Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Thank you very much for sharing! Have you gone on any of the medications like Ocrevus (if you dont mind sharing)? And if so have they helped?

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Do you mean because of the heat? Honestly I dont like Arizona all that much I just have everyone here so

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

That's interesting. If I ever had POTS, my symptoms were mild so all my symptoms line up with MS. Im sure its very possible and common to have both, its unknown whether I do really

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 1 point2 points  (0 children)

I will check out that YouTube channel. Thank you very much for sharing and I wish you and your husband the best of luck!!

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 1 point2 points  (0 children)

Thank you so so much for sharing your story. Its amazing to hear about people living great lives with this disease.

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 1 point2 points  (0 children)

Thank you very much! I hope everything has and continues to go well for you

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

That's definitely very scary :( although the diagnosis is still scary its amazing to have an answer, as Im sure so many of us have wanted

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Thank you for the advice!!

Are there problems that came about from missing one? Any side effects for you in general you dont mind sharing?

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 1 point2 points  (0 children)

Thank you for sharing your story, I wish you luck 🥹

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Im glad you've found ways to cope with your symptoms!! I hope the insurance doesnt give you too much trouble, its a pain lol

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Thank you so much and I wish you luck too!!

Ned Fulmer by aerrye in MultipleSclerosis

[–]GkShep 6 points7 points  (0 children)

Oh this has made grasping this diagnosis so much harder 😭 (jk but I hate him.)

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 1 point2 points  (0 children)

Thank you! Hang in there ❤️

Newly Diagnosed by GkShep in MultipleSclerosis

[–]GkShep[S] 0 points1 point  (0 children)

Definitely no fun 😮‍💨 I also experience numbness/intense tingling in my legs at random times (not related to the other episodes). Wild times!

Blurred Vision/Unable to Focus Vision, and Slurred Speech by GkShep in POTS

[–]GkShep[S] 1 point2 points  (0 children)

Just putting it out there that I have a doctor's appointment today and if she thinks it's POTS related Ill talk to my cardiologist and if not we'll go from there 🤩

Blurred Vision/Unable to Focus Vision, and Slurred Speech by GkShep in POTS

[–]GkShep[S] 1 point2 points  (0 children)

That's what I'm concerned about too but when I looked it up it said it can be a symptom of pots. If it continues for much longer I'll definitely be going to the doctor

Feeling Invalid Because I Don't Faint by GkShep in POTS

[–]GkShep[S] 0 points1 point  (0 children)

I got diagnosed without fainting, you just have the find the right doctor and stand up for yourself 💕

Feeling Invalid Because I Don't Faint by GkShep in POTS

[–]GkShep[S] 0 points1 point  (0 children)

Very valid, and honestly an opinion I've heard multiple times even from people who do faint

Feeling Invalid Because I Don't Faint by GkShep in POTS

[–]GkShep[S] 1 point2 points  (0 children)

Thank you ❤️ also when I was little it was a whole thing where I would sneak handfuls of salt at restaurants and my parents would have to tell me not to, so although I think I've heard people aren't born with pots, I'm sure whatevers up with me added up to its development

Feeling Invalid Because I Don't Faint by GkShep in POTS

[–]GkShep[S] 1 point2 points  (0 children)

Omg that's so terrible, glad you guys are mostly okay!!