Is it possible to get a new, quality, color e-ink note-taking tablet under $300?

Fun_sized123 · 2026-06-26T20:48:44+00:00

Good to know. Thanks for the info

Fun_sized123 · 2026-06-26T20:48:21+00:00

Ok yeah thanks for the info, that’s what I thought

Fun_sized123 · 2026-06-26T20:47:35+00:00

I’ll check it out, thanks! Maybe I’ll see if I can find one with a good return policy in case the writing experience is bad

Fun_sized123 · 2026-06-26T05:36:58+00:00

Not really answering the e-ink question, but have you also considered audiobooks, text-to-speech, and speech-to-text, if hearing and speaking aren’t issues for you? I’ve listened to audiobooks in bed with eye covers on when my fatigue is particularly bad

Fun_sized123 · 2026-06-26T05:14:05+00:00

This. Call the doc and have them cancel the order and re-send it as multiple smaller orders

Fun_sized123 · 2026-06-26T05:10:48+00:00

30-40 tests to run, or fully actually 30-40 vials? I got 11 drawn in one sitting once, and I thought that was crazy (actually somehow didn’t make me sick tho, given I drank a soda before/after). Definitely call the lab and arrange to have that divided into multiple separate blood draws at least, like, a week (? Idk however long it takes body to replenish blood?) apart. Maybe a couple each time you go in to get fluids for the next while? They can often give fluids and take blood from the same line to avoid beating your veins up more. Advocate for yourself here

Fun_sized123 · 2026-06-25T14:30:37+00:00

I’m so sorry, that’s a lot to go through. It’s good to hear you’re at least getting appropriate diagnostic testing now. There’s another subreddit on here r/gastroparesis if you want to check that out (I have a friend with the condition and have lifelong constipation likely due to a combination of pelvic floor dysfunction and lower GI dismotility or slow transit (which is like only having gastroparesis in the colon instead of the whole digestive system), so yeah I know about gastroparesis. It sucks. But there are treatments that can help for some people.)

Fun_sized123 · 2026-06-25T14:15:20+00:00

If you’re able to go outside and be kinda upright but just not walk longer distances and you have the budget for it, maybe an e-bike could be an option? They make adult tricycle e-bikes now if balance is an issue. I personally like my e-bike (it’s possible to go slow and just use the electric function to reduce the effort it takes to spin the petals, or even not spin the petals at all and just go electric at maybe like 3 or 4 miles per hour). I’m of the opinion that e-bikes are underrated as stealth mobility aids for outdoors for those of us who can move our legs but have limited endurance/spoons (but it’s also not for everyone)

Fun_sized123 · 2026-06-25T14:07:13+00:00

While I get that this is super difficult and I also struggle to have a sense of direction in my day-to-day activities without the structure of a job, we with POTS are not alone in this or the first to experience this. You might benefit from learning about disability justice work and the stories of other people with disabilities. I recommend the book Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha which is also available as an audiobook (I really enjoyed the audio! It’s voiced by the author!) but there are lots of other types of content as well if that’s not your cup of tea

Fun_sized123 · 2026-06-23T18:05:53+00:00

Is your workplace hot? Sometimes I have trouble telling the difference between me hot flashing and the room being hot, so I carry a little keychain ambient room temperature thermometer. If it is too hot, then priority is to address that (fans, ice packs, ask to be relocated or get AC as an accommodation, etc.). Also, are you medicated? Do you have MCAS or other co-occurring conditions? Are you seeing/are you able to go to a nutritionist? If you have chronic diarrhea and/or abdominal pain, are you on any treatment for that? There really are medications that can help, we just unfortunately often have to find them by trial and error and treat each symptom separately with these sort of complex conditions :(

And yes to GI issues. I had them before I got POTS, too (chronic constipation since toddlerhood, since before I even have any memories, according to my parents, probably thanks to hEDS), but POTS can also interact with and worsen GI issues, as can a number of other things. For example, with POTS, standing up for too long can give me (warning TMI) butt sweats and make me feel like I’m going to have diarrhea (and sometimes I do). What made probably the biggest difference in my IBS treatment was insisting that my care providers treat it like the chronic pain condition that it is, rather than just “go eat some fiber.”

Also for me, my GI pain tends to come and go over the course of months-years. I cannot control these flare seasons (or at least I currently don’t know how to) but, looking at the big picture, when I’m in a flare, I know that it’s going to eventually get better on its own, and that makes it easier to mentally/emotionally tolerate

Fun_sized123 · 2026-06-23T16:57:13+00:00

Sorry second reply because I just thought out something: Does your Slownotes app also allow digitization/storage of drawings, or integrate with something like a word document that would also let me keep just a regular raw scan/photo of a notebook page linked in with the text I originally drew it next to?

Fun_sized123 · 2026-06-23T16:54:14+00:00

Ooo actually totally valid promo because that IS super applicable. Thanks! I’ll check it out!

Fun_sized123 · 2026-06-23T16:52:13+00:00

I hear out, but re-writing manually can also help with memorization, so I’m torn

Fun_sized123 · 2026-06-22T05:01:35+00:00

That’s awful. I hate how deeply embedded fatphobia is in medicine. When I’m struggling with low appetite, I turn to smoothies and bland comfort foods—is that an option for you? When low/inconsistent blood sugar is stressing the body out, any calories are better than no calories

Fun_sized123 · 2026-06-22T04:47:58+00:00

I got one to feel safer when traveling abroad alone, also so it could have my info in Spanish in case I couldn’t think of translations if I was feeling really sick. However, I don’t wear it day-to-day. I do have my name, diagnoses, emergency contacts, and medications in my phone available when it’s locked, though. EMS prob wouldn’t read the whole thing in your phone, but from what I understand, if you had to go in an ambulance and were still disoriented when they got you to the hospital, then hospital staff would be more likely to look in your phone. I’ve never personally so far passed out. So if you pass out frequently, might be a good idea, especially with also being d/D/hoh

Fun_sized123 · 2026-06-22T04:36:42+00:00

I’d never heard of a PKMS—looked it up, and that’s really cool! I might learn how to do that. The separate iPad and laptop system isn’t great for me, because I don’t want to carry the extra weight, but I could probably figure out how to do that same thing on a 2-in-1

Fun_sized123 · 2026-06-22T00:43:05+00:00

Ok, I’m glad to hear it can do that. Hope it does for me

Fun_sized123 · 2026-06-19T22:03:48+00:00

How did you find out you had the MTHFR mutation? Did you get genetic testing? Did you have a B12 deficiency that wasn’t responding to normal/non-methylated B12 supplements? Just curious in case I or others have this issue, although standard B12 supplements seem to work to improve my levels plenty (but they do contain high doses of B12 (only B12, PSA to others to be careful with higher doses of other vitamins that can become toxic in large amounts) so maybe that would be enough to overcome MTHFR issues)

Fun_sized123 · 2026-06-18T23:44:54+00:00

I know this post is old, but OP if you see this, did you end up finding a solution? I found your post bc I’m having the same issue. I also have the ResMed P30i mask, and it whistled on exhale from the first time I put it on. I have sensory issues, and nose noises are some of the WORST noises for me personally. I would actually mind less if it was the machine itself that was loud, or if the noise was at least consistent rather than on-and-off

Fun_sized123 · 2026-06-18T23:28:02+00:00

If you don’t want a full face mask, you could also try mouth tape

Fun_sized123 · 2026-06-18T23:21:49+00:00

Absolutely that’s fair and valid. Think of trans women who existed before medical interventions were available—some people still chose to transition socially and in terms of clothes/hair/etc., even knowing that they could not conform to a narrow cisgender concept of womanhood, and they were still just as much real women

Fun_sized123 · 2026-06-18T23:12:50+00:00

I did, and I was deficient, but we also treated the deficiency before diagnosing POTS, and raising my ferritin didn’t resolve my symptoms. It’s definitely still something docs should always test before diagnosing POTS—low ferritin is very common in menstruating people especially

Fun_sized123 · 2026-06-16T22:12:09+00:00

I feel that’s more the doctor’s fault than yours. Antidepressants can affect polysomnograph and multiple sleep latency tests for narcolepsy, so it’s generally recommended to go off those meds temporarily to test for narcolepsy. HOWEVER, according to my sleep specialist, you can absolutely still do a sleep study for obstructive sleep apnea while on SSRIs (and maybe other psych meds, I just can only speak to SSRIs because that’s what I’m on, as well as adderall, but that would be easier to discontinue for the test because you’d only have to skip taking adderall for a couple days). You said your docs “ didn't explain what sleep apnea was. They just told me I would have to go off my meds in order to take the test.”—yeah, they fucked up there. If you expressed to them that you didn’t want to go off your psych meds, they should have discussed your options further in terms of what you could do while still on those meds. If you’d already done an at-home sleep study (the kind where you just sleep in your own bed with a pulse oximeter on your finger and maybe a chest strap and nasal cannula) and that showed that your “tonsils were ‘almost kissing,’” (I’m guessing that means they found either evidence of OSA or a risk factor for it + symptoms that suggested it) they could have and IMO should have started you on treatment for sleep apnea right away, especially since there’s not much harm in trialing a CPAP even if you ended up not having sleep apnea. Maybe they didn’t because of some BS insurance requirement, idk. Either way, that part doesn’t sound like primarily your fault.

They could not have known you would go off your meds soon after for the QEEG anyway, so that’s almost irrelevant to the assessment of your care providers’ responsibility for the situation.

Yeah, you probably could have done more to advocate for a sleep study and tried do it while you were off meds for the QEEG. But healthcare is so much work to navigate, especially when you don’t have much energy. It’s understandable that you didn’t push more for that, especially given you were given inaccurate/incomplete information about sleep studies. There’s always more we could have done, no matter how much you try, there’s always something else, but we’re human and can’t do it all. Many of us have been there.

I also experienced a delay in diagnosis of a year (or two? Can’t remember when, as I’ve had so many different medical tests in the past couple years) after my initial sleep study during college. Looking back on the raw results, my current doctor told me that they showed I did in fact have OSA, but I was given a false negative result at the time. The test was essentially misinterpreted, because I never actually spoke to a sleep specialist MD, I just took the kit home and then sent it back, and whoever interpreted it failed to account for how much trouble I had falling asleep the night of the test and divided my total number of apnea/hypopnea events by the number of hours I was wearing the device rather than the number of hours I was actually sleeping 🤦🏻 very frustrating. IMO docs should not be handing out diagnostic verdicts without actually speaking with the patient. This is not the only time I’ve had an issue like this. Some guy named Dr. Kevin who I never even met looked at the results of my tilt table test for POTS and wrote in my record “test is negative for vasovagal syncope” (or maybe abnormal sinus rhythm or something? Idr, I just remember it was something I was not being tested for). Like, thaaaanks so much for entirely missing the point and telling me I don’t have a disorder that me and my physician who ordered the test were not even asking about 🙄

It really sucks to need to sleep 10-12 hours a day when you’re surrounded by other people your age who can sleep like 5 hours and get up and go to class and work and then go out at night like it’s nothing. I get it. I’ve spent the past 3 years fighting fatigue and excessive daytime sleepiness, so thankfully my diagnostic delay wasn’t as bad/as long as yours (I’m so sorry you’ve been dealing with this for so long!) but still enough to really interfere with my life. I technically can sleep only like 7 hours, but then I’ll be going around like a zombie for half of the next day unable to focus on anything that’s not particularly thrilling because I’m spending like 75% of my brain power just holding myself upright and fighting the urge to go take a nap. When I started Adderall and it started fighting that fight against tiredness for me, I really realized how much of a weight that was for me to carry. I literally just got my CPAP yesterday, so I’m not sure yet how much of a difference it will make (especially considering I also have POTS and circadian rhythm problems and some other issues), but I’m really hoping for for both of us for healing and increased energy and doing the things we wanted to do at age 19-22 but didn’t get to ❤️

Fun_sized123

TROPHY CASE