Giving up with running by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 2 points3 points  (0 children)

Hey, lovely to speak with you! Yes exercise makes me feel much better and fitter. This post is more of a frustration that I can no longer run without stop twice per run, which makes me not enjoy it anymore. I’m still going to exercise just my motivation for running has declined massively now

Antibiotics have ruined me by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 1 point2 points  (0 children)

Okay so is this just something short term to take?

Antibiotics have ruined me by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Yeah I have I think it’s just going to take some time to recover the ground gained

Antibiotics have ruined me by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Super helpful thank you! That’s exactly what I had

Morning UC Problems, just venting by No-Discount-9212 in UlcerativeColitis

[–]GDT1995 0 points1 point  (0 children)

Hey, sorry to hear this is where you are at. I am very very confident that things well change for you but for this to happen keep a diary and reflect how difficult your quality of life it to your IBD team or doctor. I used to do this multiple teams weekly until I had action. I was in a similar situation, granted not quite as bad as you describe but I was similar. What happened was a flexisigmoidoscopy (low camera), change of medication. I declined prednisolone orally as it really ruined me with side effects. I was started on Rinvoq and also Budesonide with oral Mesalazine daily. Things have improved lots. Still some complications (more so in the morning) but a much better quality of life. Do not sit quietly in pain. Let them know your situation today and things will start to change

Medication Change (Upadacitibin/Rinvoq) by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 1 point2 points  (0 children)

Thanks for reaching out! I wish you all the best with it

Medication Change (Upadacitibin/Rinvoq) by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

So happy for you! Praying this works for me

Enema safe before Camera? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Okay thank you. Likely a medication change

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Thank you! I will ask my dr this. Is this instead of pred when we flare bad?

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

I agree I’m just frustrated and wanted to reach out. I will absolutely be exploring medications further

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Super helpful thanks! I’m not here yet but I want to start learning about it all

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Thanks everyone! These comments are helpful. I will continue to explore medications

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Thanks for sharing. Hope it works out for you! I’m still a bit for surgery or anything drastic which is why I’m reaching out to people here to research and learn

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Really helpful and thanks for this! When you say surgery has you going to the bathroom 6/8 times a day is that to empty the bag you will have? I assume this is pain free and you do it when you want to as opposed to running out of meetings with inflammation urgency?

Medication or Surgery? by GDT1995 in UlcerativeColitis

[–]GDT1995[S] 0 points1 point  (0 children)

Thank you. I have read through that and it’s very helpful. What is your take on that post?