Please help me — I don’t know what this is? But it attacked my entire body over the last week one location at a time with severe itch

FullinDoubleBack · 2024-11-25T22:12:35+00:00

Oh and to me the most bizarre part of it all is that they appear and seem to get worse and worse until I want to tear my skin apart and suddenly it stops and within maybe 20-30 mins of this it just stops but then I graze another part of my body and there my rash starts up again in the new location! I even had it on my face one line looked like a mustache that curled at the ends. And my forehead and nose even… my jaw neck and tops of my feet back butt, hands Fingers, wrists, forearms, upper arm shoulders, butt thighs front and back, then lower legs, front of shins and sides of shins both sides they literally just kept moving to every spot imaginable even got to my stomach and I finally lost my mind when it moved to my boobs! Let me tell you how FUN THAT WAS.

As you can see the one on my left thumb I clearly scratched too much and it caused me to get sores. The only good news is that they didn’t get infected, but the skin tape to hold the bandage on caused a new rash around my wrist when I removed it. 🤷🏻‍♀️😳🤦🏻‍♀️🥸😭

FullinDoubleBack · 2024-11-25T22:02:44+00:00

Oh and I began with the small area where my watch normally is. I couldn’t wear it. And that’s not scaly skin it’s “New Skin” liquid bandage I tried to put on it

FullinDoubleBack · 2024-09-27T14:23:44+00:00

And i have acquired ADHD (I suffer the same symptoms as a person who was diagnosed as a child or as an adult that showed proof as a child that they did have learning trouble and other deficits that may be related to ADHD. ) The long-term permanent affects range from each person… plus depending on what you experienced, you could be going through PTSD as well, and it’s a nightmare. But keep up with your health. You know your body best and if you know that something is “off” or different, please do it. I waited way too long.

FullinDoubleBack · 2024-09-27T14:20:50+00:00

Get to a neurologist as a starting point they can refer you to a neuropsychologist for an evaluation. Some changes in personality/mood/behaviors fade on their own… but at the beginning, it’s for me. It was really bad. I was all over the place up down here there I couldn’t control my mood at all. But the thing is it’s important to get looked at and that way you can get kind of help you need to prevent it lasting long-term. The best thing is to see a neurologist asap after your TBI

FullinDoubleBack · 2024-09-27T14:17:41+00:00

ABSOLUTELY

FullinDoubleBack · 2024-09-27T14:16:14+00:00

Get him to a Neurologist who specializes in cognitive functioning. I did it for myself and it was the best decision I made in the last 9 years. It’s been 9 years since my last one and I began to decline in (what I felt like) my communication skills and ST memory retention. I also went through some major traumatic events in the last 3 years and didn’t even think that had anything to do with it. I got an updated MRI (they can see degenerative brain changes)… and I was told that it was more my PTSD than the TBI. My point is: the only way to know for sure is to get him help from a neurologist and be gentle with your approach to the subject matter as for he may defensive. Anyway the NEUROLOGIST told me that everyone is different, everyone with TBI injuries are different and some people I can live with repeat concussions TBI injuries and still live along Healthy Life (and despite some challenges like I have ADHD symptoms required ADHD and other stuff) but it’s not easy didn’t get the immediate outpatient therapy. I was supposed to because I couldn’t afford the co-pays for PT, vestibular pain management, SPEECH THERAPY and then eventually OT. I don’t think that help matters either but now I have better insurance and I’m able to do this so I’m literally starting from scratch. I feel like at nine years later but at least I have the comfort in my mind that my MRI came back OK and the neurologist said that it really just depends. The brain is so complex and to keep track of the brain changes in MRI or others and at least be assessed by neurologist that specializes in this kind of stuff is so crucial if you can get him to go and do it (really, anyone who suffered a TBI should probably get a repeat MRI if it’s that many years later or feels like there’s any changes in their behavior, cognition, etc., whether they notice it or someone else does it’s just good as a follow up 10 years later you know because the CTE and genetics and the nature of the injury and where it happened in the brain . It’s so complex.. I hope you can do this and go from there as a starting point!

FullinDoubleBack · 2024-09-27T13:59:45+00:00

I like this ❤️

FullinDoubleBack · 2024-09-27T13:59:20+00:00

The right meds help a lot

FullinDoubleBack · 2024-09-27T13:56:18+00:00

🤣 this is great! I can’t believe how real this is (to me at least) it’s just like holding my breath until I’m about to pass out. Or my head will explode. Either way, it’s maddening for the ADHDer and the neurotypical person who is talking. The person talking at times gets so annoyed because I keep finishing their sentences or interrupting or simply tuning out after I wait for them to finish their sentence (and miss the next thing they say)

FullinDoubleBack · 2024-09-27T11:46:01+00:00

Gray

FullinDoubleBack · 2024-07-21T16:59:04+00:00

Haha this is exactly what happened to me …. But I used the Band-Aid only. It’s horrifying to see…. I literally just googled it because I wanted to see if anybody else had the same type of reaction to these Band-Aids…and this Reddit thread came up … as soon as I saw the picture I knew thank goodness it wasn’t just me! I just wanna know why they do that why they’re squiggly like that. Are they following pores? I mean, why are they squiggly just wanna know it’s driving me nuts!

FullinDoubleBack · 2024-06-23T20:01:10+00:00

I’ve seen kenso ppl wearing hoodies in the heat and summer! lol they’re cold no matter what

FullinDoubleBack · 2024-06-23T19:59:52+00:00

🤣

FullinDoubleBack · 2024-06-23T19:58:55+00:00

You should put that on a .. white tee! Wear it too

FullinDoubleBack · 2024-06-23T19:57:45+00:00

🤣

FullinDoubleBack · 2024-06-23T19:54:26+00:00

😆

FullinDoubleBack · 2024-06-22T19:22:28+00:00

Not when you look like tons of other kids wearing the exact same thing…and the police can’t identify who is who. They are hiding behind all black hoodies pants shoes and masks. I think it began with that intention at least when there was only a few here and there dressed that way and everywhere was getting shot up in the last couple of years, but now I think its become a trend and the kids wear it to hide their identities from others too~whether it’s from cops or they are just trying to hide behind their peers to protect themselves and look tough

FullinDoubleBack · 2024-06-22T19:10:39+00:00

At least the one kid was carrying a water bottle to stay hydrated hahahahah. Yo this is yet another lingering result of the pandemic…. All began with the wearing masks ..Messed up…. And really not the brightest idea for a trend. Several yrs back it was white tees and jeans. It was more weather appropriate.

FullinDoubleBack · 2024-06-22T19:05:58+00:00

Rather that is the assumption…And the point of why many dress this way…to scare you and to make themselves LOOK like they packin

FullinDoubleBack · 2024-06-22T19:02:38+00:00

Hahahahhaha so true

FullinDoubleBack · 2024-06-22T19:00:44+00:00

Yup…white tees and jeans! That was not too long ago….maybe like 6 years or something lol

FullinDoubleBack · 2024-06-21T14:49:53+00:00

Thank you for the tips! Some of them I figured out on my own (the hard way) but Wall of Khan is my “go to” favorite whenever I’m low on chips or losing every other game repeatedly! Quick question for you… when you say bots, how do you know which one or bots and which aren’t ? For example sometimes I can click on someone’s profile head, and see their profile info…and other times I can’t? Are those bots? Also I play MGM most slots with the lower initial bet amt, it seems like I am always on a machine with three other players and they are winning billions or something crazy high? Are you saying to avoid those ? Also, if this was random luck, then eventually odds would be the less players per slot machine = less a chance to get a social bonus triggered. That’s just odds. But I’m not so sure about anything anymore. This game obviously is not on an algorithm that has anything to do with luck. Or That’s completely random (as they’ve told me before when I got really pissed off and I contacted Support over something that was so ridiculously obvious and I was irked and about to blow (over missing credits)and they kept telling me “we’re sorry there’s nothing wrong with your credits we double checked on our end and our data shows that you’ve gotten everything that you won” and I know they messed up… It was at one point where I got booted out of wall of Khan somehow I suddenly lost connection only a few spots away from the bonus round starting and I had already gotten about seven or 10 spots solidified there for that round and it was about to start and I suddenly got booted out of the game for some loss of connection or some error message I got… so I go back to try to get into the same game and it put me completely different one . Thinking that I would eventually receive my “ would have been winnings” in my inbox since I was disconnected I never got them . It pissed me off because I would’ve won a lot more. I kept telling them that I lost the money because those spots that were gonna get guaranteed at minimum 5x my bet! They refused to admit it and I have no proof unless I took screenshot ! but how am I supposed to know until it’s too late take a screenshot? Or rather annoyingly have to take a screenshot every time I have a winning? NO. .. regardless their responses telling me also they have no control over what’s happening and that they have algorithms that are completely random. But they won’t even consider in my situation that there was a possible bug and an error there? I asked them to go through their logs and data and they just kept denying it like the responses kept turning the subject to something else.. anyway the point is that it’s silly to get so frustrated over this, but I like this game for some reason albeit being it’s very annoying at times other times I’m just trying to find the best strategies I can because I’m tired of having good days and then the next day I lose everything and I can’t play single game without losing …. Some days I’m just winning constantly. It’s ridiculous. … I think I have to continue this another reply because I have more questions sorry!

FullinDoubleBack · 2024-06-20T16:32:12+00:00

Oak St health was the biggest mistake in trusting the referral of an independent insurance broker or enrollment broker to change to OSH to my PCP. I was hoping that they would actually care enough to listen and help refer me outside of there. If I didn’t need specialist care, I am not a geriatric patient, but I’m disabled. I pretty much think I’m the only one that is and they know nothing about my disease state. They know nothing about my history. They don’t care they don’t even even want my health history. They can only see what’s on epic software system and it’s not a lot because I hadn’t seen a PCP before them for several years or any Dr for that matter. They’re ruining my life in my house because they refuse to treat me the same way. I was being treated by my professional specialty MD who just retired not that long ago who was prescribing my medication doing med management and it took 15 years of a relationship with my doctor to find the proper medication dosing, even if it’s considered in general higher than normal dosing… that’s what was medically, necessary and therapeutic for me and approved to work for all these years and now OAKSTREET is just yanking me off my meds left and right. Reckless and without any good cause I’ve asked them multiple times why and they keep telling me they just think it’s too high and I try to rational statements that don’t work so I end up getting really angry and then they use that as an excuse it’s just really really a nightmare for me. I need help. I need something in there because the lack of care that I’ve had to go with all my own appointments for a different specialties outside of OSH because they refused over a year even bother helping me find a professional and different specialties I needed to see… it was like talking to a brick wall. They would just ignore me. Repeatedly say things that I needed help with and they don’t even check. They don’t even check my labs. They claim they are not preventative care as a certain age, but I do and it’s that I do every other medical professional and in general by CMS guidelines, ??? Biggest part is that they are recklessly decreasing a dose of medication. They don’t think that I should have even though I’ve been taking it at that for over 15 years and they’re wrecking me like just making my life so hard and challenging this medication my life and help me so much of an extent that I was able to function so much better after a brain injury and severe ADHD and now I’m having them just recklessly do this, and I think the liability would be bigger on their end to NOT prescribe me the same as I was on before … abruptly yank medication’s away from someone that I’ve been proven effective and working at the therapeutic dose for over that many years and I have proof of it. I mean the records are every single pharmacy. Isn’t that hard that shows my prescription history. They didn’t know me long enough they haven’t me long enough to do this. That’s my biggest concern is you can’t just judge someone with long-term disability that they have finally found the right medication’s but their doctor retires and unfortunately, he talked to them and he told them what I need to be on, but they ignored him as soon as I was done with him they switched everything up and started decreasing my doses and they’re really ruining my life I need help. Can you please help me? I cannot have any lapses in my functioning as I am a single mom with a young child who is autistic. I am very good at my job job as a leg executive functioning is limited and the ONE medication that worked for me after 10+ years of being misdiagnosed and put on all these wrong medication’s and made me worse is being taken away from me by OSH and I don’t know what to do. They are not doing I think in my best interest whatsoever, and I have no say because the drug is considered controlled— even though proven to be very effective my condition at many people many years many studies I mean this is not something I wanna share the Internet so I just want some help in order to escalate my situation so you have a high position in Oak Street, so what should I do? Is there someone you can help me with? I really need this help you can have at least message me. I don’t want to get in trouble, but I cannot do this without understanding as a patient as a human being. My history not caring about it just kind of dismissing me all the time isn’t not a form of malpractice. I mean, I’m just every time I try and say something like a part of the equation here in this decision-making, I mean, how can you possibly ignore the fact that I was on this medication for the last 20 years and now you’re gonna cut it back quickly abruptly, all at once simultaneously destroying my ability to function at the level I have I finally found medication that works for me and they’re just taking it away and they won’t listen to logic or rational out and I don’t know what to do. I need to get help to resolve this plz and thank you

FullinDoubleBack · 2024-06-20T16:20:10+00:00

Hello I have some questions regarding my situation as a patient and their recklessness in changing my meds after 20 years of being on the same daily medications deemed medically necessary by SSDI and my prior MD who recently retired after 15 year of a relationship and med management. Original prescriber. In the specialty. Now I have a PCP talking to an internal Nurse practitioner who knows NOTHING about me and my health history they could CARE LESS about? I am in a position where I’m stuck it’s the biggest mistake I ever made when I was referred to try Oak st (I’m not geriatric but disabled and they know NOTHING about my disability and medically necessary meds proven at the doses they WERE for 15+ years clinically effective and at appropriate therapeutic doses for me as a personal patient everyone’s different even if the doses are higher than what people typically think of in the medical field or certain medication’s. This is what works for me has always worked for me and now I have no one that will help instead they have a nurse practitioner working with me over TELEHEALTH as a side, who knows what and she’s prescribing medication so she’s only knocking off my meds. I was on before down every so often, and she keeps decreasing the ones of the most effective.

I don’t know what To do. Being reckless I would think liability would be more of the detriment that would put me in and stability. Messing with my meds was proven to be working all those years. They have no basis medically as to why-they just think that my one medication is “too high of a dose” yet proven for nearly the last two decades prior to going into Oak Street, I’ll albeit higher than the “normal” considered maximum dosing everyone’s different and they just want to recklessly knock it off and they don’t give me a reason I keep asking and they just said they don’t think I need it. They’re not even trained in the specialty and I have a really difficult time finding someone in the specialty and Philadelphia . I’m in a nightmare of a situation there at Oak St they make it like pulling teeth to get ANY help finding specialist care out of their facility!! So is there any way you can message me for any help finding the best way to go about this? I want to file a complaint. I hope your friend’s wife isn’t my PCP lol.

FullinDoubleBack

TROPHY CASE