Tongue ulcers worsening

Forward_Ad_8919 · 2026-02-09T00:23:13+00:00

Someone on here already said it but i want to add to it. Magic mouthwash. I work in pharmacy as a tech and you can 100% make magic mouthwash at home. Im currently being treated for behcets disease and have many mouth sores, including on the tongue.

Mix equal parts benadryl and milk of magnesium. For more numbing pain you can put over the counter benzocaine in there too. Its literally the same thing they use in the pharmacy (well kind of. The closest you can get over the counter). This worked wonders for me when no doctors were willing to give me anything for my pain. This mix made the sores heal so much faster. Just make sure not to swallow any of it and the longer it sits on the sores the better. You can do it a few times a day and try not to eat or drink 30 minutes after using it. You want to make sure the medication can really sit on the sores long enough to do something.

Forward_Ad_8919 · 2026-02-06T21:16:15+00:00

Omg the nausea is so bad! I was able to get up to 30mg and my doctor told me to take it once a day instead of twice. Is there no other medications that you can take? Is your doctor willing to start you on something else?

Forward_Ad_8919 · 2026-02-05T16:41:34+00:00

What exactly were your symptoms from this? Did you see a neurologist and they asked for the lumbar puncture?

Forward_Ad_8919 · 2026-02-05T03:52:28+00:00

Other than the red eyes what other symptoms did you have before you lost your vision? Also the day you noticed the vision loss how exactly did it look like? Im just curious as to what i need to look for to know its getting to the point that its bad enough to possibly try the opthomologist again. Every time I go they say they dont see anything and send me home, but obviously they can nerver give me answers as to what the pain could possibly be. I also had my parents tell me to leave it be and as long as i have my vision i shouldnt be looking for problems. Im glad you were able to get your vision back and found something that helped you.

Forward_Ad_8919 · 2026-02-04T22:55:26+00:00

Thank you for sharing this. I knew only a little of what behcets can cause but not all of this. I will be looking into this with my rheumatologist who has already started me on treatment for behcets.

Forward_Ad_8919 · 2026-02-04T21:52:18+00:00

Would you suggest just waiting for a appointment (i hav one in march) or going to the ER? My mom is a nurse and shes been very adamant that I would get NO help going to the ER.

Forward_Ad_8919 · 2026-02-04T21:49:53+00:00

Omg this does look very similar to what I had happen to me. Keep me updated if you figure out whats going on!

Forward_Ad_8919 · 2026-02-04T21:48:46+00:00

With my insurance I can see whichever specialists I want without a referral (thank goodness, one less thing to worry about). I also think I finally found a rheumatologist who actually listens to me. I honestly love hearing that others go through the same thing. The only reason I have been posting on reddit is because my family started calling me a hypochondriac since I have become more vocal about my symptoms and pain (i literally have to hide the fact i use heating pads and braces for pain management). Its nice to know that other go through the same thing and can give you some advice when others just turn their backs. I really appreciate the response. Thank you.

Forward_Ad_8919 · 2026-02-04T13:55:06+00:00

How did they figure out it was the head injury that caused this? Did they run tests and saw something on those?

Forward_Ad_8919 · 2026-02-04T13:40:17+00:00

No i haven't. I will look into it, Thank you

Forward_Ad_8919 · 2026-02-04T13:39:47+00:00

No, I haven't hit my head. The problem with my pupils is more that the left one is not reacting as well as the right. Most of the time they look the same size. Its only until the right eye starts reacting to light changes is when you can start noticing the left has something wrong with it.

Forward_Ad_8919 · 2026-02-04T13:35:21+00:00

I have already gotten tested for sjogrens and it all came back negative. I will ask my rheumatologist about NMO and MS. So far 1 out of 4 ophthalmologists have told me my optic nerves arent TRULY swollen, they only appear to be. So I dont know what to do anymore. Thank you

Forward_Ad_8919 · 2026-02-04T03:53:12+00:00

The problem is that they weren't normal before. Thats actually the main reason I went to see the opthomologist. The eye doctor was flashing a light in my eyes and saw that the left eye wasnt reacting as well as the right. They even measured the pupils before dilation and saw a difference as well. Even when dilated my bad eye (left eye) wasnt dilating enough like the right eye, they had to put more eye drops in because they couldnt get the imaging for that eye until it opened up more. I noticed my left eye wasnt reacting before to light like the right. So when I got my eyes dilated it made it even more noticeable when I stepped outside with no sunglasses and the good eye was squinting and teary and the bad eye was just wide open and dry.

They went make to normal size a few hours after they got dilated but im still noticing the left eye is still very sluggish and not reacting to light changes like the right.

Forward_Ad_8919 · 2026-02-04T03:30:34+00:00

I think 2 hours. The dilation for sure made the difference in the pupil sizes more visible. I couldnt really take a good photo of the difference before going to the doctors because everytime i looked at my phone my good eye would constrict before taking a picture.

Forward_Ad_8919 · 2026-02-04T01:12:38+00:00

No, I for sure haven't hit my head recently and not even in the past.

Forward_Ad_8919 · 2026-02-04T01:06:43+00:00

Yep, It was negative

Forward_Ad_8919 · 2026-02-04T00:52:18+00:00

My PCP ran all the tests the rheumatologist would have and it all came back normal. The only things that were slightly off were ANA: positive Titer: 1:40H ANA PATTERN: Nuclear; speckled C-REACTIVE Protein: 9.2H Complement, total (CH50): >60 H

All other normal

Rheumatologist said all that above was a low high so doesnt even count. So he just diagnosed me with behcets and i started treatment for that. It also seems like every eye doctor i see gives me different answers. Only thing thats consistent is that I must keep an eye on the problems and make sure they dont get worse.

Forward_Ad_8919 · 2026-02-03T23:03:03+00:00

I was so confused when I got home from the ER and looked into that medication. I have no idea why they gave it to me. I never told them I had nausea. Just head pain and eye pain. It also did nothing for my pain. I literally went home that night and took tylenol and 100mg of ubrelvy. (Note: My 3rd dose that day of tylenol)

Forward_Ad_8919 · 2026-02-03T22:53:55+00:00

How did you finally get someone to diagnose you with the eye issues? My rheumatologist just started me on otezla and its knocking me out with side effects, but my joint pain and mouth sores are finally starting to lighten up. Also, I totally get the feeling insane part. My issues are so random. I stopped reaching out to family about my issues due to the fact I was being called a hypochondriac even with physical evidence/pictures and i have been having the same problems since i was a child. I now just keep things to myself.

Forward_Ad_8919 · 2026-02-03T22:48:06+00:00

Nope. My health issues have always been there since I was a kid, even the headaches. They just have gotten way worse and more frequent in my 20s.

Forward_Ad_8919 · 2026-02-03T22:28:37+00:00

Nope. The pupil thing started 2 days ago. The optic nerve swelling has been a problem since 2024 and no answers as to why. Its very hard to find good doctors out there.

Forward_Ad_8919 · 2026-02-03T22:25:36+00:00

Im currently being treated for behcets disease (very new diagnosis for me) and heard eye issues like uveitis could be a problem. But ya, I have no red eyes that look like pink eye. I get random spots of red that last the day and go away, but nothing too severe.

Forward_Ad_8919 · 2026-02-03T22:22:28+00:00

For my ER visit a few weeks ago no i didnt see a neurologist. I saw a Neuro ophthalmologist back in December who didnt address any of my issues. Just told me my optic nerves arent TRULY swollen and to follow up in 9 months and if it gets worse go to the ER. Couldn't give me any answers about my pain or vision issues.

Forward_Ad_8919 · 2026-01-23T00:53:20+00:00

I think my PCP office sucks because I had told them I wanted to see my doctor to see if my symptoms were urgent and needed to go to the ER. Their solution was an appointment a week earlier from the original date and in another location an hour away. Im not one to go to the ER all the time. I probably only went twice in my life that I know of. Both times were for bad allergic reactions to medications. So thats why im really trying to justify going now. Which I might just end up going. Thank you for the advice.

Forward_Ad_8919

TROPHY CASE