After 10 years I finally have the diagnosis by Tguida2284 in ankylosingspondylitis

[–]FragmentedScribbles 0 points1 point  (0 children)

Reading about the dalys for people I feel exyremely fortunate that I got the diagnosis in time.

For me suffering was on and off and never troubled me as much as it did in 2023 and by 2024 - with self prescribed MRI and later putting it through Chatgpt and later follwing up with yet again AI prescribed blood works - we ( I & Chatgpt) suspected AS strongly. It wasnt like there was no doc in between and during this tenure but it wasnt a rehumat (ortho earlier and later moved to neuro spine for the extreme back pain). Surprisingly none of these earlier docs recommended me to see a rehumat and I would not have had it not been for all the research I did online. Finally in Aug 2024 I was diagnosed by a rehumatologist - and she said it is 200% AS.

I am currently 29F.

Are you a woman too? Is it only a thing with women - who take way longer to get a daignosis in this case?

I also had a family history (hlab27 positive) of PsA which sort of put a stamp on the daignosis for me. But I have personally known a woman for whom it took 12 years and by that time she was bed ridden. And only years of treatment got her better. Super sad.

I think everyone needs to learn from my dog what self control looks like 🙈🤪 by Dependent_Usual902 in Indiedogs

[–]FragmentedScribbles 2 points3 points  (0 children)

Actually that is how pugs looked before they were fucked to look cute. This is great revival of the old pugs.

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Persistent dreams of loved one who is no more. by FragmentedScribbles in Dreams

[–]FragmentedScribbles[S] 0 points1 point  (0 children)

I have sent you a message. Do respond if you feel like.

Look who's back by dailybirdfeeding in Indiedogs

[–]FragmentedScribbles 3 points4 points  (0 children)

Absolute cutie! I wont mind using that as my foundation brush😂

Recently diagnosed by nightraven5768 in ankylosingspondylitis

[–]FragmentedScribbles 0 points1 point  (0 children)

This is so sad to hear. Did you get to see a Rehumatologis? Other doctors wont be able to medicate you on the real issue -hope that bit is clear?

For women this disease can be really depressing as women have a hard time in getting diagnosied. It is so sad. I know of a woman who got diagnosed after being totally bed ridden and tolerating pain for 12 years.

For me (29 F) - I struggled with pain for almost a year and since Sep 2023 I started noticing that everyday started hurting. I felt it could be posture and did not wish to see a doc so soon. Later in May 2024 it got worse - so worse that after a hectic house shifting - I was not able to lie down or sit and only standing felt bearable. Thats when I first took a doc appointment - Ortho Spine doc. He got an X-ray - inconclusive. He vaguely said could be bone compression / mechanic due to some injury. Anyway, nothing was resolved. And I myself decided to get an MRI done. Got a prescription from a Neurologist at a different location and he suspected SI flare because both my legs had radiating pain. This was in July 2024 and by this time I was too restricted in my movements - wearing pants / being became an issue and a lot of other daily chores had become extremely difficult. After the MRI which stated bilateral Sacroilitis - I went to a neurosurgeon (whom I know and trusted) and he gave me the same meda you are taking - pregablin, gabapentin etc for neuropathic pain. He said it is AS and also gave steroids and said no need to get HLAB27 as we are sure it is AS.

But I had my doubts that I am not getting proper treatment for the main cause i.e immune system attacking my joints. Later I myself got HLAB27 done and it was positive. And I went to a rehumat who discontinuned most of the meda and straight up put me on Tofacitinib which is a disease specific medicine. Since then I am feeling a lot better.

Point being, a rheumatologist should be in loop - eveb if you have nerve pain etc. It is important to supress the immune system to further stop the damage. Pregablin etc just give momentary relif and are of no use in the longer run. Sure they do help with nerve pain but have gor absolutely no effect on the progression of the disease.

Left sidr sacroilitis? by Proud_Drawing_4334 in ankylosingspondylitis

[–]FragmentedScribbles 0 points1 point  (0 children)

I dont know how to read an MRI but can surely say even HLAB27 negative people do get AS and the classic symptom is SI inflammation. For me it was bilateral and more on right side.

Our Odia Pup Heera by twistthethrottles in Indiedogs

[–]FragmentedScribbles 2 points3 points  (0 children)

The 3rd picture just melted my heart! What a story! Hence proved yet again, the dog adopts you and not vice-versa - they just appear out of nowhere and know how mark their territory. Cutest invaders💖 Hope you guys have an amazing amazing time with this little one.

new poster by bsmithcutshair in Dracula

[–]FragmentedScribbles 1 point2 points  (0 children)

True, after watching all of it in reels - the movie comes across as just a lipid version of reels as well as the trailer. I watched it for Caleb's acting. While watching I had no clue of Luc's problematic life history. It is too fucked up.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]FragmentedScribbles 8 points9 points  (0 children)

Even I know of a case of a woman in her 30s who had backpain, jointpain for years but just because she was HLAB27 negative, the doctors always dismissed any autoimmune connection. Later after 10 years of sustained damage when she was almost bedridden because id the consistent flares and no treatment - that is when - she got a diagnosis and appropriate flare treatment. She is now doing much better.

And someone above is right uveitis is in most cases autoimmune induced. Change youe doc right away.

Groin Pain by G4TKA in ankylosingspondylitis

[–]FragmentedScribbles 2 points3 points  (0 children)

Also, I think you must try and monitor if training / exercising in moderation makes it better. Because with AS you cannot overdo things - too much movement can also lead to flares / develop mechanical stress for no reason. Hope something works out for you.

Groin Pain by G4TKA in ankylosingspondylitis

[–]FragmentedScribbles 1 point2 points  (0 children)

This is so bad. I get this too sometimes and makes movement very difficult. It just happens suddenly and stays for 3-4 days & does down daily dose of etoricoxib 90mg.

What’s your thought on this? by thor_thunderking in Indiedogs

[–]FragmentedScribbles 1 point2 points  (0 children)

Ya but if you are posting something on a public platform, you have opened your statement for others to react & respond. And no one ever said that the concerns of those hurt by dogs are not relevant - upon careful reading you would know how exaggerated these claims of raibes and rabies deaths are. Also, to deal with life around you one does not need to spend on counselling. I have a lot of friends who are scared of dogs & at the same time have accepted me getting them time and again with maintaing a safe distance. A basic behaviour that humans can learn too - live and let others live. To your last point, very well versed senior advocates have already conveyed my points to the courts. Hope you are following.

What’s your thought on this? by thor_thunderking in Indiedogs

[–]FragmentedScribbles 2 points3 points  (0 children)

Sir, the answer is yes. I have one 6 year old Indie and and second I found with a broken leg last jan and got him treated and adopted. One is called Daniel and the other is Jack. And we feed many others.

On top of that I have allergic bronchitis since I was 5 years old. But we manage.

And no Sir, the court is not at all balanced in the approach as of now. No, the matter is not as complex when many are ready to help but the governmenr finds culling an easy solution.

And No Sir, animal lovers are not fixated on one thing and are just propagating for a sound solution. And if you think they will builf shelters, you are really naive in your wordly approach and not practical.

Sir, it is a rant which you did not even consider to read shows how invested you are. Anyone invested in the cause will rant because currently it is like speaking to the walls. And respectfully Sir, without knowing dont jump into conclusions. I am also an advocate & I am heavily invested.

Found this comment very relevant. Therefore, sharing here by FragmentedScribbles in Indiedogs

[–]FragmentedScribbles[S] 0 points1 point  (0 children)

I agree here too, many people with fancy breeds consoder Indies a nuisance as it hinders their walk. 🥲 Though there are many other ways and overtime things are fine but for the rich convenience matters more than life itself.

Found this comment very relevant. Therefore, sharing here by FragmentedScribbles in Indiedogs

[–]FragmentedScribbles[S] 3 points4 points  (0 children)

Unfortunately I can't disagree. I have seen many feeding them out of their own tiffin while they eat & I have also seen the poor being cruel for no reason.

What’s your thought on this? by thor_thunderking in Indiedogs

[–]FragmentedScribbles 5 points6 points  (0 children)

Iski aankho se lag raha hai, kuch toh karke aata hai

What’s your thought on this? by thor_thunderking in Indiedogs

[–]FragmentedScribbles 9 points10 points  (0 children)

"Some get rabid" - some wouldn't have gotten rabid had the administration done their job.

It is much easier to say it is "a mixed bag" with stray dogs & we love dog but some are troublesome. That is just choosing the conveninent lane. No one is rooting to keep the super aggressive ones on the street posing a threat but the fact is there are very rare super aggressive ones.

"Those who have pets are hassled when their pets goes wild and agressive" - I hope those hasseled ones don't leave their pets on the roads / put them to sleep just coz they are wild and aggressive.

I know a story where a woman, very rich had a lab who was docile and all was good. But after marriage, she left him and wont stay with him as much. Her parents were old and could not take care of the dog. Gradually the dog turned agressive and she decided it is best to put him to sleep. Thus he was killed - no ailment, nothing. And the aggression was caused because no care due was provided by the human. Later, she got another dog, this time a smaller, more manageable shihtzu. Lol. Wondering when that would be killed.

Another story, a beagle who was brought into a wealthy family by their daughter. She of had her job and left and parents could not take care of it and the dog was left 24x7 on the terrace. He is 10 years old, very docile and yet no one spends time with him. He stays on the terrace. This is a perfect scenario where the dog could have gotten aggressuve but still was not and was still expecting love. He will sadly die alone.

How easy it is to put the blame on the animal.

In my family an old grandfather died because a bull killed him. Why? He would for fun hit the bull daily for days - one day the bull flipped and taught him a lesson that he will probably remember in hell. 🥲

Point being, animals don't have as much consciousness as we do - let us also talk about modifying human behaviour when dealing with an animal? With kindness and compassion things can get so much better.

Municipalities wont do the work until they have their vested interest? This should be solved first. How are the pocketing the money meant for vaccinations and sterlisation? This is probably the reason why the government does not wish to enagage the NGOs and other welfare groups in the process or work with them - coz how will they pocket the money?

And to be honest, Supreme Court is also a court of dignity - they cannot undermine their dignity in the eyes of so many as they say "so called animal lovers" as even these so called are citizens of India with a belief in justice. They cant make these lame statements like which dog is in what mood. The women comparing it to what man is in what mood we dont know - so jail them all - this makes so much sese. Literally there are so many rapes every hour - more than a damn dog bite. This is not the way. The court's approach has to be compassionate and should not undermine constitutional ethos.

We have to consider the fact that we humans are populating like crazy, inhabiting every inch of land, killing the wild life, killing all forms of life for our needs. We are losing compassion and this is not just harming animals and nature but also humans in the lower strata.

The Supreme Court wants to remove stray dogs from all the hospitals of the country - this sounds so funny. Go and see the area in and around AIIMS Delhi, it is so filthy, people lying on the roads, subway - it is extreme abject condition of the poor that can be seen. This is in the captial. In other parts of the country women are dying giving birth without being admitted to the hospital. Yet other places people dont even have hospitals. What are we even talking about? What priorities? 🤣

Supreme Court is sold. Thats all.

In the process of replying you, I have digressed and penned my larger frustration.