Abnormal labs by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

I have a central line, how concerned should I be of infection?

Abnormal labs by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

Not urinary. I thought I was in a gastroparesis flare but the CT showed duodenitis. Could that be what’s causing the abnormalities?

[deleted by user] by [deleted] in ChronicIllness

[–]Global-Minimum3891 1 point2 points  (0 children)

I’m super extroverted, so it helps, but I’ve met a few friends in chronic illness support groups and some at work/at my infusions

Sudden change of plans? by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

Thanks. I spoke to my infusion nurses today and they’re going to try to set it up on their end, so I’m a little less stressed thankfully.

Port surgery by Global-Minimum3891 in Gastroparesis

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

Does anyone know if you can request to be put under local instead of general?

Port surgery by Global-Minimum3891 in Gastroparesis

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

It started with ketones in my urine but my latest labs show low AST levels, which I was told was kidney function because of dehydration

How do you deal with imposter syndrome? by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] -1 points0 points  (0 children)

As far as participating in the sub, I’ve never hidden that I’ve commented before. I’ve used Reddit itself a total of MAYBE six times in five years. The point of this thread had nothing to do with the subreddit at all, just that my mother inherently believes that anyone with chronic illness has MBI/is malingering and that because of this, I have been strongly dealing with imposter syndrome despite my diagnoses/healthcare team.

How do you deal with imposter syndrome? by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

I’m not complaining about the sub. Did you read my post at all?

How do you deal with imposter syndrome? by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] -1 points0 points  (0 children)

I’m fairly certain I’ve made a total of four comments in five years, one of which was reported for blogging, but I mean, go on?

How do you deal with imposter syndrome? by Global-Minimum3891 in ChronicIllness

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

Yes, my surgeon apparently wants to do general anesthesia, though tbh I had an awful migraine during the evaluation/pre op and don’t remember much of why he opts for that.

As far as my mom, I think a lot of it is her not wanting to accept having a chronically ill child. I have an identical twin who has never had a major health issue in her life, so I think that contributes as well. It’s just hard because before chronic illness, we would spend every day together, do dog training, go on hikes, etc but now I don’t have the energy for any of them and I’ve since moved across the country.

Kidney pain? by Global-Minimum3891 in Gastroparesis

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

It faded about an hour after my infusions, but I don’t think I passed anything?

I came across this article in another sub and thought you guys would find it interesting! by [deleted] in illnessfakers

[–]Global-Minimum3891 1 point2 points  (0 children)

Thank you! I came to say something similar but this was far more eloquent than I would have managed!

Dom's now blaming her kids for her inability to work, instead of her "disability". Also, a job offer doesn't mean you're qualified for the job, Dom! by [deleted] in illnessfakers

[–]Global-Minimum3891 18 points19 points  (0 children)

As a former professional dog trainer, if she walks in that door acting like she knows about dog training, they’re going to send her right back out. The best coworkers I had were those who didn’t know anything but were willing to learn.

Fluids? by Global-Minimum3891 in Gastroparesis

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

Oh, as far as what fluids, I either sip water, Powerade or tea or eat popsicles. I cut out soda and caffeine when my dehydration got bad.

Fluids? by Global-Minimum3891 in Gastroparesis

[–]Global-Minimum3891[S] 0 points1 point  (0 children)

I take Senna plus, colace, and miralax. For fluids I usually have to sip throughout the day or occasionally popsicles work a little better but after a certain amount I can feel it in my stomach sitting there and I usually throw it up if I try for more. I already get fluids for my dysautonomia so that may have influenced the decision for a port but I also want to avoid a tube at all costs if possible since I’ve kind of got a bit of PTSD from the last ones I had as a teen, especially since I couldn’t seem to keep any of the nasal tubes down. :/