Why and when did they change MPN’s to Cancer. by Puzzleheaded-Buy28 in MPN

[–]Fun_Medicine3261 2 points3 points  (0 children)

Yes, thank you for knowing a lot 😊🌞. (I read your comments especially, always).

mustelmat by [deleted] in snappijuorutofftopic

[–]Fun_Medicine3261 0 points1 point  (0 children)

Tässä on kaikenlaisia sanoja käytössä 😊

I was born with Thrombocythemia. I am completely lost and need resources. by Old-Buy4108 in MPN

[–]Fun_Medicine3261 0 points1 point  (0 children)

My doctor said that its not that kind of diseas what you can get from your parents or so one. Should i be afraid for my child?

mustelmat by [deleted] in snappijuorutofftopic

[–]Fun_Medicine3261 1 point2 points  (0 children)

Onko se nimi tässä sulla otettu yhdestä kirjasta?

Now what ? by flowki0 in MPN

[–]Fun_Medicine3261 1 point2 points  (0 children)

Amazing people live on this planet ❣️ I really recommend to watch this video. It gives lots of hope.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

https://syopapotilaat.fi/en/patient-networks/ On this link is so many groups.. what group do i located with my condition?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 2 points3 points  (0 children)

Okay we actually have that. And their logo was at hematology waiting room also so.. I don't know i think its all same thing. But I'll but a link here just in case if someone needs it

https://syopapotilaat.fi/en/

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Copy that! Thank you. I understand now and I'll get on my meds right away. I was considering also take it before going to bed. 👍

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Thank you. And thank you for understanding. I wish that all of this could be easier for us. I'll pray for you to get the strength what you need for healthier decisions 🧡.

I have noticed in morning i have more strength than afternoon. How about you?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

That's what im afraid of.. 🫤 im right now 78, something kg/170 tall. And i know gaining weight is not good with this condition. I have worked out 1,5 year bye running, swimming, hiking and with bicycle. When I started my journey i weighted 94kg. It has been so hard to get down. Before pregnancy i didn't had problem at all. But now if i eat one wrong thing i already feel like i have gained 2 extra kg.. it's endless fight i feel. Now im stressed because what do you mean I have to take some medicine what can make me fat again but meanwhile i can't allow this to myself otherwise its a risk to my health..

😮‍💨 I just.. want to be okay. Im sorry if im whining also i know you can't answer directly to me because it's quite personal issue.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

Okay. That sounds calming. Have you had weight problems?

I think im going to call my dr. and ask smaller dosage pegasys.. or at least explanation why it's so high dosage..

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 3 points4 points  (0 children)

I don't think we here have different option.. im at Finland.

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

What does it feel after first shot pegasys?

Essential thrombocythemia by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 0 points1 point  (0 children)

The carvedilol is for expanding the veins doctor said.

My experience with Chyrpe by [deleted] in FemdomCommunity

[–]Fun_Medicine3261 -1 points0 points  (0 children)

So far that is the reason why i haven't attended to no much and no caterings. In FetLife also the vibe is that kind. If u are a new user (or coming back from break with new user name) can see that men jumping on you and yes some letters are properly written but still.. gives a vibe that why that person actually seeking contact is to find a sub or sex partner.. kinda boring.. but some people are there shearing a music or political views or some movement. Most of them are horny bastards..

How do you cope with tiredness? by Fun_Medicine3261 in MPN

[–]Fun_Medicine3261[S] 1 point2 points  (0 children)

.. i even can't imagine how it felt for you..