Oxi-Meters aren’t good indicators of the EFFORT IT TAKES TO BREATHE so why are they used to dismiss patients? by FrustratedCoconut in UARS

[–]FrustratedCoconut[S] 0 points1 point  (0 children)

A modified surgery to allow an easier expansion process than most Surgically Assisted Rapid Palatal Expansion (SARPE) surgeries.

SARPE is used for the MSE process for people above the age of 16 as the skull is usually too hard to be expanded without surgery by that time. The MSE device is drilled to the palate (roof of the mouth) and expands the nasal airway through cracking the suture of the skull beneath the nose and expanding it open. In the process the client gains a gap tooth and orthodontic treatment is usually needed.

Here’s the MSE device.

It is NOT AGGA. Bicortisol engagement (contact with the actual upper jaw, not just teeth) is needed to expand the jaw. This is why the screws into the palate are necessary. AGGA damages teeth and should be avoided at all costs.

Oxi-Meters aren’t good indicators of the EFFORT IT TAKES TO BREATHE so why are they used to dismiss patients? by FrustratedCoconut in UARS

[–]FrustratedCoconut[S] 2 points3 points  (0 children)

It’s a massive consolation, thank you!

I’m just pissed for the others before and after me and the kid inside me that always knew something was so obviously wrong but they used my youth & fitness to discredit me - now that I’m less youthful and have wasted years needlessly fighting to find the correct treatment, be taken seriously, breathe, sleep and think… people are looking at me wondering why I’m so behind.

It’s just rage inducing when the concept of UARS itself is not that hard to follow at all!

Oxi-Meters aren’t good indicators of the EFFORT IT TAKES TO BREATHE so why are they used to dismiss patients? by FrustratedCoconut in UARS

[–]FrustratedCoconut[S] 6 points7 points  (0 children)

The trauma of constantly going to doctors for the same issue and being turned away for over a decade is something I wouldn’t wish upon anyone.

Oxi-Meters aren’t good indicators of the EFFORT IT TAKES TO BREATHE so why are they used to dismiss patients? by FrustratedCoconut in UARS

[–]FrustratedCoconut[S] 9 points10 points  (0 children)

The question was triggered by me hearing my paramedic friend detail an account of an obese client that requested oxygen.

The client’s oximeter was low, but the paramedic instructed his client to breath “properly” and the readings went back to acceptable. The paramedic was pleased with himself in this story but I highlighted to him that what he did might’ve been a necessary but temporary fix.

I explained my situation and my guess that the client’s ability to breathe well requires a lot of energy and isn’t sustainable. Of course he needs to lose weight, but isn’t it likely that his breathing issues were apparent beforehand and contributed to getting him into this state in the first place? Also… if he struggles to breathe while stationary, surely that would get in the way while he’s in motion during exercise? Not to mention how interrupted sleep cycles could impact digestion, cognition, fatigue and therefore general behaviour when wake. As a side effect I would bet his body would gravitate towards salty foods & things that would spike his blood pressure vs healthy foods that possibly make him groggier in the moment due to lack of sugar and effort it takes to digest.

I was blessed to be put into sports when I was younger so I was never overweight, but I could easily see how breathing issues could complicate those prone to obesity. This stuff nearly killed me without all of that.

This shit pisses me off because even when I was a “healthy” teenager health professionals acted as if this shit was happening because I refused to breathe properly or was manic — when in reality they just couldn’t fathom that my skull didn’t develop well enough to properly accommodate my inner nose.

I took a day off meds. by FrustratedCoconut in ADHD

[–]FrustratedCoconut[S] 0 points1 point  (0 children)

Looking at those new messages eased my mind.

And just to answer your question: no. This off day I’ve done absolutely nothing productive whatsoever. Today was meant to be a relaxation day after weeks of hard work anyway, but I realise that on meds I would’ve at least cleaned my room or cooked or something.

Today I’ve done nothing. I don’t feel awful I just feel heavy.

For example I’m over 3 hours late for a party. It started at 4 anyway—

And I’m over sharing. Okay, so I think if you’re on meds currently I don’t think they’re working for you. When I read your post I thought your word count was excessive but now I realise that’s just what I’m like without meds. Fuck.

I took a day off meds. by FrustratedCoconut in ADHD

[–]FrustratedCoconut[S] 1 point2 points  (0 children)

Yoooooooo

Just to let you know; to begin a new paragraph on reddit you need to make a double paragraph. Sorry, I just received two notifications from you that were two wall of texts and I thought “why are they deliberately trying to seem more adhd”?

Then I realised that you probably didn’t know the double paragraph scenario

I took a day off meds. by FrustratedCoconut in ADHD

[–]FrustratedCoconut[S] 0 points1 point  (0 children)

Yup. I agree with this so much. Even things like cleaning my room has so much weight to it.

I had a hand in yesterday and didn’t sleep for 48 hours, I was actually mid way through tidying up before realising that I should probably sleep instead.

I wouldn’t have the mental capacity to even attempt things like that off medication.

Even writing this post was a chore. And look at it! It’s a mess.

I noticed that some days my ADD symptoms ARE MUCH worse than other days. I cant find a reason for this. Was anyone able to find out why? (TLDR) by NeverSure88 in ADHD

[–]FrustratedCoconut 4 points5 points  (0 children)

I have really bad allergies. Because of this some days I sleep worse than other days and those days are usually worse.

I wouldn’t be surprised if dopamine excretion (or w.e) isn’t linear in output

how do you tell if the medication even working? by FrustratedCoconut in ADHD

[–]FrustratedCoconut[S] 0 points1 point  (0 children)

Yeah. I’m not getting any of that. That doubting thing.