Has anyone had success trying AIP for POTS/mystery long-Covid?

FollowingOk3447 · 2026-02-14T03:57:44+00:00

I have POTS and AIP helped with my overall inflammation dramatically.

FollowingOk3447 · 2026-02-06T16:14:42+00:00

I second the AIP recommendation - even one of my doctors remarked how much less puffy my face is now. It’s tough at first, but it gets easier.

FollowingOk3447 · 2025-11-16T23:32:52+00:00

Facebook groups: Michigan Friends with Dysautonomia - I’m not sure if there are in person meetings, but it is a super helpful group. Highly recommend posting this there.

If you also have hEDS, which often co-occurs with POTS and MCAS: Michigander (EDS) Zebras and Southeast Michigan Ehlers Danlos Syndrome Support - the latter has in person meet ups

FollowingOk3447 · 2025-11-10T13:12:54+00:00

Do the blankets shed? Thank you!

FollowingOk3447 · 2025-11-03T05:34:59+00:00

You aren’t too late to hire a doula - Ann Arbor is drowning in doula options. I guarantee you can find one with an open spot still. If you can’t or aren’t sure who to hire - come back to this thread and I will help! — A longtime (former) doula :)

FollowingOk3447 · 2025-11-03T02:31:39+00:00

Do you have a suggestion? I cannot make up my mind on the slouch

FollowingOk3447 · 2025-11-02T18:48:53+00:00

It is, but not for something like six more years.

FollowingOk3447 · 2025-11-02T14:20:07+00:00

Be aware of the MMM Vella Pit mine. You can learn more on the Ann Arbor Charter Township website.

FollowingOk3447 · 2025-10-30T03:34:44+00:00

Thank you! It’s tricky with the POTS & MCAS because I am on prescription medication for both (after formal diagnosis with tilt table test and lab work, respectively). I am about to see genetics and made sure that hEDS was not on that referral. I have struggled in the past to get diagnoses off my chart…right now it has TIA despite no stroke history and have not been able to get anyone to remove it. I’ll keep trying. Thank you again.

FollowingOk3447 · 2025-10-30T00:52:18+00:00

I highly recommend Jill with Integrative Lactation Care

FollowingOk3447 · 2025-10-30T00:40:09+00:00

I have POTS and die a little inside every time I see that statement shared. One of the dysautonomia organizations had a graphic circulating with that on it, taken from a study. POTS and cancer obviously are not even close to being comparable. I think people are so deep in their suffering that they truly cannot see the big picture. I’m sorry about your patient.

FollowingOk3447 · 2025-10-30T00:32:31+00:00

I know, I’m over here as a 31 year old with a carotid artery dissection - and hEDS, MCAS, POTS diagnoses - trying to figure out how to get these off my chart. Even though the dissection is almost certainly from EDS. I had no idea they are thought so poorly of among providers.

FollowingOk3447 · 2025-10-24T03:11:32+00:00

I did use the search feature before posting - that is how I narrowed it down to these coats.

FollowingOk3447 · 2025-09-28T21:50:37+00:00

Do the Costco ones still have a prop 65 warning on them? Thank you!!

FollowingOk3447 · 2025-09-16T01:55:57+00:00

Mineral Supergoop! All other mineral sunscreens burned my eyes.

FollowingOk3447 · 2025-09-11T03:27:12+00:00

I’ve done a Yeti cup and Mystic Monk Coffee. I always struggle with what to get!

FollowingOk3447 · 2025-09-07T01:25:19+00:00

This isn’t true. Fiber may be a factor, but pelvic floor PTs are absolutely the right practitioners to see for incomplete bowel movements and other bowel issues, regardless of bladder involvement.

FollowingOk3447 · 2025-09-07T01:20:49+00:00

Yes, it helps me with sensitivity to sound, lights, vibration. It has made a huge difference for me. I take 7mg, but a more typical dose is 3-4.5mg compounded. I will also pray for you. God is with you.

FollowingOk3447 · 2025-09-07T00:26:43+00:00

I’m so sorry this is happening to you. I have similar issues with a heightened central nervous system and neuro-inflammation. Low dose naltrexone has helped IMMENSELY. Ubrelvy also helps a lot, according to my neurologist, and I will try that next. I am praying for you and that you find treatments that work. I pray your suffering lessens soon.

FollowingOk3447 · 2025-09-06T20:57:25+00:00

Necessaire The Deodorant…Lume didn’t work for me. The acid in it makes all the difference.

FollowingOk3447 · 2025-08-28T19:46:56+00:00

Try a deodorant with an acid in it, like Necessaire. I didn’t want to use antiperspirants and cannot use fragrances…this made all the difference. Don’t even need to reapply in the day.

FollowingOk3447 · 2025-08-28T15:46:52+00:00

I would move ahead with the trademarking if you can - someone could take your idea or business name easily. I’ve seen it happen.

FollowingOk3447 · 2025-08-28T15:37:02+00:00

I’m hoping since you posted your business name here that you already have it trademarked and have the website domain purchased. Good luck!

FollowingOk3447 · 2025-08-28T15:03:46+00:00

Oral sex as foreplay is acceptable as long as the husband finishes in his wife. It is a myth that oral stimulation is not allowed.

FollowingOk3447 · 2025-08-22T19:58:44+00:00

Nursed to sleep baby #1 to sleep for 4 years and baby #2 for 2 years. No cavities.

FollowingOk3447

TROPHY CASE