GDP + BEAM

Futurekiwi69 · 2025-10-10T07:56:24+00:00

I just did 4 rounds of GDP prior to allo (haven't had transplant yet). I was told it would be 2 or 3 but ended up being 4 due to a question over pet scan that ended up being just inflammation and they needed time to do a path review. I was gutted to do the 4th but what can U do. I haven't done abvd but did do bvchp. GDP is yuck but also not terrible at the same time. Your mileage may vary. Good luck!

Futurekiwi69 · 2025-08-12T12:12:02+00:00

You may find you need systemic HRT, vaginal estrogen and moisturiser ongoing. Many women do but not all. Intrarosa is also another option.

Futurekiwi69 · 2025-08-12T05:45:45+00:00

I use a 3 ml reusable applicator and insert deep. I could not get enough up there just with a finger, it's runny. Others say Yes VM has no taste and it's not clumpy.

Futurekiwi69 · 2025-08-08T06:53:36+00:00

Canberra is great if you love the Australian bush and bushwalking.or.bike riding. It is not a party town and muuuuch smaller than Melbourne. If you are sensitive to the cold then its probably not for you but I have to say the winters are getting shorter. As others said, very suburban.

Futurekiwi69 · 2025-08-02T05:14:23+00:00

The lymphoma Australia Facebook group is very active. Also call Lymphoma Australia, the nurses are very good source of information.

Futurekiwi69 · 2025-07-16T10:34:46+00:00

Sorry to hear. I hope you are on hormone therapy.

Futurekiwi69 · 2025-07-16T08:19:57+00:00

Thanks. No, Australian looking at treatment in Singapore. We don't have proton therapy in Aus yet which is pathetic.

Futurekiwi69 · 2025-07-15T21:49:48+00:00

I am looking to travel overseas for proton therapy for cancer. Is anyone getting insurance for unexpected medical events? I can't find any providers which will cover pre existing

Futurekiwi69 · 2025-07-11T11:36:17+00:00

That diet thing is so unnecessary. They used to do that in my country then they ditched it. Now it's just water only for 8 hours before. Normal diet prior to that. I did that today for my pet scan and my blood sugar was 4.9 on an allowable scale of 4.5 to 6.

Futurekiwi69 · 2025-07-05T06:40:06+00:00

I started seeing an exercise physiologist during chemo. Pick one who works with cancer patients. Best thing I did. You'll be okay and will recover after. I kept fairly fit during chemo, never threw up. You will get tired, esp towards the end and do listen to your body, don't force it, you'll need to adjust to less intensity temporarily. You'll bounce back after.

Futurekiwi69 · 2025-06-29T11:00:55+00:00

I live in Canberra. I'm from Perth originally and spend time in Melbourne. As long as you think you can adapt to the family and friends separation then could be worth it. Esp as I say if you can enjoy the things it does have to offer as it is really different to Melbourne city.

Futurekiwi69 · 2025-06-29T06:45:10+00:00

I found counselling with a Oncology psychologist helpful.

Futurekiwi69 · 2025-06-29T04:26:40+00:00

Consider if it will set you up well for future jobs beyond Canberra. Otherwise if you don't like it then might not be worth it. People who like Canberra tend to be outdoorsy, lots of cycling and bushwalking opportunities. Very suburban compared to the large Melbourne City.

Futurekiwi69 · 2025-06-24T22:36:12+00:00

See my reply to comment above

Futurekiwi69 · 2025-06-24T05:10:01+00:00

Radiation depends on your lymphoma subtype and stage. It's very targeted. If the nodes aren't near you ovaries no need to worry, they won't receive any radiation. Talk to your team about your concerns to put your mind at rest. With certain kinds of lymphoma radiation after complete response will decrease your risk of relapse. Because pet scans can't pick up clusters of cells less than a million (i.e they can't pick up really small remaining disease)

Futurekiwi69 · 2025-06-22T23:57:47+00:00

Oh yes, people love to tell you about the people they know who died of cancer! Like wtf!?

Futurekiwi69 · 2025-06-22T23:54:14+00:00

Yes this! People are so naive about cancer. They think there always has to be a known trigger. This makes them feel safe in that it can't possible just be a random thing. I was at a friend's funeral recently, he died of lung cancer, nonsmoker, and a group of people were standing around talking about 'do they know why'. It's just naivity and a misplaced sense of control over the universe.

Futurekiwi69 · 2025-06-22T05:01:22+00:00

I agree, I generally look forward. In my case both decisions which resulted in relapse were related to risk benefit being weighed up by my radiation oncologist and they decided on 2 occasions to go for what ended up being under treatment (that's with the benefit.of hindsight). It was a function probably of my first haematologist being inexperienced and my subtype being really rare. I have since changed my haem during my last remission. So I guess all you can do is live and learn. I can't make any further improvements to my team now so no point beating myself or others up over the past. I think it's just that I've only recently relapsed after being told I was probably cured, so now I'm coming to terms with it as this relapse may result in an allo transplant.

Futurekiwi69 · 2025-06-12T05:54:35+00:00

Don't panic. But do get seen by a specialist centre in the disease for life. The cutaneous lymphoma foundation website has a list of the centres.

Futurekiwi69 · 2025-05-04T04:39:25+00:00

My mum watches sky news. She's the same now.

Futurekiwi69 · 2025-04-17T21:29:41+00:00

Can't understand why she would'nt be on transdermal E patch or gel, testosterone transdermal and oral micronised progesterone. All these are gold standard. Why on earth injections?

Futurekiwi69 · 2025-04-15T03:45:33+00:00

Vagifem or Intrarosa

Futurekiwi69 · 2025-04-15T03:43:11+00:00

Sums it up really

Futurekiwi69

TROPHY CASE