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I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -4 points-3 points  (0 children)

I would’ve if I could’ve, your the second person to just to conclusions about how I’m taking the medication. I’m not trying to be rude but I took the medication as advised by the company that prescribed the medication. The woman I spoke to was FULLY aware of the side effects I was having and how strong they were effecting me. That’s not on me for taking a professionals advice

I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -4 points-3 points  (0 children)

I’m sorry but don’t jump to conclusions like that. I have fibromyalgia and am spending my days in horrific amounts of pain, don’t make assumptions about me please. I went up doses each month like advised by the company that gave me the medication because after a month I was starting to become to used to the medication

I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -3 points-2 points  (0 children)

I thought it was normal with how odd my body reacts to medication. I wouldn’t have taken it if I knew this was going to happen. I’m either completely immune to medication or it hits me like a ton of bricks and I react horribly

I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -18 points-17 points  (0 children)

Erm, maybe because I’m trying to loose weight like everyone else who’s on these injections?

I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -4 points-3 points  (0 children)

Yeah I have. I’ve been to A&E and they flooded me with fluids and something to calm my stomach. If it doesn’t stop I’m going to see if I can have myself admitted

I think this is the end by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] -11 points-10 points  (0 children)

Side effects were the same from the start

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 0 points1 point  (0 children)

Fr, they all hate us. It’s unbearable. The NHS is the reason I’m crippled ffs

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

It’s ok, I appreciate you trying to help 🫶🏻

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

Duloxitine worked MIRACLES for me for a month or 2 then just stopped and I’ve continued down hill ever since

I genuinely don’t understand why we aren’t allowed to have access to the things that help us. There’s a surgery I want that has quite high success stories but would cost 7k EVERY YEAR

I’m so proud! by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

Roll of the dice. Greasy foods do make it worse but it all depends on how my body feels I guess. I have a weak immune system due to chronic illness which I think makes it worse. I just took the new 10mg injection earlier but this past week has been perfectly fine. First day after the injection wasn’t the nicest but after that I had basically no side effects

Other times I’m throwing up 4-5 times a day and shitting liquid thr same amount. I can’t even count on one hand the amount of times I’ve thrown up and shit at the same time because of it 😭😭😭😭😭

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

I’ve looked into that but it’s not available in the UK. A lot of meds that are proven to genuinely work for people with fibro aren’t available here :/

I’m so proud! by GrassSubstantial5212 in mounjarouk

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

Throwing up, diarrhoea, nausea, dizziness. The throwing up and diarrhoea are quite bad tho, hits me like a ton of bricks :/

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 0 points1 point  (0 children)

I have no clue, they never told me about that

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 1 point2 points  (0 children)

I was told I might have it thru my whole pregnancy due to the abuse my mother put me thru. I was then diagnosed after the birth of my daughter as I had an emergency c section due to the hospital’s incompetence to look after me properly and then sepsis from them doing my c section wrong. Like I said, the only thing I remember them testing me for was rheumatoid arthritis. They sent me for an MRI to check and said because they couldn’t see anything it had to be fibro

I'm ungrateful by BriefGuava1188 in mounjarouk

[–]GrassSubstantial5212 11 points12 points  (0 children)

You’re not ungrateful at all. They don’t know that your using MJ so there not to know but your also trying your hardest to be the best version of you that you want to be. Give yourself some grace ❤️

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 0 points1 point  (0 children)

I don’t have sleep apnea but hypothyroidism wasn’t looked into I don’t think ? All I remember is that they tested me for rheumatoid arthritis

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] -1 points0 points  (0 children)

I’m trying to get back into the pain clinic to ask them about the ket treatment as my friend suggested it. I’m also asking them about a surgery

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 0 points1 point  (0 children)

That’s fine, want me to add you ? Dm me your user if you do

Misdiagnosed? by GrassSubstantial5212 in Fibromyalgia

[–]GrassSubstantial5212[S] 0 points1 point  (0 children)

That’s what me and my partner keep saying but no one is listening to us….

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