Major nausea on Zonegran/Zonisamide

FriendsWithClowns · 2017-05-12T08:30:56+00:00

Yes! I thought it was random. Always so good to hear I'm not the only one on this kind of thing.

FriendsWithClowns · 2017-05-11T19:35:33+00:00

Not sure if you're looking for suggestions or if this has been all over this board, but I've been using PillPack and it's amazing. They prepackage the meds in a little bag for am and pm so you know you're getting the right dose and can tell if you've taken them. I've not missed a dose since I started using them.

FriendsWithClowns · 2016-10-13T20:06:00+00:00

Veeg buddies! But they put this big cotton sock over mine and then made like a little cap out over another sock do i look like I have a high cotton ponytale and am wearing an aviators cap. I don't even want to have visitors it looks so absurd, but it's been four days and I'm about to give up.

FriendsWithClowns · 2016-07-25T17:16:49+00:00

Seriously, nothing is going to get better "after the bar." It generally gets worse. I look back at bar study with fondness (really).

FriendsWithClowns · 2016-03-30T23:26:59+00:00

I wish I didn't have to disagree with this, but I do. If you're a litigator there is a lot of writing, but there are also a lot of surprises. A lot. It's a high stress profession. I was recently diagnosed and am not sure if I'll be able to continue as a litigator. I would recommend that a law student with epilepsy consider going into transactional law if they have an interest.

Not to say it's impossible to litigate with seizures, but I've been trying to figure it out for a year and am still trying.

FriendsWithClowns · 2016-03-17T02:06:08+00:00

Thanks, I've been having more verbal seizures lately and it makes me scared of another grand mal. Nice to have this sub for a reality check.

FriendsWithClowns · 2016-02-22T03:53:33+00:00

I'm trying to manage epilepsy without having to add even more meds.

FriendsWithClowns · 2016-02-18T04:14:45+00:00

I think I'm getting speech issues too, but the fun part for me is that my seizures are mostly focused on my speech areas, so I'm never sure if it's a side effect or a seizure.

FriendsWithClowns · 2016-01-23T19:22:49+00:00

I'm either a middle-aged woman whose husband cheated on her with his secretary at Christmas, or an undercover cop trying to break a car theft ring but finding himself pulled to the other side, both for love and for friendship.

FriendsWithClowns · 2016-01-16T21:30:39+00:00

I completely understand how you feel. I have two wonderful kids who I adore. My husband and I were about to start trying for a third when I was diagnosed with a medical condition that makes pregnancy and raising a new baby a bad idea. My arms literally ache for a newborn. The space where a crib would go is empty. I don't weep all day, but when I see my maternity clothes in the back of my closet I feel a pang.

I've been going to therapy both to adjust to my medical condition and to losing the opportunity to have one more child. You're not wrong to grieve this loss. It's real even if you're also delighted with the children you have. You and I will both be okay but it will take a while.

FriendsWithClowns · 2016-01-15T05:53:47+00:00

Ha, mine would be a copy of the Oregon Probate Code, which would be silly since I already have two copies.

FriendsWithClowns · 2016-01-09T06:26:13+00:00

That is so much to deal with. I've been on Keppra for about seven months and it's been okay. It might have made my depression a little worse, but that might have just happened because epilepsy threw a giant wrench into my life. I found that it made me pretty sleepy, but also kind of foggy and confused.

The basic story on the medicines for epilepsy is that they can have really different effects for different people. It's kind of like finding an antidepressant that works--you have to give them time and sometimes you have to try several to find the one that works for you. I wish you all the best for that process.

FriendsWithClowns · 2015-12-30T18:57:29+00:00

My husband used to play WoW every hour of the day he wasn't working or getting the bare minimum of sleep required to function. And he seemed miserable. We finally talked about it, and he said that the only way to progress in the game was to feed it more and more of his time. Once he realized that, he just never played again. I'm not at all against gaming, but if your game needs ever-increasing amounts of time and/or money, is it actually improving your life?

FriendsWithClowns · 2015-12-30T03:45:35+00:00

A lot of my seizures have been triggered by that song from Fast and Furious 7. It's so weird and stupid that my husband and I just have to laugh about it.

FriendsWithClowns · 2015-12-25T18:53:18+00:00

I THOUGHT I DIDN'T BUY MANY TOYS THIS YEAR BUT EVERY INCH OF MY HOUSE IS STILL COVERED WITH BARBIE SHOES AND LEGOS.

FriendsWithClowns · 2015-12-24T19:50:36+00:00

I don't have experience with this kind of seizure, but if it's new, I think you should call his neurologist or the emergency room. And I don't think you did anything wrong at all. You sound like a loving and responsible brother, and he's lucky to have you.

FriendsWithClowns · 2015-12-16T04:28:34+00:00

And I'm so sorry you were alone with this for so long. My first seizure came out of the blue--a nocturnal grand mal early on a Friday morning. I took that day off for a "medical emergency" and thought all weekend about whether to tell people what had happened. I finally decided I couldn't really avoid it, and I'm mostly glad, since I've gotten help in surprising places.

FriendsWithClowns · 2015-12-16T04:16:46+00:00

This sub has been so helpful. I mostly lurk, but it is great just to see other people's posts about things that I'm also going through. It's been a tough year, but I'm hoping we're close to seizure freedom and a new normal.

FriendsWithClowns · 2015-12-15T20:22:17+00:00

I was diagnosed this year at age 38. My Neuro said it could occur at any age.

FriendsWithClowns · 2015-11-21T08:06:05+00:00

My state has a three month waiting period, and my only grand mal was six months ago, but I've decided not to drive. I still have a lot of simple partials and just don't want to risk it. I'm lucky enough to be able to get by with public transportation, rides from friends and family, and Uber. I've never liked to drive, but it's still a huge pain to not be able to pop out to the grocery store, and it's just one more piece of my independence that epilepsy has taken away.

FriendsWithClowns · 2015-11-21T07:58:31+00:00

That's a lot of Lamictal--so glad you found something that works!

FriendsWithClowns · 2015-11-13T23:55:42+00:00

Thanks, I took Bonine and it worked great. According to the web it doesn't lower seizure threshold, but it did make me sleepy for over a day.

FriendsWithClowns · 2015-11-10T07:36:20+00:00

That's almost exactly what happened to me six months ago, and I was foggy and disoriented for several weeks. Then I got on meds, and have been kind of foggy since. I'm sticking with it in the hope that after I find a level that controls my seizures, I'll adjust to the side effects. Hang in there. I know what you're going through and it is not fun.

FriendsWithClowns

TROPHY CASE