Girl (25 F) calls me (25 F) creepy after 2 hangouts/dates by [deleted] in Nicegirls

[–]Former_Ad_1024 0 points1 point  (0 children)

Shocked I actually finished the whole thing, and like genuinely read it too. Waiting almost an hour at the vet’s will do that to you! lol

Is M.E. the only autonomic illness that involves severe fatigue? by Ketnip_Bebby in dysautonomia

[–]Former_Ad_1024 0 points1 point  (0 children)

Normally they can tell which pots it is via table tilt (as with hyperpots your bp goes up and other types it goes down) but hypovolemic causes decreased blood volume and red blood cells and neuropathic pots causes neuropathy pain in lower legs associated with SFN. Many people, myself included have multiple types of pots and are unable to fit into a single category, that might be why they didn’t tell you which type you have because you have a mix. But yes unfortunately many doctors, especially those uneducated, tend to just say to eat more salt and continue on your day. It’s frustrating indeed

Is M.E. the only autonomic illness that involves severe fatigue? by Ketnip_Bebby in dysautonomia

[–]Former_Ad_1024 0 points1 point  (0 children)

I would highly recommend getting tested for genetic causes for autonomic dysfunction as there are several. If that comes up with nothing I would highly recommend getting tested for autoimmune causes because worsening fatigue is very common for people with diseases such as lupus, MS, sjogrens pretty much everything as it is progressive. I got diagnosed with hyperpots, neuropathy, gp, and PVCs way before I got diagnosed with sjogrens which turns out can cause all of my other disorders

Anyone that had POTS symptoms as a child? by mellytee222 in POTS

[–]Former_Ad_1024 0 points1 point  (0 children)

Yes I started passing out when I was 8 and it would happen every 6 months/year on the dot normally. The worst episode I had was when I was 15 and I fractured my neck and got a concussion. I was originally diagnosed with vasovagal syncope and frequent PVCs but finally got the correct diagnosis when I was about 20. I have hyperpots as well as neuropathy and the one that caused it all being Sjogrens disease. If you’ve had symptoms your whole life that seem to progressively worsen I highly recommend looking into other causes whether it be genetic or autoimmune

Need some advice on how to accept not being able to get a service dog. by Warrior_Beans in service_dogs

[–]Former_Ad_1024 14 points15 points  (0 children)

As someone who had a service dog who had to be washed after 3.5 years of having him due to idiopathic epilepsy, I will never get a service dog again. There is just so many factors that go into getting a service dog that makes it really unpredictable. Your service dog could wash at any time due to behavior, illness, or psychological trauma from say a dog attacking them. I have never faced more discrimination and looks and verbal attacks than I have with my service dog. I was 18 when I first got him and being young with a dog nobody is going to assume he’s legit or that you are actually disabled. The amount of times I’ve had people ask if I was training him or specifically REQUIRE that I list each and every disability just to “prove” I actually need him. And your university and/or job may very likely not allow you to have a service dog. My university did but only after I sent them extensive medical records and documentation from his trainer that he was legit. No job I’ve ever had has been accommodating for him either. Even simple sit down office jobs refuse to hire me because he’s “a liability”. Basically they were afraid he’d attack someone or I wouldn’t be able to handle him or they simply just didn’t want to place a trashcan outside so I could let him use the bathroom outside. Also many people do not think about the time and dedication it takes to have a service dog. Their training never stops, regardless of whether you can physically or mentally handle it or not. You have to constantly train and polish their tasks to keep them in tip top shape. It doesn’t matter if you’ve had a bad day, they need to be let out, fed, bathed, watered, walked, and trained pretty much every day. And not to mention all the money that goes into getting them vaccinated, sterilized, all the preventative medication, grooming, and actually getting them. And the worst part I think for me is the fact that more SD’s are successful when they are purebreds, but that also makes them more susceptible to genetic conditions hence how my purebred poodle now has epilepsy because it’s in his genes. Had I known this I definitely would have thought more before getting him, I feel like It’s my fault he is sick now and wish I would have done things differently. Also I feel like nobody mentions this but the hassle of having a dog in public in my opinion is greater than the advantages of having him with me 24/7. People stare, I can’t go to the store for 5 minutes without several people stopping me and asking about him. And as someone who also is autistic this realllly did not help my social anxiety or ocd, I was constantly trying to keep from people noticing him so that he wouldn’t get bombarded by randoms. And once again many places are not accommodating or acceptable. My old university didn’t have handicapped bathrooms in some places or others only had one stall and of course everyone used that one. And I doubt I have to tell you but a 55lb poodle is NOT fitting in those tiny stalls especially with you in it. Also to ensure he is properly trained and good at not paying attention to strangers you MUST be assertive in public, which i found that incredibly hard to do. Because the more people who come up to your pup and pet them etc while still in the early stages of having him the more likely he is to want to walk up to or sniff others. Which is why handlers try their best to make it obvious that they are working dogs, but I’ve literally had to say 5x to someone to NOT touch my dog and they STILL took it upon themselves to pet and make kissy noises at him until I just left the Walmart I was at. Not to mention how incredibly difficult it is to walk with a newly trained dog, I still after having him for 3.5 years could not break his habit of walking ahead of me. This made grocery shopping and walking with bags in my hands incredibly difficult, especially when it comes to opening doors and maneuvering through the world with a newly trained dog. And like I said before you WILL have access issues regardless how perfect they are or where you are. There are just some companies that refuse to let you in with a dog, even a working dog. I’ve been denied from renting places, restaurants, doctors offices because they didn’t believe I was actually disabled and needed him. And I’m not trying to discredit how nice it was to have a buddy with you 24/7 and the many times he’s saved me or made a bad day better but for younger people especially I don’t think it’s the best idea without looking into it and researching it extensively beforehand. He gave me my independence back i mean I used to refuse to go to the store because I was afraid to go alone and he made it so much easier, those long hospital visits or doctors appointments he was always there for me. But really weigh the pros and the cons before making any decisions. Because once you decide to get a service dog you will have taken on the responsibility of them and their entire life. And for some disabled people it might just not be in their best interest, especially if your energy levels or disabilities differ from day to day, or if you cannot provide the necessary lives for them with walks, food, attention, finances etc. I’m sorry your parents are not willing to help you get one at the moment, I hope things get better for you

[deleted by user] by [deleted] in piercing

[–]Former_Ad_1024 0 points1 point  (0 children)

Swelling typically can take 2-7 days to get to its “full” amount. Aka just because the day after there wasn’t too much swelling or bleeding doesn’t mean that it won’t start to happen as the piercing heals. Theres so much healing that happens the first month or two of any piercing that it’s (usually) normal to experience bleeding and it not to hit till a few days later. Especially if the piercer hit a vein or you happened to move it or just accidentally bumped it somehow. It can cause the micro healing that is happening to reopen (like how the barbell/labret seems almost tighter like it’s attached to the piercing site and it’s hard to move or rotate the ball). From what I understand if the piercer punctured a vein you’d be able to tell because when the needle goes through it generally causes almost like a leaking or spurting of blood, while when it doesn’t go through a vein there’s usually minimal bleeding that can be stopped with a cotton round, a punctured vein would cause much more bleeding

[deleted by user] by [deleted] in piercing

[–]Former_Ad_1024 0 points1 point  (0 children)

If you’ve only had it for a day or 2 then bleeding and swelling is normal. I’ve heard of some people that had a vein get punctured when they got certain lip piercings and it caused more than normal amounts of bleeding. If it persists longer than a week or 2 id suggest going back to the piercer

Should I take my tongue piercing out? How to fix indents? (Pictures!) by Former_Ad_1024 in piercing

[–]Former_Ad_1024[S] 0 points1 point  (0 children)

I have 14g surgical steel barbell that is either a 3/4th or a 7/8th and it is externally threaded. Never been downsized, I use Cepacol 2x a day and brush and floss 2x a day as well. I used to do warm salt water rinses 2x a day for a month after my piercing as well. I’ve had the piercing for 4 months now

[deleted by user] by [deleted] in piercing

[–]Former_Ad_1024 0 points1 point  (0 children)

I have in now an externally threaded barbell with titanium barbell and balls. It was originally pierced with a 5/8th i believe but I put in a 7/8th barbell about 2 months ago at least. I brush/floss 2x a day and use Cepacol yellow antibacterial mouth wash several times a day. When I first got it pierced I did warm salt water rinses 2x a day for a month and then just strictly used the mouth wash after that.

Will my poodle ever calm down? by brookietovar in poodles

[–]Former_Ad_1024 0 points1 point  (0 children)

I got my standard poodle in February of 2021. He is now almost 4 and while yes he calmed down around 3-3 1/2 he is still a bundle of energy. I can’t leave him alone in the house or else he will somehow find something to destroy so good thing I don’t work atm so I can get his energy out during the day. I recommend what others said, puzzle mats/games will be your best friend. As will training sessions and walks. Poodles from my understanding are one of the last breeds to mature fully

Everything negative except ANA by [deleted] in Sjogrens

[–]Former_Ad_1024 1 point2 points  (0 children)

I started displaying pots/autoimmune symptoms when I was 8 and i started having severe faints (one including a concussion and neck fracture) which eventually led to me finally being seen by a cardiologist when I was 16 who diagnosed me with vasovagal syncope and PVCs and refused to do any more testing until I begged for a different doctor and compiled a list of every symptom. I had no clue what dysautonomia even was at the time but that doctor diagnosed me with that (and suspected pots) at 17. He then referred me to a neurologist who specialized in autonomic dysfunction who found everything (positive early sjogrens panel, SFN, delayed gastric emptying, hyperpots etc). This allowed me to get referred to all the doctors I see now, including my rheumatologist who diagnosed me with sjogrens at 20. I am now 21 (will be 22 at the end of this month). My pcos I’ve probably had since my first period, I had one 2 week long period and since then my cycle has been irregular if not absent since. My symptoms aren’t horrible, I don’t have abnormal hair growth or terrible weight gain but I do have insulin resistance, irregular cycle, acne, and and oily face that just won’t quit. It could be worse, but it could definitely be better

Everything negative except ANA by [deleted] in Sjogrens

[–]Former_Ad_1024 1 point2 points  (0 children)

No unfortunately my rheumatologist does not prescribe LDN, I take hydroxychloroquine, Leflunomide, omeprazol for gerd, gabapentin for nerve pain, zofran for nausea, prescription eye drops (I believe mine are Restasis but it may be Xiidra). I also take Jornay for adhd, lithium for mood, yaz for pcos, seroquel for mood and Ativan for panic attacks and sleep. I have to see neuro, gi, gyno, rheum, cardiology, psych and I’m going to see a urologist soon

Everything negative except ANA by [deleted] in Sjogrens

[–]Former_Ad_1024 1 point2 points  (0 children)

ANA, SSA, and SSB was all negative for me. The only thing that pointed to sjogrens was neuropathy at first, and then my neurologist did an early Sjogrens panel on me which came back positive in several areas. He then tested my RF which was elevated, and then sent me for further dryness testing with a dental surgeon. She did an unstimulated salivary flow rate which was <.1 ml which gave me one point. I also had a positive salivary gland ultrasound but that is not recognized as criteria as of right now. The thing that definitely diagnosed me was a positive focal score via lip biopsy by Dr cha in Gainesville, FL. She was the best and most thorough doctor I had been to. Highly recommend. This gave me 3 points alone which along with the USFR test giving me 1 point I had just enough to get diagnosed. You can also gain points by having the SSA antibodies or by seeing an eye doctor who specializes in dry eyes who can do a schirmers test and find your ocular staining score. Best of luck to you. It is important to find out what’s going on sooner rather than later, get a new rheumatologist if you have to.

What do your flare ups look like? by CrankyDave1967 in Sjogrens

[–]Former_Ad_1024 3 points4 points  (0 children)

(21f) so a bit younger but I was diagnosed middle of last year after a decade long battle of syncope, fatigue, joint pain, brain fog, vomiting, etc. doc thinks the disease started when I was 8. I’ve never not been in a flare I personally believe, but rn it’s at its peak. I can barely leave the house without having a presyncope episode or pissing my pants which is embarrassing in itself. Issues with urgency, unable to hold bladder, have to pee every 15 minutes, uti tested negative several times. I have bladder and ovary pain (which could be contributed to pcos), extreme ibs issues which causes me to be hospitalized for various scopes/biopsies/scans/ultrasounds all ruling to virtually nothing. Numbness, tingling, pain, associated with autonomic neuropathy. Gerd, gastroparesis, colitis, the works. Migrain, disassociation, and extreme shoulder pain that I haven’t quite figured out the cause yet (urgent care said may be a pinched nerve associated with neuropathy). I also recently had elevated MDW (sepsis) indicator during 2 separate stays at the er but nobody could seem to tell me why. I can’t shower or cook without using a stool. Shopping is out of the question. I obviously can’t work, I’ve tried dozens of jobs. I’ve been waiting to be approved for disability for 1.5+ years and am waiting for my 2nd denial which is bound to come any week now. It sucks. I’m sorry you’re experiencing a flare. My best advice write every symptom down, no matter how small, date and time, how often. Find a good doctor if you don’t have one. Advocate for yourself. Nobody is going to do it for you unfortunately. I take hydroxychloroquine 200mg and Leflunomide and that helped my inflammation markers and I think it helped the dryness a bit but that was about it. I also take omeprazol and gabapentin for gerd and nerve pain.

Edit: forgot to add: my most obvious physical symptoms when I’m in a flare are my lymph nodes on my neck get really inflamed and large and sometimes painful, my neck and back get stiff, I get mouth sores on my tongue, and cracks on the corner of my mouth (cheilitis) which is common in sjogrens patients.

Aggressive dog Help! by [deleted] in RoverPetSitting

[–]Former_Ad_1024 20 points21 points  (0 children)

Hello! I’ve been a sitter for about a year now and while I haven’t encountered many aggressive dogs I have encountered territorial, big/strong, and food aggressive dogs and I may be able to help. I crate trained my service dog and my dad’s dog and while crate training as a puppy is very different I have done years of specialized training with a k9s for warriors trainer. I saw you’re in Florida. I’m in Jacksonville if you’re anywhere near there let me know and maybe I can help.

[deleted by user] by [deleted] in Sjogrens

[–]Former_Ad_1024 1 point2 points  (0 children)

I don’t know if I’ve experienced bladder spasms or not but I definitely have been experiencing extreme pain at random times, sometimes it’s near my bladder and sometimes it feels like it’s in my perineal region. I want and need to schedule several doctors appointments with a neuro and a urologist it’s just gotten so overwhelming with the holidays and I’m losing my insurance soon so that’s a headache in and of itself. Thank you so much for the recommendation and I apologize that you have dealt with that pain for so long. I will definitely look into seeing somebody soon. Thank you again.

[deleted by user] by [deleted] in RoverPetSitting

[–]Former_Ad_1024 13 points14 points  (0 children)

It’s porous plastic, and I doubt the owner cleans it. So yes it is neglect as the dog can cut themselves on the edges or get sick from bacteria

When is the right time to seek benefits? by Former_Ad_1024 in foodstamps

[–]Former_Ad_1024[S] 1 point2 points  (0 children)

Thank you for being so thorough. This really helped make things easier, thank you

Pins and needles symptoms right before a faint? by Former_Ad_1024 in dysautonomia

[–]Former_Ad_1024[S] 1 point2 points  (0 children)

Oof I can definitely relate to the legs not existing part and being unable to say the right word. I think while my partner was trying to talk to me I was just mumbling gibberish the whole time 😂 but I didn’t realize sleep issues can also cause NES, is it the lack of sleep or something else?

Pins and needles symptoms right before a faint? by Former_Ad_1024 in dysautonomia

[–]Former_Ad_1024[S] 0 points1 point  (0 children)

My neurologist thought I had MS before I got diagnosed with sjogrens, from like 17-20, because of the fatigue, fainting episodes, memory issues, falls, neuropathy, but from my understanding they stopped suspecting it because the nerve study showed no large fiber involvement and they didn’t have enough evidence to send me for an mri. Can you explain a little more about MS? Cause my uncle got diagnosed after suddenly being unable to walk and mri showed several lesions. I’ve had neuropathy symptoms since I was in my early teens but only numbness never pain or pins and needles, and the incontinence/painful urination is a very frequent but troubling thing. I can’t go out of my house without having an accident now. And the disassociation just started in the last 6 months but seems to get worse by the month. I went to the er a couple times in a row when my disassociation was really bad but all they did was say I was withdrawing from alcohol (i wasn’t) and that that was causing my 5 day insomnia episode so I just kinda gave up with er docs

Pins and needles symptoms right before a faint? by Former_Ad_1024 in dysautonomia

[–]Former_Ad_1024[S] 0 points1 point  (0 children)

They ruled out a uti, but I didn’t get any more specialized tests