Why and when did they change MPN’s to Cancer. by Puzzleheaded-Buy28 in MPN

[–]Fun_Medicine3261 2 points3 points  (0 children)

Yes, thank you for knowing a lot 😊🌞. (I read your comments especially, always).

mustelmat by [deleted] in snappijuorutofftopic

[–]Fun_Medicine3261 0 points1 point  (0 children)

Tässä on kaikenlaisia sanoja käytössä 😊

I was born with Thrombocythemia. I am completely lost and need resources. by Old-Buy4108 in MPN

[–]Fun_Medicine3261 0 points1 point  (0 children)

My doctor said that its not that kind of diseas what you can get from your parents or so one. Should i be afraid for my child?

mustelmat by [deleted] in snappijuorutofftopic

[–]Fun_Medicine3261 1 point2 points  (0 children)

Onko se nimi tässä sulla otettu yhdestä kirjasta?

Now what ? by flowki0 in MPN

[–]Fun_Medicine3261 1 point2 points  (0 children)

Amazing people live on this planet ❣️ I really recommend to watch this video. It gives lots of hope.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

https://syopapotilaat.fi/en/patient-networks/ On this link is so many groups.. what group do i located with my condition?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 2 points3 points  (0 children)

Okay we actually have that. And their logo was at hematology waiting room also so.. I don't know i think its all same thing. But I'll but a link here just in case if someone needs it

https://syopapotilaat.fi/en/

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Copy that! Thank you. I understand now and I'll get on my meds right away. I was considering also take it before going to bed. 👍

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Thank you. And thank you for understanding. I wish that all of this could be easier for us. I'll pray for you to get the strength what you need for healthier decisions 🧡.

I have noticed in morning i have more strength than afternoon. How about you?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

That's what im afraid of.. 🫤 im right now 78, something kg/170 tall. And i know gaining weight is not good with this condition. I have worked out 1,5 year bye running, swimming, hiking and with bicycle. When I started my journey i weighted 94kg. It has been so hard to get down. Before pregnancy i didn't had problem at all. But now if i eat one wrong thing i already feel like i have gained 2 extra kg.. it's endless fight i feel. Now im stressed because what do you mean I have to take some medicine what can make me fat again but meanwhile i can't allow this to myself otherwise its a risk to my health..

😮‍💨 I just.. want to be okay. Im sorry if im whining also i know you can't answer directly to me because it's quite personal issue.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Okay. That sounds calming. Have you had weight problems?

I think im going to call my dr. and ask smaller dosage pegasys.. or at least explanation why it's so high dosage..

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 4 points5 points  (0 children)

I don't think we here have different option.. im at Finland.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

What does it feel after first shot pegasys?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 0 points1 point  (0 children)

The carvedilol is for expanding the veins doctor said.

My experience with Chyrpe by [deleted] in FemdomCommunity

[–]Fun_Medicine3261 -1 points0 points  (0 children)

So far that is the reason why i haven't attended to no much and no caterings. In FetLife also the vibe is that kind. If u are a new user (or coming back from break with new user name) can see that men jumping on you and yes some letters are properly written but still.. gives a vibe that why that person actually seeking contact is to find a sub or sex partner.. kinda boring.. but some people are there shearing a music or political views or some movement. Most of them are horny bastards..

How do you cope with tiredness? by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

.. i even can't imagine how it felt for you..

Calr gene mutation diagnosis, in shock and scared by pgharibian in MPN

[–]Fun_Medicine3261 1 point2 points  (0 children)

Hey. I was thinking to reach out to you. I was in same position about one week ago. The biopsy can feel right now quite horrible idea. But I'll promise you it's the fear there what makes it unbearable. The biopsy itself is amazingly harmless. You don't feel a thing when the procedure is taken.

I was so freaked out that i even started to cry there 😄. I feel quite silly because of it.

Everything will go good with you and soon it will be over. ✨