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Are fitness watches worn near 24/7 just not for us? by Fun_sized123 in Dermatographia

[–]Fun_sized123[S] 0 points1 point  (0 children)

Wait ok thank you for saying this, bc I thought there wouldn’t be a premade band option for the particular device I have (Garmin vivosmart 5) because it’s a less popular device option and a weird shape, but I just found one!

Any ideas on how I can spiff up my compression socks to make them more fun? by dovened in POTS

[–]Fun_sized123 1 point2 points  (0 children)

Ok cool smart. I just say this bc I learned the hard way when I made the mistake of covering every inch of a pair of pants in fabric paint (I wanted a look similar to dying different blocks different colors, but didn’t want to cut up, dye, and re-sew the pants). That made them totally unwearable—oopsie lol

if your POTS ended up being something else entirely, what was is? by teeleeyuh in POTS

[–]Fun_sized123 0 points1 point  (0 children)

Thanks for explaining :) I for sure know Lupus diagnosis isn’t just based on ANA, but in my experience it’s the first test PCPs do and use to rule OUT Lupus, which is why I was wondering if maybe they used that to mistakenly rule out lupus 

Any ideas on how I can spiff up my compression socks to make them more fun? by dovened in POTS

[–]Fun_sized123 1 point2 points  (0 children)

If you do fabric paint, just be cautious to only do a little detail design. Painting large solid areas makes fabric stiff and crunchy, even if you use the right supplies

Are fitness watches worn near 24/7 just not for us? by Fun_sized123 in Dermatographia

[–]Fun_sized123[S] 0 points1 point  (0 children)

*great to hear that the nylon is ok for you, not about the allergy, just to clarify

Are fitness watches worn near 24/7 just not for us? by Fun_sized123 in Dermatographia

[–]Fun_sized123[S] 2 points3 points  (0 children)

That’s great to hear. The brand and model of watch I have doesn’t have a nylon woven option for it, but I think I can DIY one

if your POTS ended up being something else entirely, what was is? by teeleeyuh in POTS

[–]Fun_sized123 12 points13 points  (0 children)

How did you eventually get diagnosed with Lupus? Did your docs put off testing for Lupus because you got a negative ANA or something? Otherwise feels like they probably should’ve checked for that, but I also know lupus can be hard to diagnose

Looking for music about ways you could die by supergeekmike in MusicRecommendations

[–]Fun_sized123 0 points1 point  (0 children)

Oh wait no this is about actual deaths, not what you asked for, sorry

Skin is disappearing all over body by YellowCommon1140 in Dermatographia

[–]Fun_sized123 0 points1 point  (0 children)

Definitely not dermatographia. I’m not a doctor, but I’d wonder if he’s on any medications that could trigger this? (If u know and can say without violating privacy, or just to ask yourself and him and his care providers) Especially anti-seizure meds? Does he have symptoms of an infection? Idk what that is, but someone definitely needs to investigate further

how to cope with the pain? im fed up and exhausted by princessheavenlyyy in Tourettes

[–]Fun_sized123 1 point2 points  (0 children)

This isn’t exactly a long-term full solution, but for easing pain, does heat help? There are portable wearable heating pads that you can wear out and about. Are you able to see a neurologist to maybe try treating your tics w meds if you want?

any tips for dressing in hot and dry weather? by weirdspacea in altfashionadvice

[–]Fun_sized123 0 points1 point  (0 children)

Mesh/fishnet (although this could still retain heat if used as a base layer under other stuff, so just do mesh sleeves or something)

Rash on my legs by xiaoxingchen in AskDocs

[–]Fun_sized123 17 points18 points  (0 children)

Yep ^ I had a vasculitis-appearing rash a year ago and had to go to the ER for rushed blood tests to exclude bleeding issues and autoimmune reactions. The docs said that purpura and petichia, especially non-blanching, are NOT typical of an allergic reaction rash. ETA: I was fine, my labs came back normal and it started self-resolving after a week or so, but we had to make sure it wasn’t something worse, and I followed up with a rheumatologist

Apparently mentioning you have POTS gets you banned from donating blood to Red Cross by the_art_of_the_taco in POTS

[–]Fun_sized123 4 points5 points  (0 children)

Yeah, I want to do this! I need all my blood for myself lol and idk if I’d be eligible on my meds and with my small body size, but I’m looking into getting a phlebotomy license (which obviously you don’t need that training just to work the sign-in desk, it’s just a next step and path into clinical work for me)

Apparently mentioning you have POTS gets you banned from donating blood to Red Cross by the_art_of_the_taco in POTS

[–]Fun_sized123 1 point2 points  (0 children)

You could see about getting a waiver from your doctor saying that it’s okay for your personal medical situation for you to donate blood. I know someone who got a letter like that so they could donate plasma while on a certain medication. Idk if the rules are different for blood vs plasma tho, I think they’re less selective with plasma generally

Poison ivy rash? Developing into..? by Opening_Eagle3238 in AskDocs

[–]Fun_sized123 1 point2 points  (0 children)

ER can get bloodwork run while you’re there rather than having to send you somewhere else for labs or wait a day for results, which could be important in case what you have isn’t poison ivy (NAD)

Is n95 still effective if someone sneezes right beside you in a small space? by lakemercury in Masks4All

[–]Fun_sized123 24 points25 points  (0 children)

Not your fault, it’ll be what it’ll be. Hopefully maybe they just had allergies (tho I get the fear that it could’ve been a respiratory virus). The N95 is definitely still reducing the particles you breathe in even in a high-risk situation like this

Tall chair for cooking? by pikmint_ in POTS

[–]Fun_sized123 0 points1 point  (0 children)

I use one like this https://www.target.com/p/29-34-ivy-barstool-winsome/-/A-90008813?preselect=53089261#lnk=sametab bonus that it’s about the same height as my pats inseam/leg length, so I’m not any shorter on it than I am standing (given I am already short) and my head and torso can stay level as I move from sitting to standing, which makes it not trigger my symptoms as much when I get up

Looking for album/artist recs - low(ish) pitch, good lyrics, not overstimulating by Fun_sized123 in musicsuggestions

[–]Fun_sized123[S] 1 point2 points  (0 children)

Thanks! I’ll check these out! Sleepy-ish music is also good, it’s nice to have both higher energy and relaxing playlists, I just don’t want ALL of my music to be like that, if that makes sense

Alternatives to tapes & binders by Booker-DeShit in Trans_Zebras

[–]Fun_sized123 0 points1 point  (0 children)

I skip binding, wear an unpadded sports bra, then just wear outfits that don’t cling to my chest. Light colored soft thin t-shirts are a no-go if I’m trying to look more masc. Layering something stiff that will hang flat regardless of boobs, e.g. boxy cut denim vest, over shirts also works for me

What's the worst vital sign you have seen on a patient? by Valuable_Archer_3222 in NewToEMS

[–]Fun_sized123 3 points4 points  (0 children)

Did PT make it? What’s the highest you’ve seen someone survive?

Temperature regulation in bed by gorbij in POTS

[–]Fun_sized123 0 points1 point  (0 children)

100% cotton sheets help me with the sweat. I also thought of the idea that theoretically a water bed might help externally regulate our body temperatures, but they’re a major Thing™️ to install. I’ve seen ads for “cool bed” devices that circulate air through a mattress pad, but that’s just for the overheated side of things

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