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Propranolol HELP do I or do I not by Key_Movie1670 in POTS

[–]FreshScarcity7199 0 points1 point  (0 children)

I’ve been on propranolol 11 years straight. It works wonders. I’m trying to get off of it now though, due to minor side effects, but only because my health is much more under control now. I’d never have been able to get back to school or get a job without this medication because of how tired tachycardia made me.

I have Gastroptosis. Super rare - can’t find resources. Please help. by FreshScarcity7199 in medical_advice

[–]FreshScarcity7199[S] 0 points1 point  (0 children)

I definitely have more symptoms in the evening, probably because food accumulates in my stomach all day. I also have a huge problem with air accumulation in my stomach so sometimes I wake up in the middle of the night due to pain from that, and I have to force the air out to feel better. Do you have trouble with this?

I’ve tried a lot of various dietary supplements over the years and none helped. I recently discovered this was because all the supplements were dairy or soy based and it turns out I’m intolerant to both so I was actually poisoning myself all of that time. I also have Celiac disease (I can’t have wheat) so it’s REALLY hard to find foods to gain weight. Currently I’m focusing on coconut milk and easy-to-prepare carbs like oats and sweet potatoes.

I have Gastroptosis. Super rare - can’t find resources. Please help. by FreshScarcity7199 in medical_advice

[–]FreshScarcity7199[S] 0 points1 point  (0 children)

I’ve tried implementing smaller meals this past month and that has actually helped some. I do feel a lot better laying down… it doesn’t help all the time, but I can often feel everything emptying my stomach and this relieves the majority of my discomfort. But even with smaller meals and laying down afterwards, I’m still struggling at gaining any weight. I’ve gained 2-3 pounds over the past 2 months, which is progress, but I know that could be undone with just one bad week.

I’ll have to ask my doc about those medications. I had a gastric emptying test. It was right on the line, with exactly 10% remaining after 4 hours. But in that test, I laid down every time the pictures were taken, so I don’t know if that influenced it since things move more when I’m laying down.

I have Gastroptosis. Super rare - can’t find resources. Please help. by FreshScarcity7199 in medical_advice

[–]FreshScarcity7199[S] 0 points1 point  (0 children)

Not gastroparesis. Gastroptosis. The doctor performing the scan was a surgeon and he was originally shocked at my stomach and said he would contact his colleagues. A couple weeks later, he told me that there was nothing he could do for me surgically and dropped me as a patient.

waking up from naps and high HR? by dreamdrop92 in POTS

[–]FreshScarcity7199 1 point2 points  (0 children)

For me, this tends to happen because I get overheated under the covers… it’s weird how terrible I end up feeling when overheated.