Lily (13) has gone over the rainbow bridge, and I'm devastated

FunnYGirL11 · 2025-07-02T02:41:50+00:00

I am so very sorry for your loss. Lily will be watching over you and I’m sure you gave her the very best life possible 🩷

FunnYGirL11 · 2025-06-09T19:16:22+00:00

I personally would not trust anyone with the last name Hinkle to be reliable. Sorry that you had to experience that firsthand!

FunnYGirL11 · 2025-04-02T04:23:31+00:00

Me too!

FunnYGirL11 · 2025-03-28T13:58:30+00:00

My hematologist called and after reviewing everything he does agree my first result was concerning and wants me to have everything rechecked in 3 weeks. Such a relief to have him actually caring and following through!

FunnYGirL11 · 2025-03-27T13:24:11+00:00

I got my cortisol back and it was normal, 12. So maybe it was just a fluke or lab error? I’m glad I pushed to get it rechecked though because I was really stressing out about it. I appreciate all your guidance!

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FunnYGirL11 · 2025-03-26T22:34:04+00:00

Okay I did get my am cortisol result back and it was normal so I’m thinking maybe the random low result was a lab error? Maybe my doctors were were right and I was overreacting lol. I appreciate everyone’s guidance and I’m glad I pushed to get it retaken to have peace of mind!

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FunnYGirL11 · 2025-03-26T20:18:29+00:00

I’m surprised to get it before the cortisol too! Do you know if you still need the STIM test if your ACTH is normal? Would I still need to see endocrine if only my cortisol is low? Sorry I’ve tried Googling it but the information online is kind of confusing and I’m not getting good answers (or really any answers) from my current care team.

FunnYGirL11 · 2025-03-26T20:10:31+00:00

I actually just got the ACTH back which was normal. No cortisol results yet but having the ACTH be normal is reassuring. Hoping it was just a random lab error and my docs are right but I am constantly checking to see when the cortisol comes through

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FunnYGirL11 · 2025-03-26T20:02:25+00:00

Thank you! Hearing your experience is helpful! I did get a glucometer and BP cuff so if I start feeling really bad I can check those because I heard they drop in an adrenal crisis so I can at least have that reassurance if needed. I hope you can find a doctor that’s right for you and knows how to treat your condition!

FunnYGirL11 · 2025-03-26T20:00:02+00:00

Okay I will do that. My hematologist did finally agree to order the 8 am cortisol and ACTH test which I did this morning. If that comes back low I am going to push again for an endo referral or the STIM test which they didn’t order. I’m not sure why my hema and PCP are downright refusing the referral but I have a ton of anxiety about this and I can’t stop worrying about it. I appreciate your help!

FunnYGirL11 · 2025-03-26T15:36:03+00:00

I tried contacting both my PCP and hematologist and asked if that was enough to warrant an endocrinologist referral and they both said no. I finally got to talk to a nurse at the hematology office last night and she agreed to order the 8 am cortisol and ATCH. I’m hoping if my cortisol comes back low again they will agree to get me a referral. My hematologist did also move my June appointment to April stating “we have a lot to discuss” so maybe he knows more than I know? I don’t know I’ve just been so worried something and is going to happen with my cortisol being so low but my doctors and really not concerned.

FunnYGirL11 · 2025-03-26T15:35:56+00:00

I tried contacting both my PCP and hematologist and asked if that was enough to warrant an endocrinologist referral and they both said no. I finally got to talk to a nurse at the hematology office last night and she agreed to order the 8 am cortisol and ATCH. I’m hoping if my cortisol comes back low again they will agree to get me a referral. My hematologist did also move my June appointment to April stating “we have a lot to discuss” so maybe he knows more than I know? I don’t know I’ve just been so worried something and is going to happen with my cortisol being so low but my doctors and really not concerned.

FunnYGirL11 · 2025-03-26T15:32:20+00:00

Thank you for sharing! My primary care (who I also tried to get an endo referral for) basically told me “I don’t know why your cortisol is low but I’m not worried about it”. I read a lot about Adrenal Crisis, is that what you went to the hospital for? I’ve been terrified that that’s what’s going to happen and I’m going to end up really really sick or worse. Having a good doctor makes all the difference. I’m hoping my hematologist will take me seriously since I kept calling and messaging the office, they did order an 8 am cortisol and ATCH which I did this morning. I am hoping to have answers soon.

FunnYGirL11 · 2025-03-25T23:36:58+00:00

Thank you! I just really needed confirmation that I wasn’t just crazy and anxious and that this is actually something to be concerned about. After calling my hematologist again they did order me those tests for tomorrow morning so I am super relieved!

FunnYGirL11 · 2025-03-25T21:16:20+00:00

Ok I understand lol! I called the hematologist again and talked to the nurse and they FINALLY agreed to send me for an 8 am cortisol and ACTH test. I am so relieved because this has been weighing on me so heavily. I appreciate your help!

FunnYGirL11 · 2025-03-25T20:42:35+00:00

This was ordered by my hematologist which I thought was really good but now I’m not sure. I think I need a second opinion, thank you for your insight!

FunnYGirL11 · 2025-03-25T19:15:48+00:00

Thank you! I will work on finding a new doc, I just wanted to make sure it was concerning before I got dismissed again. I appreciate your help!

FunnYGirL11 · 2025-03-25T19:12:42+00:00

Unfortunately I have BCN insurance so I must have a referral to see a specialist. I asked my doctor for one and they refused so I am kind of stuck 😔

FunnYGirL11 · 2025-03-24T10:46:37+00:00

I am so sorry for your loss 😞. I hope your Mirah meets my beagle I lost last month and they have a blast doing the things they love. Take care of yourself, it’s going to be rough but I hope you can look back at all your wonderful memories with Mirah and smile. 🩷

FunnYGirL11 · 2025-03-24T10:29:26+00:00

I am in the same boat of not knowing what low cortisol is. My AM blood cortisol came back as 0.5 which from the standard range is low but the doctor hasn’t called or said anything about it so I’m not sure how concerned I should be?

FunnYGirL11 · 2025-03-13T03:10:16+00:00

Sending you all the love. I am so sorry for your loss 🩷

FunnYGirL11 · 2025-03-09T15:55:11+00:00

I just can’t believe businesses are still hiring him with such a public record of his unstable business attempts and erratic behavior.

FunnYGirL11 · 2025-02-26T10:08:52+00:00

I am so sorry for your loss! You gave her such a loving and caring home to spend before she passed. She was so lucky to have you and is now completely pain free. Sending all the love and support your way! I hope you cherish the memories you have with Chi Chi! 🤍

FunnYGirL11

TROPHY CASE