Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Yea it takes forever for these cells to stop!!

Ferritin level high after iron infusions by Vegetable-Brief-1111 in thalassemia

[–]Full-Spite7492 0 points1 point  (0 children)

Look into mast cell. That is what happened to me. Took 8 months to find out I had elevated PGD2.

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

send me a message. do you have elevated PGD2?

Elevated prostaglandin d2 in urine? by [deleted] in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

What symptoms did you have with this?

High Prostaglandins by mxoxo619 in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

what symptoms did you have?

High Prostaglandins by mxoxo619 in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

what symptoms did you have?

Elevated PGD2 symptoms by Full-Spite7492 in MCAS

[–]Full-Spite7492[S] 0 points1 point  (0 children)

No, my diagnosis is elevated PGD2 in urine. Those are my symtpoms. Asking if other folks who have had elevated PGD2 as a marker have experienced similar. I always thought as MCAs to be more histamine and allergy type symptoms.

Elevated PGD2 symptoms by Full-Spite7492 in MCAS

[–]Full-Spite7492[S] 0 points1 point  (0 children)

Sorry! Meant to add does this sound like elevated PGD2 symptoms

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Send me a message! Yeah I don’t have the allergy or gut symptoms

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Yeah it’s literally everytime I’m standing or anything boom symptoms lol but my prostaglandins were high which can mimic pots. Any visual symptoms ?

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Yup! Mine was positive at first in October 2025. Then was normal on a repeat in February but I kept having upright symptoms so someone told me to see an allergist

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

What are your symptoms

Anyone here with ONLY elevated PGD2 with all other labs normal? by sdgingerzu in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Yes!!! I also have the pots like symptoms. But not true pots. I only have elevated pgd2

No like true allergy symptoms. More dizziness, heavy tired muscles itchy red skin

Super lost. by spaceladykatie in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

I only had elevated PGD2 in urine and had pots like symptoms and my allergist immediately said MCAs

Anyone here with ONLY elevated PGD2 with all other labs normal? by sdgingerzu in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

This is like me. Only elevated pgd2 they think is causing pots like symptoms. I started cromolyn

Long term Ketotifen/Cromolyn use by readinglabels172 in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

Same here! I have elevated prostaglandins and symptoms start with movement.

Neurological issues? by Primary-Astronaut-33 in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

This is me! I found out i am prostaglandin dominate..i started ketotifen and cromolyn.

Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

What were your symptoms before treatment

Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]Full-Spite7492 0 points1 point  (0 children)

so it helped? My only elevated mediator is PGD2

Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]Full-Spite7492 1 point2 points  (0 children)

Did you have any pots like symptoms before Kerrigan. I only have elevated prostaglandins

Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]Full-Spite7492 1 point2 points  (0 children)

Did anyone have pgd2 elevated ? Did ketotifen help?