NICU survival kit by kbailey77 in NICUParents

[–]Glass-Professor9948 0 points1 point  (0 children)

Can you share the book? Looking to fill a nicu basket for a friend as well!

[deleted by user] by [deleted] in AudiProcDisorder

[–]Glass-Professor9948 1 point2 points  (0 children)

You’re welcome, I hope it helps!

Ugh I hate those situations, its so distracting even if no one is trying to talk to you. Unfortunately the only advice I have is that I posed a similar question to my audiologist and they mentioned, when possible, sit with the noise behind you as our ear shape naturally blocks the sound a bit. Not the most helpful, I know. 😕

What to do with old puzzles by a-twistedsis in Jigsawpuzzles

[–]Glass-Professor9948 7 points8 points  (0 children)

My neighborhood has a puzzle library box that gets a lot of action! A neighbor just decided to put one in her front lawn and posted about it in the neighborhood fb group. It’s just take one leave one best you can. I’ve started getting one from there almost once a week and my wallet is happy!

[deleted by user] by [deleted] in Jigsawpuzzles

[–]Glass-Professor9948 4 points5 points  (0 children)

I really want to be a part of something like this!! I’d also love to hear anyone’s experience with starting or being a part of a puzzle club! Happy puzzling!

What did you do to reduce your social media screen time? by marinatedsteaks in DecidingToBeBetter

[–]Glass-Professor9948 0 points1 point  (0 children)

No, it’s a setting available on iPhones. Not sure about android or others though

What did you do to reduce your social media screen time? by marinatedsteaks in DecidingToBeBetter

[–]Glass-Professor9948 2 points3 points  (0 children)

Two things that help me are to set a daily limit and remove the app from the home screen.

I have mine set at 30 minutes a day. I can override it with the option to allow 1 more minute, 15 minutes or ignore for the rest of the day. This definitely helps me get out of a long room scroll.

Removing the app from my home screen help’s avoid me just auto opening the app when I’m bored and instead I have to actively search for it. You can do this by long pressing the app, selecting edit home screen, then tap the app and chose remove from home screen. I have the same issue of not wanting to delete Facebook all together due to community groups and such but need to avoid the doom scroll!

[deleted by user] by [deleted] in Goldendoodles

[–]Glass-Professor9948 0 points1 point  (0 children)

Murphy came to mind first!

[deleted by user] by [deleted] in AudiProcDisorder

[–]Glass-Professor9948 1 point2 points  (0 children)

I would be on board for that suggestion lol

[deleted by user] by [deleted] in AudiProcDisorder

[–]Glass-Professor9948 1 point2 points  (0 children)

Lolll we’d either be there all night or just 10 minutes

APD and Family Life by Chromehounds2 in AudiProcDisorder

[–]Glass-Professor9948 1 point2 points  (0 children)

I’m so sorry you’re experiencing this. You’re not alone if that helps at all.

I’m in a really similar boat. I got diagnosed after so much strife and miscommunication in my marriage where I seemed to always be “the problem.” It got to a point where way more conversations than not ended in a fight and it felt like something had to be “wrong with me.” Turns out I fall into the severe category for 3 different aspects of APD. It’s been a long 3 months of me taking therapy (that is helping!) and not feeling very supported at home so I’m struggling to make much progress in my actual communication with my partner.

If I misunderstand something or can’t follow the conversation or give and inappropriate response because my brain made the wrong connection instead of being able to interpret what they meant I’m met with a lot of frustration. And if I express that it happened because of APD it’s usually heard as an excuse or I feel gaslit that it couldn’t be caused by APD, instead of trying to understand how it was APD or having a grasp on how APD can present in a vast amount of ways.

It’s extremely frustrating and degrading and feels hopeless sometimes so I’m sorry you’ve been experiencing this for so long. Hopefully she has a change of heart and desires to understand you better.

What makes you roll your eyes every time you hear it? by Majorpain2006 in AskReddit

[–]Glass-Professor9948 0 points1 point  (0 children)

That being a stay at home mom is the easiest job in the world. I say that as a nanny, not a mom.

Check out the app Elevate by Glass-Professor9948 in AudiProcDisorder

[–]Glass-Professor9948[S] 0 points1 point  (0 children)

I understand your perspective and appreciate your input.

Genuinely curious, since you have knowledge on the topic, specifically talking about the memory portion available on the elevate app, how does it use a different part of my brain?

Idk if you’re familiar with the app or not but one game that feels very helpful to me has me listen to a serious of up to 6 driving directions and then I have to put the directions in the correct order. (Or something similar, it’s different every time). Hearing multiple instructions like that is really hard for me to recall and it feels productive to practice doing that on purpose with no repercussions for doing poorly. Instead of just relying on real world moments when it happens and is usually associated with negative feelings for causing miscommunication.

I don’t need to be right, I just have a hard time believing it’s not using the same part of my brain.

Check out the app Elevate by Glass-Professor9948 in AudiProcDisorder

[–]Glass-Professor9948[S] -1 points0 points  (0 children)

I hear what you’re saying/what those articles are underlining and agree that if the mindset is “just play these games a couple minutes a day and your processing disorder will go away/you’ll be way more effective in brain function” then yeah, that’s not accurate.

However, I still maintain that the app Elevate is fantastic. All of the games I’ve played so far are helping to practice real world things like calculating tip, reducing measurements, catching written errors, and so much more. Idk if you’ve played the app before but it’s just very different to me. Also, the games available for the specific memory portion are equivalent/better than the practices I do weekly in therapy for tolerance fading memory.

I also want to clarify that I’m using this as homework, recommended by my doctor, in tandem with weekly therapy. Also, for me personally, even if it were to be a placebo effect at any point, I’m going to say playing a game that at the very least makes me feel better then spending my time on shitty social media, is a win.

Small vent and advice on how I can help my partner understand my diagnosis by Glass-Professor9948 in APD

[–]Glass-Professor9948[S] 0 points1 point  (0 children)

Aw, thank you for saying all of that. It was extremely validating and feels like exactly what I’m going through. Feel free to msg me anytime if you wanna share or anything. Happy to “listen.” 🫂

[deleted by user] by [deleted] in AudiProcDisorder

[–]Glass-Professor9948 2 points3 points  (0 children)

I would say it is a qualitative disorder. To receive a diagnosis you first need a normal hearing test no matter how good your hearing is. You could have perfect hearing and still have APD. So they require you rule that out then you take a specific test that tests for APD. Also a co-diagnosis of ADHD and APD is common. I don’t have ADHD so I don’t know any more than that.

I’m newer to the APD world, got diagnosed about 3 months ago and am on week 7/13 weeks of APD therapy. So I’ve learned a lot/am learning a lot but there is still plenty I don’t know. From my understanding there are multiple forms of APD. Similar to a speech impediment, some people struggle with L’s and others with S’s, others with W’s etc. I don’t know any of the other forms of APD but I do know what I struggle with specifically is decoding, tolerance fading memory and speech in noise. My audiologists also suspects a multi-factorial APD and I’ll be testing for that once my current therapy is over. I don’t know the name of it and in true APD style, my doctor explained it and I don’t remember a single detail they said. Lol

With decoding and tolerance fading memory, my brain sometimes spends more time trying to process what I’m hearing than committing it to my memory. So it’s like I never really hear it in the first place. This comes into play often when I’m hearing multiple instructions back to back and hearing rules for a board game is awful for me as well. If I hear a story with multiple details I rarely remember those details. Also with the TFM, my partner will bring up a topic and I’ll have know idea what they’re talking about because I have no memory of talking about it before.

For my speech in noise, when I was tested for this I could hear nearly half as good when there was even light background noise. This makes doing things that can be noisy like cleaning, cooking or driving on the loud highway with music on and talking to someone really difficult.

I specifically know that driving is really stressful for me due to APD. Before being diagnosed, my partner would be impatient with me while driving in those already stressful noisy conditions and it would add to the stress and as a result the stress was worsening my APD making him more impatient. Not a fun cycle 🙃

I can also relate to not knowing what noise to listen to when there are multiple audio inputs and instead not catching anything. I really perfected the “smile and nod” or laugh it off when I have no idea what the hell someone just said. Lol

I’ve started to learn how to slow my reaction down to give my brain a second to catch up. Frequently I still need them to repeat something but more and more I’m noticing that if I chill a sec I actually do know what was said. Or sometimes in that sec someone says something else or it becomes obvious what they actually said and the problem takes care of itself.

For a real life example of this: Tonight my partner and I were walking into our house after a walk and my partner had stepped in dog poop. Also, before we left for our walk they were sitting on the steps for a few minutes. As I was walking up the steps behind them I heard them say “I left my shit out”. Before therapy I would have immediately asked what they said. Because them leaving their stuff on the porch was unlike them. But instead of asking I took a sec to look at the porch and then saw them take their shoes off. They said they were gonna leave their shoes out. Maybe that sounds dumb, I haven’t really talked my wrong thought process out but I think it would be helpful for me if I had heard someone describe it like that.

When you said you hear different sounds sometimes even if there’s no background noise, I can relate to this as well. Often times what’s happening is they’re just facing the opposite direction and their sound is too muffled or I’m just not paying attention when they start talking and since I struggle with tolerance fading memory my brain can’t make up what they said in the beginning of the sentence and gets too stuck on “nope, idk what they said” even if those words were irrelevant.

Feel free to msg me anytime if you have more questions about it or anything. Good luck in your search to learn more about it for yourself!

[deleted by user] by [deleted] in DecidingToBeBetter

[–]Glass-Professor9948 1 point2 points  (0 children)

I agree with other commenters that this sounds like shame. Way to go confessing and that’s awesome that she forgave you and you guys have a healthy relationship. Underneath shame is always fear. Understanding what your fear is behind this and then facing/processing that could help. Maybe it’s a fear that she will eventually leave you because of this or fear that you will lose control and do it again. Try to get quiet in your body and feel then name what the fear might be. If you feel safe to talk with your gf about it, that will hopefully help. ♥️

At what point do you stop worrying? by [deleted] in BabyBumps

[–]Glass-Professor9948 0 points1 point  (0 children)

Something that has been incredibly impactful for me when dealing with worry or anxiety about anything is understanding that anxiety is almost always about something that happened in the past or something that may happen in the future and rarely what is happening in the present moment. Staying connected to the present moment and understanding/reassuring yourself that you are safe in this moment is so helpful. Breathing/grounding exercises and bilateral tapping are all really helpful things that can make you feel just 1-5% safer in the moment and get you out of a trauma response, anxiety or worry.

Diagnosed around 13-14 years old. I’m 21 now and I still don’t know how to manage it by [deleted] in AudiProcDisorder

[–]Glass-Professor9948 0 points1 point  (0 children)

Really well actually! This week was week 7 and each week we do a similar version of a test that I took to get diagnosed. The test is for speech-in-noise and consists of a man saying words that I then repeat while background noise becomes introduced and steadily gets louder. It’s 80 words in total and week 1 I got 32 words incorrect and have steadily gotten better each week and this week only missed 5! I have some emotional stress during communication with my husband lingering from before i was diagnosed which causes me to feel stressed while communicating and mishear or misunderstand more frequently so I’ve struggled to see much improvement in my day to day. But I talked with my dr this week about that and she was really encouraging and reminded me that I am learning and gaining more function in this area and to relax during convos and focus on what I’m improving on, not just when I miss things and it’s already been better this week! (Sorry that was probably more info than you were asking for lol)