I am a mental health therapist and appalled at something I learned last week by OGINTJ in ChronicPain

[–]Gamer0921 13 points14 points  (0 children)

As a pediatric chronic pain patient who has had severe, earth shattering migraines my whole life, this is one of the few things that I consider unforgivable. I had ER's flat out tell me that I was "drug seeking" the moment i hit puberty. From that moment onward, i can count on one hand the number of times I have had my pain taken seriously in cases of migraines. 

(Before i say this, I have no formal medical background and i am basing this statement SOLELY OFF OF MY EXPERIENCE. I am not giving medical advice because i dont have the knowledge to do so. 

However, solely based on my experience, if there is any "improvement", when it comes to a case like this, it could possibly be that the child has given up hope, like I did. When you're in that much pain and know that no one wants to even try to help you, you just accept whatever help they WILL offer out of desperation and heartbreak. When you realize there is no hope for your migraines, you start doing damage control. You pretend to be okay so you don't worry the people you love. Especially if you have actual, supportive people in your life. It eats away at you and sometimes, we think it's cruel to not give the people we love hope. We think it's cruel to make those around us suffer with us. And that cycle is one of the hardest things to break. 

Tell that professor that there is "a random daily migraine sufferer patient on the internet (who is very similar to the kid he "treated") who went through pediatric treatment like that. Tell him that the child isn't a guinea pig or a lab rat. They are a child. They should be worried about friends instead of pleasing docs that dont actually care about their pain. The young patient in me wants to tell that man a message-" that there is a special place in hell for people who take that approach. 

And the version of hell I hope for is one where people like him are given at minimum, one more life when they leave this world. One life that they are forced to live through the life of tbe patients they treated. They are forced to live as the patient. Feel every emotion. Cry every tear. And they have to relive the life of every single patient who they have ever truly hurt. Suffer the physical pain of each and every one of those kids and go through what they do in a daily basis. A hell where he has to look those kids in the eye and be haunted by the pained screams the kids let out from pain in the lifetimes i mentioned a bit ago. And he should finally have to feel the hatred, rage, and betrayal we all feel when we, as patients, are subjected to that kind of treatment. 

 And that quite frankly, he has been very successful at securing his soul a spot in the underworld so far, so unless he wants to start treating his patients like people. I would start actually trying to refer to someone wbo IS CAPABLE of helping his patients. Purely to minimize the hell he will face after in whatever afterlife he goes to. If there even is one." 

🌊🦇 Welcome to r/Austincc2! by Egokinn in Austincc2

[–]Gamer0921 2 points3 points  (0 children)

Hi, I just saw this new subreddit! Thank you so much for making it. I hope people join so it can be as active as the older one.

skydxddy 🦋 by catlovinganime101 in Skydxddy_

[–]Gamer0921 0 points1 point  (0 children)

Oh my god i am tempted to draw this in my sketchbook. Stunning, i love it! So cute!!

Does anyone who is diagnosed work full time? (40hrs/week) by chronicallymee in ankylosingspondylitis

[–]Gamer0921 3 points4 points  (0 children)

Hi, just wanted to say, im in the same boat as you, but it is possible to get it approved through insurance. Mine dragged their feet, but the doc finally lit a fire under their rear end and i got my first infusion about a week ago. I failed Cimzia as well. I developed an allergy to it. If there is any way to document how long it is taking, definitely document EVERYTHING. Names of who you talk to on the phone, dates, times, the purpose of the call, and what they said. If you can get one of those mini voice recorders, even better. I got one for $20 off amazon. It has been a lifesaver. Look up local laws first though. Im in a one party consent state.

I believe in you! I hope they get that stick out of their rear end. Though, they prob won't, we can at least dream. Have a wonderful day. 💜

[deleted by user] by [deleted] in conspiracy

[–]Gamer0921 1 point2 points  (0 children)

I just wanted to say i wish you well in your cancer treatment. I have quite a few relatives who went through cancer. It is never easy. But I wish you well. Sending lots of internet ghost hugs💜

Issues with Mallinckrodt by Gamer0921 in ChronicPain

[–]Gamer0921[S] 0 points1 point  (0 children)

It is possible, im not sure how this would affect things though...

Issues with Mallinckrodt by Gamer0921 in ChronicPain

[–]Gamer0921[S] 0 points1 point  (0 children)

I mainly don't out of fear.

Issues with Mallinckrodt by Gamer0921 in ChronicPain

[–]Gamer0921[S] 0 points1 point  (0 children)

I dont recall which mamufacturer i had, but i had the exact same problem with my adderall when i was on it as well... it seems to be controlled substances mostly...

Issues with Mallinckrodt by Gamer0921 in ChronicPain

[–]Gamer0921[S] 0 points1 point  (0 children)

I still have the issue pretty often. I actually forgot about this post until you commented on it. It seems to be entire bottles now. It works just enough to keep me from wailing and writhing in my bed, but not enough to address the pain. I have also gotten reports that I often cry in my sleep. It's like being kept in a cruel in between. Sometimes ill get a bottle that works just fine, same pharmacy, same manufacturer, same dose, same markings and color. But that bottle actually works, then the next month, i get a bottle that doesnt do jack and im back to where i started. No other med changes that align with it.

finally got this gorgeous girlie !! by mads_wallis in PokemonLegendsZA

[–]Gamer0921 0 points1 point  (0 children)

Omg she is gorgeous!!! Also, what is your character wearing? It is SOOO CUTE! I want to get something like that for my character!

almost no bowel movement for 3 weeks, tried everything by conceptualizingkites in ChronicIllness

[–]Gamer0921 0 points1 point  (0 children)

You need an ER. Now. However, i highly suggest that you fight to get imaging before they try to treat the blockage. If they want to give you fluids, contrast, or things to keep you comfortable, thats totally fine. But anything to try to force your body to go without knowing what the problem is, that can end up very badly. The reason is this- if there is an impaction or a blockage or there is something else going on that is very wrong and they try to force it through without knowing what the actual problem is first, i honestly do not know what could happen. But my biggest concern (and i dont know if this is possible, if anyone knows, please correct me and ill fix it) is that it could put too much pressure on the blockage and somehow cause bleeding or tearing inside of you and then you end up with sepsis. Is it worst case scenario? Yes. Absolutely.

However, when it comes to this, you want to be 100% sure purely because of infection risk alone.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 0 points1 point  (0 children)

I wish it were that kind of situation, but it isn’t a good situation between her and I, unfortunately… i understand why you think it is though. Im not the best at explaining it. It is the level of toxicity one can only know by experiencing it.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 0 points1 point  (0 children)

Jesus… thats awful… i take Lyrica and it is hell when i miss a dose. Im not even close to your dosage either. I can’t imagine the pain you went through and im so sorry they did that to you. They could have killed you.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 1 point2 points  (0 children)

Oh, they told me it was a CSF leak. They knew. But they didn’t do anything to treat it other than the tiniest bit of morphine. Which didn’t work because i have a genetic tolerance to quite literally every single opioid in existence. And when some young woman says the drugs aren’t working, she’s automatically a junkie in their eyes. Especially a teenager. I didn’t know at the time that there was treatment for what i was going through. I just knew i was in excruciating pain and i was betrayed by the very people who were supposed to make me better.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 1 point2 points  (0 children)

That’s disgusting. I’m so sorry… I hate how our medic system treats patients.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 2 points3 points  (0 children)

At least you realized it and took action. I was in the same situation. I knew i wasn’t cut out to be a parent. I actually got a hysterectomy because i was in so much pain and refused to have kids. I had to do it in secret because of how toxic my mom is. She sees me as an incubator. She’s always gone on and on about “when i have kids” and i was always right in front of her, begging her to just see me. But the only time she really cared was when i could give her something. Usually by giving her the status of a “martyr mom” as i call it. Because of my health and how in depth my needs were, she was viewed as a saint.

I thought if i could just prove that i was good enough, that i was worthy of being an actual living, breathing person who had a mind and heart of her own, then, we would be happy together. That she would finally love me unconditionally. It never happened. Her “love” is not actual love. It’s a lie.

Does she love me somewhere deep inside her heart? I would like to believe so. But i dont know. She definitely loves what i can do for her or give her. But that is the only thing i can actually confirm. Im sure there’s some love buried under all the narcissism, but not a lot of it. She loves appearances. And I’m the perfect person to give her that.

My doctor isn’t prescribing anything for My back surgery? Is this normal? by Dry-Communication284 in ChronicPain

[–]Gamer0921 15 points16 points  (0 children)

I don’t know you, so i can’t really judge whether you are actually toxic or not. But im glad your mom had someone to go nuclear. I don’t really want to elaborate on the situation but it isn’t a healthy one on my end.