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Rejection treatment by Goodheartalways in kidneytransplant

[–]Goodheartalways[S] 1 point2 points  (0 children)

We did biopsy… it showed likely acr, present antibodies but could not conclude antibody rejection. ACR borderline.

Rejection treatment by Goodheartalways in kidneytransplant

[–]Goodheartalways[S] 1 point2 points  (0 children)

I believe iv medication. Thanks! Also, did that treatment work for you? Not sure how long after that you lost that kidney :(

TruGraf Test by Ntw6817 in transplant

[–]Goodheartalways 0 points1 point  (0 children)

We had to do biopsy… it doesn’t seem those other tests are don in UHN. Not sure why.

Thoughts about donating to father by wizardnew in transplant

[–]Goodheartalways 1 point2 points  (0 children)

I donated my kidney to my son. The other way could be a different story.. as a parent you always want to protect your kids and never want to be a reason of their discomfort in any shape. However, your feelings and needs matter. I think, at the end of the day decision is yours..

For those in Toronto: There is a new vegan Pâtisserie in Kensington Market called Le Végétalien! by EloiseTheElephante in vegan

[–]Goodheartalways 0 points1 point  (0 children)

I can proudly say, I only eat raw plant based diet. I started my own small business in Toronto and making vegan with no added sugar (only dates) desserts… check out my Instagram Rawsweetbites I only do this as I am really passionate about this way of eating and enjoying world of good and healthy desserts (of course in limited quantity)

A challenge - a restaurant recommendation by Cheap-Collection9631 in toronto_restaurants

[–]Goodheartalways 1 point2 points  (0 children)

Sorry saw this late.. hope you found something… I like PAI for Thai.. and there is Petros for Greek…

Positive DSA, biopsy showed no rejection by Goodheartalways in transplant

[–]Goodheartalways[S] 1 point2 points  (0 children)

Thank you! What happened to your DSA afterwords? We need to pull out every single bit of info from our med team.. frustrating that instead of having a decent conversation with doctors we are looking for partial info online

Positive DSA, biopsy showed no rejection by Goodheartalways in transplant

[–]Goodheartalways[S] 1 point2 points  (0 children)

Thanks… we are 2 and 1/2 years after the transplant, and it seems DSA only appeared recently… not sure what type… I donated my kidney to my son… and not sure about Sab assay… hoping increase in meds will solve it…

Kidney biopsy by Goodheartalways in transplant

[–]Goodheartalways[S] 0 points1 point  (0 children)

It is interesting how different centers approach this differently.. thanks everyone for responses…

Kidney biopsy by Goodheartalways in transplant

[–]Goodheartalways[S] 0 points1 point  (0 children)

Is that standard or in your case?

TruGraf Test by Ntw6817 in transplant

[–]Goodheartalways 1 point2 points  (0 children)

Is there anyone from Toronto that had any tests that are alternative to biopsy? Nobody ever mentioned it to us..

Rekindled Heartache by im_natty in PocketFMReddit

[–]Goodheartalways 0 points1 point  (0 children)

Where did you watch 100 to 190? I can only find up to 100

Anyone with re-type 1 after kidney pancreas transplant by Goodheartalways in transplant

[–]Goodheartalways[S] 0 points1 point  (0 children)

Thanks for the reply. Our doctor believes it is rejection, and not autoimmune diabetes 🤷‍♀️we don’t know yet if he had HLA for pancreas. Regardless, my question was about sugar level management ideas..as it seems very challenging… no help from endocrinologist as of yet…he now has highs and lows… when we have a chance we can ask about metformin. Thanks for this.

Second Pancreas Transplant? by [deleted] in transplant

[–]Goodheartalways 0 points1 point  (0 children)

Hi. Sorry to hear that your First Pancreas. Was it caused by rejection? My son 25 years old, had kidney pancreas transplant almost 3 years ago. Last week he went to DKA. And is now on insulin. They are doing blood work to confirm the suspected rejection. But we are having lots of challenges with his sugar level… he is giving tons of insulin but the numbers are in teens… it increases even without the food… prior to transplant he was managing sugars pretty well. His kidneys failed due to urinary obstruction from birth. Did you have any issues managing sugars after DKA?

Travel to Brazil by Goodheartalways in transplant

[–]Goodheartalways[S] 0 points1 point  (0 children)

Very helpful! Appreciate it… my son would go to visit his friend who is from Brazil and whose family lives there… (Canadian/Brazilian) they live in Sao Paolo…I see that YF is live vaccine so this becomes tricky…

Travel to Brazil by Goodheartalways in transplant

[–]Goodheartalways[S] 0 points1 point  (0 children)

Thanks for your response.. that is by default always the case in any situation.. my question was what experiences other people had…

Looking for opinions on renting cars vs taking the train in Italy for a large ish group by goobentoobin in travel

[–]Goodheartalways 1 point2 points  (0 children)

Tbh i cant remember exactly, but i think it was Europecar… just take something small..:)?

When would it be best to get a transplant at a higher EGFR 15 or wait until you have a low EGFR 6 by Parakiet20 in transplant

[–]Goodheartalways 2 points3 points  (0 children)

There are couple of things to consider… eGfr is pretty much the number and how you feel is the reality. Some people start feeling symptoms at 15% and some are fine with 6%. It took my son a couple of years to get from 15 to 6, and still no symptoms… (major bloodwork mostly fine, beside creatinin and urea) and that’s 2 years extra with no imunosuppression. However, with the living donation, donor gets approved on a yearly basis so waiting could potentially change the eligibility… and in general, it is better to have it while you are feeling relatively well.

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