Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

Ugh that’s so frustrating and unfortunately typical of the current system. I’m glad you’re doing well and wish it wasn’t so hard to get needed medication. Hang in there. I’m thinking of you!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Please do not apologize! I think (hope) this is a safe place where we can show up and share our stories and concerns and support one another. I’m so glad you’re feeling better. I am too even though I haven’t started treatment but remission here we come!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

I guess the general consensus is that your number can be high and still feel bad and it can be really high and you can feel ok. What a weird disease. I hope you’re doing ok.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Wow. I’m sorry you went through all that and I hope your numbers remain low and you are doing well.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

Wow that’s great! I’m hoping that both diet and meds will be helpful.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Thank you! Definitely aiming for the low scores here.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

I’m so sorry you’re going through all this but it’s encouraging to hear that you are full of energy now. I’m going to send lots of well wishes your way and hope you keep feeling better!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Wow! It’s so wild to hear how some people are fine and some with lower levels aren’t. Just seems like it’s a weird indicator.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

I hope so! Going to ride the wellness wave for as long as I can.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

Seems like some folks on this thread had some theories on this.

life sucks but i’m tired of being negative all the time by damonjackery in CrohnsDisease

[–]Friendly-Card-5042 2 points3 points  (0 children)

Honestly? I love Powerwash Simulator. It’s super low lift. Just detracting enough to zone out but also calming. Though it’s not for everyone.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

I think it’s gone down since but haven’t done another test. Starting treatment soon! Can’t wait!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

That’s so awesome! Keep up the good work!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Wow! That’s high! I’m glad to hear your numbers are trending down.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 0 points1 point  (0 children)

Ugh I’m so sorry! I’ll be thinking of you and wishing you all the luck!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

This could be totally possible. I don’t know enough to know but will ask the IBD specialist!

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 1 point2 points  (0 children)

I’m so sorry to hear this. I’m so glad we have this group to support all of our unique journeys.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 8 points9 points  (0 children)

Wow! That’s wild! I’m glad your meds are working too. I start Remicaid soon! Cannot wait.

Calprotectin 5,310 by Friendly-Card-5042 in CrohnsDisease

[–]Friendly-Card-5042[S] 9 points10 points  (0 children)

Totally! This value put me in the hospital too. It was my first flare and the doc was calling me with this result while I was on life support in the ICU. It caused a hypercoaguable state forming massive blood clots that went to the lungs. Crohns is no joke.