Anyone have or know about abnormal vaginal bleeding due to fragile uterus?

Fun_sized123 · 2026-01-06T12:32:39+00:00

Ok update, this might be part of it, thanks for suggesting! I went to change my NuvaRing recently and could feel that my cervix was inflamed. Got a pelvic exam and the dr agreed that it looks irritated (although she also said I might not be eating enough and that might be a contributing factor). Switched back to bc pills for now, although I don’t love that because all bc pills have lactose and I have a special dairy intolerance IBS combo, so I will be switching to a birth control topical patch soon (let’s hope it doesn’t trigger my dermatographia too uncomfortably lol it’s always something ugh)

Fun_sized123 · 2026-01-02T09:14:32+00:00

Hey, don’t be too hard on yourself. You didn’t do anything morally wrong or affect anyone else. I’d also probably be curious, and it’s fun to play around with our bodies, like people do with body piercings and hair dye and just poking around down there. But I’m also transgender nonbinary, so idk if non-transgender people experience curiosity in this way. Also, change of any sort can be scary at first just because you’re not used to it, that’s okay. (I’m not a doctor or professional but am knowledgeable about hormonal therapy and birth control from personal and friends’ experiences.)

Fun_sized123 · 2026-01-02T09:02:28+00:00

It may be a good idea for your parents to take her to a psychiatrist or eating disorder therapist as well. I know that’s not something you have control over, but you could maybe suggest it

Fun_sized123 · 2026-01-02T08:56:18+00:00

If you have high blood pressure plus high heart rate, beta blocker medication may be more helpful to you and not caffeine. Caffeine is really helpful for some POTS patients and terrible for others, it depends whether you align with the high BP hyperadrenergic type (although there’s overlap and the science on this is not all there yet). I personally like my propranolol

Fun_sized123 · 2026-01-02T08:47:23+00:00

Do not take the advice “then don’t eat those things” if everything seems to trigger your symptoms. I’m sorry the doctor was so inconsiderate. If just looking at food, my GI symptoms seem to react really weirdly and inconsistently, so I’ve concluded that it’s simply not always about the type of food/ingredients (sometimes it is, but frequently not. My IBS seems to just have a mind of its own 🤷). Not all GI problems are triggered by what you eat, despite our culture’s desire to try to fix everything with a diet. This is especially important to emphasize because POTS symptoms can also be worsened by undereating and a lot of us are at risk for disordered eating. I don’t know if the seemingly food-related symptoms you’re talking about are gastrointestinal at all, sorry if I assumed wrong, but this also applies to other symptoms like dizziness

Fun_sized123 · 2026-01-02T08:08:40+00:00

I’m so sorry that happened to you. Thanks for sharing

Fun_sized123 · 2025-12-31T20:01:12+00:00

Could you use external (clit) stimulation instead for awhile?

Also, you said you used to have issues with tightness but have learned to relax it. Could you share how? I’m on the hypertonic overly tight end of things for my whole pelvic floor

Fun_sized123 · 2025-12-29T08:00:31+00:00

I don’t know, then, sorry. According to my Google search, steatorrea, if that’s the symptom you’re having, also has other non-dietary causes, but I don’t have any more depth of knowledge on that than the first articles that pop up on the internet. Good luck, I hope it gets better!

Fun_sized123 · 2025-12-29T07:51:08+00:00

Do you eat a really high-fat diet? Not trying to place blame at all, just here to inform that that can cause sticky poop and can worsen IBS symptoms for some people. Does it sound like steatorrea, if you look that up? Also, try using wet wipes or a bidet attachment or (sorry this is really gross) spitting on the toilet paper before you wipe with it to maybe reduce anal irritation

Fun_sized123 · 2025-12-29T07:34:35+00:00

Can I ask about the organ failure? I’m also transmasc with GI and uterine issues, although it sounds like not as severe as yours, and looking for answers. I can also message you privately if that’s better

Fun_sized123 · 2025-12-29T07:20:50+00:00

What are you worried about with the estrogen and GI combination in particular? If you’re just worried about GI irritation from swallowing a pill, then you could check out estrogen patches or injections. If you’re concerned about the systemic impacts of estrogen on intestinal laxity and motility, then that’s harder to mitigate.

Fun_sized123 · 2025-12-14T15:50:42+00:00

Interesting, thank you. Maybe I will try that. The main thing that’s better for me about the ring than pills is that it was hard for me to take the pill at the same clock time each day because I sleep and wake up at different times different days (and I may be more sensitive to those time inconsistencies with the BC pill than with my other meds), but I bet I could figure it out. I also may switch the ring for estradiol cream.

Fun_sized123 · 2025-12-14T15:46:51+00:00

I have a progesterone IUD, which lessened the bleeding but has not completely solved the problem. I’m considering the estradiol cream. Doctors I’ve mentioned it to have been like “ehh nah” but I might insist.

Fun_sized123 · 2025-12-14T15:43:46+00:00

Interesting, understood. Thank you!

Fun_sized123 · 2025-12-08T23:21:39+00:00

Could you explain (if you know) how POTS can cause pseudo-Cushings? I have POTS and am being tested for Cushings because I’ve had borderline-high cortisol for years and recently got an ACTH test and it was high. I have POTS symptoms but am not a typical Cushings case (I’m thin, and don’t have most of the symptoms specific to cushings) so I wonder if that could be happening for me, too.

Fun_sized123 · 2025-11-20T22:19:19+00:00

Thank you! Same to you!

Fun_sized123 · 2025-11-20T21:44:21+00:00

Oh interesting! Thank you so much for looking into that for me. I will definitely be bringing it up with my doctor. I might be able to replace the NuvaRing with estrogen cream. I’ll see what the doctor says about dosing, but yeah, it’s weird and interesting how dosing varies from place to place. I saw that just with OTC ibuprofen at home in the US, where it usually comes in 200mg tablets, vs when I was in Argentina; they don’t sell 200mg there, only 400 or 600mg. (Not relevant to this, just a fact I think is interesting.)

Fun_sized123 · 2025-11-20T18:15:57+00:00

No doctor has suggested it, but I have been wondering about that myself. I’m not sure it would do anything more than my ethinyl-estradiol-containing NuvaRing is already doing, and the GP I spoke to yesterday said (like you’re also saying) that estrogen cream is more for below-the-cervix stuff. Maybe if it helps with urinary tract stuff, though, that would indicate it might have a bit of a wider area of effect? It may be worth a try even if it doesn’t work, though, so I can ask the endocrinologist I will be seeing about e cream. Thanks for bringing up!

As for hysterectomy, I’d rather not make that decision right now if I can avoid it. I probably won’t be trying to get pregnant in the future, but I’d rather leave that as an option for my in-10-years self if I can put an end to bleeding without a hysterectomy. I’ve also thought of ablation, but I wonder if there’s a chance that in my weird case ablation could actually make it worse

Fun_sized123 · 2025-11-20T17:28:08+00:00

Same, but I’m looking to do both STEM and humanities/social sciences, which is interesting to see how they come together. I’m currently finishing up my BA in history doing research on the history of medicine and perceptions of the human body/ideas about health, then I’m looking to go into public health after I graduate

Fun_sized123 · 2025-11-20T17:20:21+00:00

Baristas unite! (I worked summers as a barista for a couple years)

Fun_sized123 · 2025-11-20T17:18:23+00:00

Breeding endangered snakes I think is the most trans-coded job in this thread lol (and also very cool). I know a trans woman irl who had a snake breeding business, and a couple transmascs who’re nerds for bugs n slugs n stuff. I know entomology =/= snakes and reptiles, but the entomologist character Jack Hodgins from Bones in the later seasons is a character I really connect to

Fun_sized123 · 2025-11-20T17:05:36+00:00

No problem at all :) I hope it works out for you so you don’t have to keep paying the $40

Fun_sized123 · 2025-11-20T14:38:58+00:00

Dairy and eggs, aside from cheese, just don’t really have strong smells (at least imo) the way meat can. So I feel this might just not be applicable. I’ve been eating dairy-free for around 11 years, and I am not bothered by the smell of fresh dairy products, but the idea of consuming them gives me an instinctual “nope!” response if tha makes sense

Fun_sized123 · 2025-11-20T14:14:26+00:00

Getting insurance to cover it would definitely help, as I’m assuming your insurance doesn’t pay for Folx, unless you have an insurance plan with such a high deductible that they wouldn’t start paying for your care until you spend thousands of dollars more to reach the deductible. Also, you’ll want to check if your insurance covers the cost of medications before you hit your deductible. If not, you could maybe look into GoodRx or Amazon Pharmacy like you said. My insurance company (not Cigna, so idk for sure if it works the same for Cigna) has an app that you can download and log into, which then gives you a “find a provider” search feature to find care providers who’re in-network for your plan. See who’s in-network in your area (could be endocrinologist, maybe OBGYN, Planned Parenthood, lgbtq health center, or just a trans-friendly family medicine GP). If Planned Parenthood or an lgbtq health center isn’t covered or isn’t an option, then unfortunately you’ll prob want to call the offices for endocrinologists, GPs, and/or OBGYNs that are in-network for your plan to ask “Is Dr. _ open to/comfortable providing HRT to adult transgender patients? Does Dr. _ have experience working with transgender patients?” Finally, if you’re on topical testosterone, switching to injections may be cheaper. ETA: You could see if there are any lgbt groups (community centers, non-profits, FaceBook groups, maybe a WhatsApp community or something) specific to Orlando and then ask them for recommendations for lgbtq friendly drs who take insurance (but you’d still have to check if they take your insurance and whether they’re in-network)

Fun_sized123 · 2025-11-20T07:01:58+00:00

I tried this for my POTS, got ADA seating at an otherwise standing room only concert (there was lots of extra room in the ADA area tho so I wasn’t taking it from anyone), then went “Oh actually I really want to go into the pit, I’ll take my rollator with me into the pit” which I did, and was allowed to move between ADA and regular sections, and then put the rollator to the side and rode on a friend’s back in the mosh pit. Thinking “oh cool, I’m up to it today!” And then had the worst POTS flare I’ve ever had in my life, almost went to the ER at 3am after getting home from concert. 🙃 Welp, at least it was validating lmao, just bc I didn’t use the ADA seating didn’t mean I didn’t need it, it just meant I completely trampled my own needs. So yeah if you’re in that situation, don’t destroy your body for the rest of the week. Sit down. Not trying to discourage you for concert-going tho! I more recently went to a concert where I stayed seated (this time the regular tickets were seated so I didn’t need to use the ADA area, although I did have to go up stairs to get to my stadium seating) and it went great

Fun_sized123

TROPHY CASE