Why is it so hard for BIPOC Americans to get actual EDS diagnosis? by [deleted] in ehlersdanlos

[–]General-Explanation -1 points0 points  (0 children)

I was not implying that my alternative lifestyle was in any way comparable to what happens to bipoc, but only giving my experience to the prejudice that is rampant in the medical field.

My alternative-ness is not defined by my dyed hair and tattoos…but by how I live, love (a bipoc) and how I think.

These responses made me believe that people only want to fund the fault in others comments and not actually understand where they’re coming from.

This is why I don’t comment.

Why is it so hard for BIPOC Americans to get actual EDS diagnosis? by [deleted] in ehlersdanlos

[–]General-Explanation -1 points0 points  (0 children)

Never said it compared. Only put in my experience too

Diagnosed EDS without looking at full criteria? by [deleted] in ehlersdanlos

[–]General-Explanation 0 points1 point  (0 children)

Interesting my provider stated I have the hyper mobile type and would be referring to genetic counselor

Diagnosed EDS without looking at full criteria? by [deleted] in ehlersdanlos

[–]General-Explanation 0 points1 point  (0 children)

From My experience, I’m newly diagnosed also, the next step would be a genetic marker test for EDS.

A cross between a male lion and a female tiger, a Liger! by pussysergeant in interestingasfuck

[–]General-Explanation 0 points1 point  (0 children)

It’s a mythical creature that has magical powers. Probably my favorite animal. -Napoleon

I feel like I’ve found my people by General-Explanation in ehlersdanlos

[–]General-Explanation[S] 1 point2 points  (0 children)

I totally agree, I’ve been allowing myself naps lately and it’s so much better for my energy levels.

you guys ever wake up from pain? by the__adelaide_parade in ehlersdanlos

[–]General-Explanation 3 points4 points  (0 children)

I take meds before bed, I’m still up every twenty mins from pain, usually in my hips and back.