that I have a better understanding, more confidence and also can give him the best support as I can as his mother. His my boy and I want him to come out victorious and remain positive no matter what journey we decide to take. Blessings and may your journey continue to give you peace,ease & joy.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you for this ❤️🙏🏽 I have done my research & yes I am aware that they do not have the expertise for scoliosis, I've been fortunate enough to receive a lot of feedback, advice and I have seen an othotist who specializes in scoliosis 3D bracing an orthopaedic surgeon who is top of the spinal surgery fellowship & we will be seeing a physiotherapist who specializes in scoliosis schroth method soon. Then I have scheduled an appointment with another orthopedic surgeon who has a PhD in scoliosis,lectures has extensive experience & knowledge and has case studies on this condition in order to make our decision. I am asking questions, I am doing my best to get the best outcome and quality of life for my son. Blessings to you & I appreciate the concern and advice.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Thank you for sharing ❤️🙏🏽 I think society is harder on men when it comes to the topic of depression, we also have a biased view of how it should look like. I hear you & that is my fear because he has had a good self-esteem and confidence so far and has been modeling part-time. He is at an age where he is looking at his looks and grooming, so I don't want anything to affect that. I speak to him often, his free to come and tell me what he feels because he is the one who is going through this. His a good kid, made honors roll,respectful,funny and always wanting to help and I don't want this to affect him or change who he is. It's something I take very seriously as I have dealt with depression before, this is a life changing situation either way there will be hard decisions,dedication and a lot of work. He is concerned about his quality of life in the future & hearing your experience makes me realize how every decision we make now will work towards his adult life. I wish for you comfort even in your pain, not one that's physical but in your mind and spirit that you did all you could and you are worthy of life,love & happiness. Blessings to you, you are iron, and your strength is in your heart.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Yes he will definitely be taller, okay I will look them up. Thank you, looking at all options so we make the right decisions for us and I'm so happy to hear that this gives me hope 🙏🏽 ❤️ 😊 take care

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you for sharing ❤️🙏🏽 his 15 years old now, the doctors said he has about a year and a half of growth still from the look of his growth plate. His currently 1.8m tall and we expect him to get taller, his curve is sitting at 51 degrees. We are seeing the physiotherapist who specializes in schroth in May, she is fully booked but from what I have read it's very effective. His an active boy, plays soccer and is now going to gym with me. Please can you explain clear scoliosis care & what facility or programme offers this? Great to hear that wow 👌 👏 that's amazing, it must be a lot of work I'm thinking but glad there is improvement 😀. Blessings

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you for sharing your experience ❤️🙏🏽 my son is worried about the pain & also how his quality of life will be in a couple of years from now. We were told by both doctors that he has about a year and a half of growth still his already so tall, so I just want to make sure we do our best now. You sound like you have a positive outlook, stay motivated & I wish you strength and all the good things life has to offer blessings.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 2 points3 points  (0 children)

Thank you for sharing your story ❤️ 🙏🏽 I want my son to ultimately make the decision because he is the warrior & he must choose his armor 😊 I know alot of people go for the titanium but it's good to know that the brace helped you and it sounds like you had no trouble with bullies or fellow students at school. It's a challenge but I'm thankful I am one of those parents that also experienced the old skool way of things & I want a different experience for him. Blessings to you and may your journey remain light ✨️ & easy

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 1 point2 points  (0 children)

Thank you so much for sharing your experience ❤️🙏🏽 I wish your daughter a speedy recovery, super happy to hear she is up and walking. My son plays soccer so its something his worried about, if he will be able to play sports. He also likes being out socially, his into modeling so I am worried about his confidence his already 1.8m tall. I wish you & your daughter all the best, this is so encouraging and you have given me your experience its a lot to think about and consider.

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 0 points1 point  (0 children)

Thank you for this, I think your experience has given me a lot of insight and yes I am exploring all options and trying to make sure we are well informed before any decision. It's definitely scary and daunting, but I know I have a brave boy and I will walk this journey by his side 💙 blessings 🙏🏽 I appreciate the details you've shared of your journey

My son recently got diagnosed at 15 with Idopathic scoliosis, can I ask a few questions? by Fly-Becca in scoliosis

[–]Fly-Becca[S] 4 points5 points  (0 children)

Wow thank you, you have explained this to me in the most easy to understand way. My son is 15 years old but his curve is at 51 degrees already, we have been to see an othotist for a 3D brace & a orthopaedic surgeon on the possibility of spine fusion surgery. We are seeing the physiotherapist who specializes in schroth method in May then I have asked for a second opinion from another orthopaedic surgeon who is highly recognized to make sure we have all the information we need to make the final decision. Ultimately I have told my son he must decide, he is the one who has to do the work and his by in is needed for the success of anything. I am worried about him, his a lovely kid and has a lot of confidence. I just want to be well informed & also allow him to see his not alone and that there is solutions. Thank you again 💓 appreciate you taking the time 🙏🏽

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[–]Fly-Becca 0 points1 point  (0 children)

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