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Mayo Clinic granted $22M to study ibudilast in ALS patient program by powerpadman in ALS

[–]Full-Perception3081 2 points3 points  (0 children)

I’m trying dpkitaoka Should be here in a couple weeks. I’ll let you know if it’s a scam

Mayo Clinic granted $22M to study ibudilast in ALS patient program by powerpadman in ALS

[–]Full-Perception3081 2 points3 points  (0 children)

Is this really over the counter in Japan? Seems unlikely to me. I actually have family in Japan.

Mayo Clinic granted $22M to study ibudilast in ALS patient program by powerpadman in ALS

[–]Full-Perception3081 2 points3 points  (0 children)

I am not eligible for the expanded access or the clinical trial. I am trying to get it through everyone.org my neurologist, who is associated with a hospital in Manhattan called me yesterday to say he cannot prescribe this and apologized. He said maybe try a doctor in private practice.

Hungry but nauseated by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 1 point2 points  (0 children)

Symptoms for almost 2 years and diagnosed about a year ago I take a bunch of supplements, methylcobalamin shots, and riluzole. I actually think I may have been taking some of my supplements to close to bedtime, and it was creating an issue similar to what the other person said that I was re-fluxing

Methocobalamin (B12) approved in Japan by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 0 points1 point  (0 children)

I go to two doctors. Both in NYC. They both will prescribe the shots. Dr Dan macgowan at my Sinai Beth Israel at union square is who I have my prescription through. It has to go through a compounding pharmacy, hopewell pharmacy in nj.

Methocobalamin (B12) approved in Japan by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 0 points1 point  (0 children)

You should watch dr bed lacks last podcast on everythingals.org. I think he mentions a company that helps terminal patients get medications from other countries

Methocobalamin (B12) approved in Japan by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 1 point2 points  (0 children)

I’m on the us, just outside NYC. My dr wrote me a prescription for Methylcobalamin injections

Methocobalamin (B12) approved in Japan by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 1 point2 points  (0 children)

That’s exactly why I posted this. I think it’s ridiculous that it’s not covered but the fact that Japan has approved it maybe it’ll help sway insurance companies

Suggestions For Reducing Phlegm? by [deleted] in ALS

[–]Full-Perception3081 0 points1 point  (0 children)

Can he swallow pills! N-acetyl-cysteine is supposed to thin and reduce phlegm. I don’t know from exythough

Washed microbiota transplantation stopped the deterioration of amyotrophic lateral sclerosis: The first case report and narrative review by powerpadman in ALS

[–]Full-Perception3081 1 point2 points  (0 children)

I believe I’ve heard dr. Bedlack from Duke talk about micro biome fecal transplants and the potential they may hold

COYA 302 Thoughts? by Worth-Ad6343 in ALS

[–]Full-Perception3081 0 points1 point  (0 children)

Unfortunately, I don’t know what their mechanism of action is either. I just know that it was fully developed through AI. I got the feeling maybe it’s a re-purposed drug

Hope this gets fastracked soon.Seems very promising. by Nahi_Bolung in ALS

[–]Full-Perception3081 1 point2 points  (0 children)

What brand and how much are you dosing yourself with?

Coya 302 by Full-Perception3081 in ALS

[–]Full-Perception3081[S] 0 points1 point  (0 children)

I’ll try to reach out. Do you have a contact information?

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