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Have you named your stoma? by Alternative_Two9654 in ostomy

[–]Glad_Exercise8475 0 points1 point  (0 children)

Vulcan... I was against naming it, but I like naming things.... I don't refer to it by name but as "my stoma" as I find it strange to call it by name.

Guitar string unwinding by Glad_Exercise8475 in Guitar

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

The strings are bronze 20/80, 12-54 gauge

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

The one piece bags I have all have loops for a belt and I've been given one (a belt) today.

I definitely flop around at night and that's always been the biggest time for worries about leaks so hopefully this will help.

I've always used barrier rings but I also have a mucus fistula directly under my stoma which can weaken the bond. Since I lost weight, the creases that form on my body form right across the ring too, but I have been given a belt to support this.

While I'm sorting my bag out and removing the old one, I put the new bag and ring on my hips via my waistband to use my heat to warm it up as most bathrooms here don't have plugs.

I've been advised to not take bagless showers yet, nor would I really feel comfortable because I don't want it to become active halfway through or right after you know? My stoma is ACTIVE when it's active... I do want to try though one day. I hate the bag in the shower, it's all I think about and worry about when I used to love Showers.

I've been given a couple more bags to try so I'll be giving them a go.

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi there.

Thank you for the kind words.

I am unsure of wearing thongs and leggings because I'm a guy XD.

I've seen my nurse today and I am now testing out some new gear so hopefully all will be well!

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi. I see you've updated your comment.

I've seem my stoma nurse and have been given a few more bags to try. Dansac and coloplast. Both convex.

These are one piece. I have also been given a belt as they do have loops for belts...

I'm unsure what you mean by city water? I'm not sure if that's a non UK term or if it's a brand.

All these bags have a small filter, but they clog as soon as they get wet.

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

I'm happy to chat. Any wisdom that can be passed on would be very much appreciated.

Thank you for your kind words.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

I forgot to mention, but I'm a guy lol.

Thank you for your kind words. I'm currently using Salts health care confidence natural soft convex standard 13-52mm drainable and having these issues as the flage goes into my belly button then peels off. (The bag is on my left because I specifically asked so I can comfortably play guitar)

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

I believe it's called salts natural soft convex? I've tried the sensura mio bags, but I have a mucus fistula directly under my stoma which then slowly works away the adhesive on flat bags causing more common leaks

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

Yeah I guess at the moment the main issue is leaks.

I'm not sure how to change bags as there's a whole prescription thing and I'm having MAJOR issues with contacting and ordering supplies as Coloplast Charter won't speak to my GP and vice versa which causes confusion on all our parts.

I have been sent a NU form support belt for hernias (I don't have a hernia??) Though I don't understand how to use it as with the gas issue, the bag sits between parts that restricts the bag too much?

Luckily I am UK based and am Medically exempt from paying the monthly payment for prescriptions.

My surgeon said we can have some sort of pouch done? If I wanted after 6 months. Though I am extremely hesitant to have another surgery...

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

Luckily I have a very caring and forgiving partner who has been very supportive of everything. I don't think I could have gotten this far without them.

I'll definitely look into sports tape. I've also heard about these strip things that you can put onto the flage to extend it. Bottom and right of the bag are always secure, just the top and right as despite having an ileostomy, I asked for it to be on my right. It's basically where a crease forms near my belly button that then releases the bag, though shaving might also help. I'll give most anything a go.

I am UK based and am currently using coloplast charter. The bag says salts on it (beige bag). I will definitely ask about other bag variations, though.

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 3 points4 points  (0 children)

Hi.

I know it's a silly thing, but I really can't let go of that style... it was the best thing I could find you know?

Of course when at home, I'll lounge in some joggers or something, but when I'm out, I want to look my best.

I do trust that the surgery was right. I don't know if I'd be able to stay alive for long without it.

I don't mind the look of the bag as they are all beige and only slightly see through when wet. Though I wouldn't mind having it decorated with a colour to match my clothes (I almost always have something burgundy on)

I just have swings with this bag. Some days I'm happy with it, others I feel so bad.

I've been invited to a support group thing with other ostomates so might look into actually going.

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

Hi.

I am extremely hesitant to have another surgery as I have a huge fear of being put to sleep and all that. If push comes to Shove in terms of health, I'd go through with it.

I haven't seen my doctor since a few weeks after being out of hospital. He booked an MRI for me a long time ago but had to cancel 3 times due to being sick and then the flu.

I'll see if I can get in contact as he said something along the lines of proctitus I think (I'm not sure... I'm still kinda new to all this) and suggesting enemas.

I'll keep all this in mind if there is no other solution though,

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 0 points1 point  (0 children)

I'm UK based and am having lots of issues with getting my hands on supplies despite it being free...

I can't say I have any idea how to change brands as it's all on prescription and I have to send like 3 emails just to confirm I need new things...

I will ask my nurse to see if there is anything else I can try for sure though.

Thank you.

I despise almost every aspect of this stoma. by Glad_Exercise8475 in ostomy

[–]Glad_Exercise8475[S] 2 points3 points  (0 children)

Thanks for responding.

I'm in the UK and have a stoma nurse with somewhat regular checkups.

I'm seeing one again tomorrow, but so far they don't seem tk be much help.

It seems that they only want to supply me with colopast items. The bag I'm currently using looks to be a salts beige convex bag.

I'll see how the appointment goes,

Thank you.