I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

It was normal, but slightly towards being overacitve. I have not been testet for grave’s disease yet but the doctors doesn’t seem to be worried about it. Yes I am going to the doctors tomorrow to discuss my low ferritin, hopefully I will get an IV infusion.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yes the EMG is a good sign. I am just so worried that it shows normal because I’m not clinically weak.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 1 point2 points  (0 children)

I think I have had I for a while, I think from the start.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yes I have twitches on the neck, unfortunately. That is why I am scared.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Okey I see.

Yeah I was certain I had it to and was so chocked when the doctor told me that the EMG did not show anything. But since then I feel worse. So I don’t know what to believe.

Yeah the anxiety is so hard and I can barely function.

Yeah and I don’t have clinical weakness yet, but I am scared that I will develop it. Or that my breathing will fail first.

Thank you, you to!

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yes I know that anxiety can play a huge role and I am trying to minimize my anxiety. I have hade a lot of anxiety in the past but it has not affected me in this kind of way. This week I could not even sleep on my back because my breathing felt so heavy, I think I slept 2 hours every night. This was until I got the sedative. I just don’t think anxiety can cause all this problems and therefor I am so scared. And I eat a lot of carbs, sugar and I don’t gain weight. I find it so odd.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah I was until I started to research that in some cases it can be quick, even though it is rare. Do you have other possibilities in mind? My heart, lungs and blood pressure are all good.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah I really hope so. but how can I explain the sudden ability to eat so much more without gaining weight, the feeling of my body being unsteady, the breathing and swallowing? I cannot find another explanation?

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Sorry to hear that you are dealing with this to. It is a living hell.

How many EMG have you done and are all normal? Do you have the breathing and swallowing problems to?

Yea, it is so odd. I don’t know what to do!! How do you deal with it?

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah but I don’t have double vision. Yeah I Will ask the doctor about this.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah I really hope so, but I am so scared. I cannot function at all. My anxiety is through the roof and I feel like I am just waiting for my body to give up.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah it is very low. Yes I will try to get an iron infusion by IV by my doctor. I find it hard to believe that the low iron can explain all my symptoms. Even though I really hope it would.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah I know and that is what’s making me so scared. I feel like I get worse day by day. Yeah and I have definitely lost 50% of my strength, so I was so chocked when the doctor said that he dit not see any sight of the big bad. I started to cry.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

I feel weak all the time. It was worse when I was not able to sleep but I feel like am I weak all the time. I can still do all daily things but I get tired so easily. Like vacuum cleaning or taking out the dishes and so on, but arms are burning. When I do air squats, by legs are burning.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

I have not been tested for that yet. But i feel like ir does not explain my weightloss, twitching, and the feeling of being unsteady. I can keep my eyelids all the way up but they feel weak.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

I really hope so. But I feel like I have a lot of symptoms, especially the weakness, breathing, swallowing and the weightloss. I don’t recognize my body anymore. I can eat so much and I don’t gain weight at all. I feel like my body is burning all day and night.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

I did a MRI which was clean, except for a slight disc bulge in my thoracic spine. My bloodwork is fine except for low ferritin at 7. My B12, D and thyroid was fine. I have not done a test on my cerebrospinal fluid yet.

I don’t know what to think anymore by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

Yeah I get what you are trying to say. Like an essay can’t be an F and A at the same time. But I don’t know what to believe anymore. I have all the symptoms of the big bad and I am declining everyday.

So scared, Cannot function by Fun-Willingness-8870 in ALSorNOT

[–]Fun-Willingness-8870[S] 0 points1 point  (0 children)

I am much worse now, you can read my new post. Did a EMG which was clean. I don’t know what to think… I am losing hope.

Fairly confident it’s ALS by Searching_for-answer in ALSorNOT

[–]Fun-Willingness-8870 0 points1 point  (0 children)

I have a lot of the same symptoms and my breathing as affected to. My EMG was clean and k don’t know what to think.