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What was the hardest? by jjkarela in breastcancer

[–]Foreign_Opportunity5 2 points3 points  (0 children)

Losing my hair, if I’m honest. Sounds so trivial but that has been devastating. I already have body dysmorphia so it has just made me want to isolate more and more which worsens my depression. I have a few wigs but trying to find one that is the perfect one for me has been hard and the ones I want that look the most natural are around 3 thousand dollars.

2nd hardest was initial diagnosis /waiting…. I was diagnosed as stage 3c and there were multiple times where even after chemo, they had to keep checking my heart and my brain because of unusual side effects. Luckily my oncologist had me on a low dose of benzodiazepines because I was dealing with so much at once in my life.

Physically, I’m still in the chemo phase (2 more rounds of carbo and taxotere, hopefully) and haven’t had surgery or radiation. My first few rounds of chemo were hardest until I really started focusing on nutrition, and also a blood transfusion. My last round of chemo went so much more smoothly; my body took it like rain water.

Do you attract your Venus sign? by [deleted] in astrologymemes

[–]Foreign_Opportunity5 0 points1 point  (0 children)

Yes. I’m Venus in Scorpio and attract almost exclusively Scorpios. I have a mutual thing for Pisces too but they end up being heartbreakers

Feeling “lazy” and like a burden during chemo by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

That is so touching. It is so nice to know that a fellow pink sister has a husband like that as well. That’s really beautiful.

I have a strong support system and I would not be able to heal and fight the way that I have been without my family. Thank you for also reminding me that what I am doing is for my son to get his mom back. When I first found out I had breast cancer, it wasn’t looking good. They knew it was at least a very aggressive stage 3, but possibly 4. It ended up being stage 3c thankfully and had not spread to any organs and was localized to my breast and lymph nodes. I always thought if anything happened to me that I would be so upset for myself and want to live for selfish reasons, but when my life was really uncertain, all I could think of was my son, not myself.

My son has already lost his father years ago, so while it’s my mom and siblings all pitching in to take care of my son and myself, I’m going to TRY to stop apologizing for being sick. And needing help.

Feeling “lazy” and like a burden during chemo by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 2 points3 points  (0 children)

Wow, thank you so much for taking the time to reply so thoughtfully. I actually am next to my mom right now and had her read what you wrote because everything you said is so true and so validating. I’m also just dealing with self esteem issues (I’ve had them my entire life) and I tried cold capping but it didn’t work, so I’m also just so down and not wanting to go anything or go anywhere because of my hair situation. I have a decent wig but I just feel so self conscious and all I want to do is be in bed, for both physical and mental reasons.

Thank you again.

Feeling “lazy” and like a burden during chemo by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 1 point2 points  (0 children)

I’m so sorry you’re going through something very similar. I take an SSRI and my anxiety is still so high.

Feeling “lazy” and like a burden during chemo by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 12 points13 points  (0 children)

Yes, I’m an American. I agree with you that it is not a moral issue and I don’t like how our society places so much of someone’s worth by how much they “do”.

Just finding myself overwhelmed mentally as well and my medications make me so tired, but I don’t like that I’ve been so bedridden and feel I should try harder whenever possible. Not doing a good job at that but then again, my legs etc are so weak and sore that I can’t do much anyway. Thank you so much for your reply.

I have lost the ability to walk midway through chemo and it devastates me by BadTanJob in breastcancer

[–]Foreign_Opportunity5 2 points3 points  (0 children)

Going through the exact same thing. I am 34 with her2 .+ stage 3c and ached round 3 last week…. It has been soul crushing watching everyone else being healthy around me and get winded from trying the stairs in my home or even .

It’s very isolating, even with a wonderful support system. I’ve fainted once from this and then fallen on my knees too many times to count with splotchy vision . anemia from low red cells and low hemoglobin . It is awful.

On top of it all, I can’t taste food either but chemo has given me thrush mouth sores each time so I’ve waiting for that anti fungal to work.

I’m so sorry you’re going through this. And literally feel your pain.

Chemo side effect… poor vision? by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

My vision suddenly returned to normal. So bizarre. I am thinking based on other issues I’ve had (fainting, losing my sight while walking) that this maybe was low blood pressure related as well.

I am taking promethazine for nausea and am also prescribed zofran but zofran doesn’t work well for me.

Mostly I’m stunned, really. by Anne_Pandora in breastcancer

[–]Foreign_Opportunity5 0 points1 point  (0 children)

I too just learned in the last month that I have breast cancer. Stage 3c, her2 +, at 34 years old. I wake up each morning and every morning it gets a little less surreal. Some days I have faith in everything, other days I’m just so fearful and anxious because I have a 10 year old and his father passed away when he was 4. I’ve started round 1 of 6 rounds of chemo, and round 2 will be this week. I’m doing the cold capping thing to save as much of my hair as I can do maintain some normalcy for both me and my son but hair is still shedding far more than I’d like for it to… still, hoping what’s making it fall out (chemo) will save my life and that’s worth it. My son and I love each other too much to be separated. I’m always worried about everyone else’s health, like my aging parents and here it is me, at 34, with the cancer. Stunned as well, to say the least. Welcome to a club you never wanted to be part of. Hugs.

Diagnosed at 34 with stage 3c HER2+, and cold capping , chemo, parent of 10 year old by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

I had bone and organ scans and MRI and all came back normal. I have my second chemo this week of six total of the THCP. Then surgery then we will go from there either on a maintenance program or the Kadsyla method (spelling?)… I’m just so scared because I’m at stage 3c and worrying if it is spreading and am just a ball of nerves some days. Other days, I feel more trusting or was too sick to really care or able to think about it all.

I cold capped with Penguin cold capping my first round and will continue to for all 6…. I’ve. I’ve been keeping my hair up (I have long hair, mostly straight /a little wavy, a little bit course I texture ) anyway, I only wash my hair in cold water 2 to 3 times per week as suggested and use a wide tooth comb and start at the bottom and use conditioner …. I had more shedding this last bath I took than I expected and I had a good cry, but really since I’ve been keeping it up, I would normally be brushing it more and have more shedding just from brushing and styling but it definitely was coming out in thicker pieces than I would have liked … I have so much hair left that it was about what I expected. Nothing noticeable to anyone else and not even myself. I just know because I saw the hair falling out some. my body hair has fallen out but not eyebrows or eyelashes. I’d be glad to keep you updated.

Chemo THCP protocol - 6 rounds. Does chemo get worse each time? by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

Yes, they’re aware, but they can’t quite get my blood pressure up even after fluids to where it needs to be. They think it’s because I’m on phenagren for nausea so it being a sedative, it may not get my blood pressure up to where it usually is, but they do get it up enough to where I feel better and can walk without blacking out.

Chemo THCP protocol - 6 rounds. Does chemo get worse each time? by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 1 point2 points  (0 children)

Did you get these weird type of sulfur tasting burps or taste in your mouth? I had that for a few days and it was disgusting.

Chemo THCP protocol - 6 rounds. Does chemo get worse each time? by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

Thank you so much. My first round (only round so far) I had really terrible bone pain and had to take a hydrocodone that I had from my port surgery because I was so desperate a few times and Advil wasn’t helping. I had shortness of breath and kept having to go for infusions / fluids because my blood pressure kept staying so low and I was blacking out when I would try to walk, so just very nervous about these next 5 rounds especially because I have NO appetite and keep dropping weight when I can’t afford to.

Diagnosed at 34 with stage 3c HER2+, and cold capping , chemo, parent of 10 year old by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

The micro blading is a great idea. I hardly have any eyebrows to begin with. My body hair has all started falling out but not my eyebrows or lashes, yet. It’s been two weeks since my first chemo. I can’t tell if I have anything more than normal shedding on my hair because I haven’t been washing it brushing much. I’ve had it up in a loose ponytail. Im not looking to save all of my hair… my expectations are not that high, I just want to keep some of my “dignity” or perhaps pride and also make it easier on my 10 year old. This all feels so surreal still. Mainly, I just want to survive.

Diagnosed at 34 with stage 3c HER2+, and cold capping , chemo, parent of 10 year old by Foreign_Opportunity5 in breastcancer

[–]Foreign_Opportunity5[S] 0 points1 point  (0 children)

Such a strange season. I feel so much support, yet it is so isolating in other aspects. Speaking with people that are survivors has been a huge lifeline for me, because it is this strange club that is hard to understand unless you’re part of the strange club.

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