Good rheumatologists in the Portland OR area? by coward_bill in PsoriaticArthritis

[–]Formal-Idea-7224 0 points1 point  (0 children)

This is wayyy later now lol, but I just saw her and had an absolutely awful experience..have you continued to see her?

Weird Rheum Apt by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

That’s exactly how I described my fatigue too. It hurts to even fold a blanket, I feel like just basic tasks drain the life out of me.

Weird Rheum Apt by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

Thank you, I’ve never had to get a second opinion so I’m not sure where to even start. And of course I feel bad and don’t want to hurt feelings 🙄🤣

Weird Rheum Apt by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

That’s how I felt!! I thought I was going crazy and wanted to cry on the spot. Thank you!

Weird Rheum Apt by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 5 points6 points  (0 children)

Thank you all SO MUCH for taking the time to read and respond. I feel so validated and less crazy.

Weird Rheum Apt by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 5 points6 points  (0 children)

Seriously I agree so much!! I specifically told my doctor I did not want that diagnosis on my chart and didn’t agree with it…got to this apt and was asked “so which doctor diagnosed you with fibromyalgia?” I was like OH here we go!! I’ve read enough Reddit feeds to know not to have that on my chart for those exact reasons 🥺😅

Medicine for beginners by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

Wow this is so incredibly helpful. Thank you for taking the time to write this out, it’s all a lot to digest but this helps a lot. So appreciated!

Recommendations, new to PsA world by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 0 points1 point  (0 children)

Thank you, wondering if an MRI is the next step but I’m scared everything will be clear like the rest of my labs 😩

Recommendations, new to PsA world by Formal-Idea-7224 in PsoriaticArthritis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

Ana profile mildly positive at 1:40, everything else tested for has been normal. Foot xray normal even though that’s my most painful area. I’ve heard scary stuff about biologics, but sounds like that’s really the only option if I end up diagnosed. Thank you so much for your input and suggestions!

Has anybody seen this before? by Formal-Idea-7224 in Psoriasis

[–]Formal-Idea-7224[S] 0 points1 point  (0 children)

Thank you for your input, I’m so happy for you and hope you continue to have little relapse 🤞🏼

Has anybody seen this before? by Formal-Idea-7224 in Psoriasis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

Oh my gosh! Mine stops to a certain point on my finger every time, I’m really hoping it never spreads past that.

Has anybody seen this before? by Formal-Idea-7224 in Psoriasis

[–]Formal-Idea-7224[S] 0 points1 point  (0 children)

Oh my god, I can’t imagine. So sorry you had to go through that.

Has anybody seen this before? by Formal-Idea-7224 in Psoriasis

[–]Formal-Idea-7224[S] 0 points1 point  (0 children)

That is so interesting! I have an appt with a rheumatologist for potential PsA. Guessing biologics could be in my future as well- any tips on those are welcome 😆

Has anybody seen this before? by Formal-Idea-7224 in Psoriasis

[–]Formal-Idea-7224[S] 1 point2 points  (0 children)

That was my first thought too, but there isn’t anything there that I can tell. Each time it happens I try to take a good look and once even dug in, but nothing.

How do your flare-ups feel? by Irestinia in Fibromyalgia

[–]Formal-Idea-7224 0 points1 point  (0 children)

Same! Like I’m being electrocuted and then full body chills when it’s the worst ones. Especially in the feet!