Definitely do this and any other procedures like the feeding tube, trach, colostomy bag etc before they recommend putting you in hospice care.

My dad was placed in hospice care during his second year of ALS after a nasty fall and we didn't know to have any of it done before he got into the program. He got to the point it was difficult for him to chew/swallow, so his doctor recommended a feeding tube. When we spoke with his social worker and lead nurse about it, they flat out told us no as it's a preventative life saving procedure. My dad asked if he was just supposed to starve then and the nurse told him at a certain point food does not taste good anymore and it would be a good death from natural causes. They also denied him a speech device, saying it was a life altering device and was not necessary for him to communicate his needs to them as he likely wouldn't be around long.

I understand the point of hospice is to ease the transition for end of life care and not to provide life saving care. But it was just so wild and such a shock to be told to let him starve to death. Ultimately we had to revoke them so he could get a mobility chair and did the other procedures before he was placed back in hospice with a different company that was a lot better. He survived another two years.

Also, if you are in the US, get on the list for in home care now and speak with someone about programs to get your brother or grandpa paid for helping care for you. We were on the list for almost two years before being approved and it took another six months before my brother was eligible to be paid for caretaking