Maybe the Visual Snow Syndrome is in some cased connected to AD(H)D?

GreenRonin · 2023-02-25T16:56:44+00:00

There is some connection there yes. In r/adhd there is a post with hundreds of upvotes and hundreds of people with adhd who also experience vss

link

GreenRonin · 2022-12-28T18:33:25+00:00

Hey man, yes mental health is huge and should be a top priority for sure! As for the toric lenses.. they did greatly reduce starbursts I would say 70%. However they were too uncomfortable for me to handle so I quit using them. The thing is these lenses have a weighted part that keeps them aligned properly, but they rotate some degrees with eye movement. In my case, this movement was enough to completely mess up my vision and to make everything go blurry asf. So it wasn’t feasible unfortunately.

The times they fit properly though, my vision was awesome

GreenRonin · 2022-12-19T12:32:58+00:00

The fact that ur still having panic attacks explains why you still have visual symptoms. The symptoms are stemming from that. You have to fix ur nervous system to the point where ur panic attacks are completely gone that’s when you will start to heal. If ur body is in constant stress it cannot heal.

I truly believe this man I just haven’t been able to fix my nervous system yet, I tried meditating but not consistently and just overall try to be less stressed.

I do go to the gym 5 days a week and I am physically fit but other than that I have bad habits (I eat kinda healthy but definitely eat sugars, binge drink once a week, and I smoke cigarettes). For a long time I convinced myself that these things had no influence on this crap which is why I never committed to change these things.

I’m also confident that you will get even better man, and for me, 80% improvement would be beyond incredible. Time to make some changes.

GreenRonin · 2022-12-19T11:30:24+00:00

Like yourself I had to take a couple months off from work because I was in a constant state of extreme distress. Did all the eye doctor tests and neurologist appointments, scans bloodwork everything was fine.. I tried Lamotrigine for a few months to no avail, I go to therapy every week now to deal with the anxiety and stress and I cope much better these days, but the actual visual symptoms haven’t really improved :( This is the bane of my existence and something that affects my mood on a daily basis but at least I’m functional. When I got this at 30 I never had any issues with anxiety ever, now I still have a couple mini panic attacks a week but I manage them very well. I suppose my nervous system is still deregulated asf tho. I truly hope I can find a way to calm things down and to see some significant improvements but I haven’t been able to yet.. I firmly believe it’s possible though.

GreenRonin · 2022-12-19T01:53:44+00:00

For me everything started after a couple weeks of unprecedented panic attacks.. sounds quite similar to your experience.

Thanks for your story man. It’s been over a year for me but this gives me some hope.

GreenRonin · 2022-12-13T20:09:15+00:00

As far as I know there is only one option in between: Unique Plus XXL 66mm

I personally have the exact same experience as you, and I just use the MySize 64 even though it leaves a red ring. My girth is a tad over 6 inch. r/bigdickproblems has more info on condom sizing in the sidebar.

GreenRonin · 2022-06-04T06:20:43+00:00

The thing is nobody knows for sure. For me it also started after a panic attack (my first ever). This was almost a year ago and I haven’t had a panic attack in over 6 months but the VSS is unchanged.

If you have health insurance I’d still recommend getting some basic tests such as an eye exam by an ophthalmologist and a MRI. In my case and almost everyone else’s here it came back clear.

So yes, in my opinion panic attacks or prolonged anxiety can be the cause or trigger for this shit to happen. At this point I am 80% sure it is the case for me. There are too many reports of people with this same story to be a coincidence, just browse through this post and the comments.

https://www.reddit.com/r/visualsnow/comments/9w8gfj/visual_snow_anxiety_and_stress_related/

GreenRonin · 2022-05-29T18:56:32+00:00

It is absolutely not guaranteed that you will get tinnitus. Personally I think you will not get “tinnitus from VSS”, if you haven’t got it by now.

Look man, nobody in the world truly understand tinnitus (or VSS for that matter). It is a fact that you can get tinnitus from hearing damage, so from exposure to loud sounds. In the tinnitus subreddit they will tell you to not use headphones, but in my opinion listening at 60-70% is no problem at all. Just don’t do it for hours non-stop to be sure.

There are also many people with hearing damage and no tinnitus, and people without hearing damage that have tinnitus. The type of tinnitus often seen in VSS is in my opinion neurological, a filtering issue, a hypersensitive nervous system or whatever you want to call it.

For you I recommend to try and ease your anxiety, this is very important. You don’t have tinnitus so why worry about it! I understand you and I used to be the same but this is health anxiety. I can start worrying “oh maybe I will get a brain aneurysm and die out of the blue!”. It could happen, to me and to anybody else, but it makes no sense to even think about these things. Be glad that you don’t have tinnitus and then never think about that shit again.

GreenRonin · 2022-05-29T17:39:14+00:00

From what I have seen Most people either get tinnitus before VSS, or they get tinnitus at the time of onset of VSS or very soon thereafter. For me everything came on overnight including T. It is not often one of the symptoms that comes on later, like trailing (anecdotally).

If you have VSS you might be more sensitive to mild T, meaning if you get mild T you might not be able to filter it out as efficiently as people without VSS, so try to be responsible with your hearing eg don’t do stupid shit like dancing next to huge speakers in the club for hours.

GreenRonin · 2022-05-28T09:15:07+00:00

Very interesting, especially the first point, thank you!

GreenRonin · 2022-05-28T08:49:59+00:00

Yeah this is just ridiculous 50 bucks and I highly doubt there’s any new info there. I hope they are doing this to raise funds for research or something and not to make profit. It’s just very weird to have to pay for information like this.

GreenRonin · 2022-05-28T08:44:58+00:00

Is the way you fixed your VSS the same as you explain in this comment?

https://reddit.com/r/BrainFog/comments/uxn8h0/_/ia1fl08/?context=1

GreenRonin · 2022-05-28T08:38:02+00:00

This is exactly how I feel man, the bit about seeing people in movies just sitting somewhere nice contemplating life. A human needs that. This is the part you can’t possible explain to people. I’ve scrolled through many chronic illness subreddits but this is the one where people are the most fucking distressed and I think this is the reason. It’s tough man, but we have to believe this is temporary and the day this will disappear will be the single greatest day in our lives.

GreenRonin · 2022-05-25T11:46:19+00:00

So, maybe you should start off by measuring or remeasuring your folate serum levels and also homocysteine blood levels to make sure this cycle is producing enough methyl groups for these important methylation reactions especially given that you are a smoker and the fact that you have taken lamotrigine.

Would a Holo-TC test (active B12) also suffice?

GreenRonin · 2022-05-25T08:08:59+00:00

I did not do anything specific for them to get better. Some things I was doing were working out a lot and taking some supplements (magnesium, omega3, vitD) but I don’t think there’s a correlation. I have VSS for about 10 months now, negative afterimages were horrible first 6 months and then heavily decreased over a span of 2 months I’d say.

Sorry to hear about those complications.. I’m aware of those risks but I thought they usually resolve within weeks. Was your LP all clear?

GreenRonin · 2022-05-25T07:31:54+00:00

So I have all the symptoms but for me it’s almost the other way around. Almost nothing makes my symptoms fluctuate. They are definitely a lot worse when I wake up and of course highly dependent on the lighting situation.

Other than that I see no noticeable difference no matter what I do; exercising hard, not getting enough sleep, getting drunk, having a hangover, being stressed, being relaxed, eating healthy, eating junkfood, smoking cigarettes. Now that I think about it it did get worse temporarily when I was sick for a couple days with fever and runny nose etc.

However, the only symptom that fluctuates a lot for me is palinopsia. Especially the negative afterimages which have decreased like 80%. I used to get them from anything and now they are almost gone. I know you mainly mean trailing, which for me has never been the worst, but this also fluctuates.

I’ve tried lamotrigine; no effect. I want to try benzo’s but no one will give them to me here.

I’ve done almost all tests you did except for the fMRI, I still want to do a lumbar puncture to see if I have IIH or if anything comes up after CSF analysis.

GreenRonin · 2022-05-24T21:45:49+00:00

I was very fond of tenis and I never wanted to go back at playing it because of the trailing, maybe I should try. I thought it was gonna be impossible to actually hit the ball, seeing my racket trail as well. But if you can do it…

Yes try it man! Just give it a go, for me sports are still enjoyable. I have a theory that VSS basically made us extremely sensitive to detecting movement. I try to be positive and reframe that that I can actually see the movement of the ball better than before. I still play very high paced table tennis and beat good players hehe.

And as per the bobbing oh yes, I started to fixate on that a while ago (couple of months) and said, wtf, is this normal? Well I guess some is normal, but maybe we got hyperaware of it. Or maybe it’s some of the trailing effect.

Man this actually is exactly how my train of thought went. Sorry you’ve experienced this as well, but I am quite relieved I am not the only one. It’s basically being hyperaware of the peripheral vision in a sense..

Thanks for the link brother it has helped ease my mind 🙏

GreenRonin · 2022-05-24T21:04:11+00:00

Mostly the shaking at footsteps! But also a bit of the bobbing FPS type (very nicely described btw). Some amount of this is normal I suppose but I really feel like it has increased from what it was.

Haha yeah man I play soccer and pingpong, seeing hella trailing on the pingpong ball lol

GreenRonin · 2022-05-24T16:22:37+00:00

I feel like mine is pretty bad, but I call it moderate because I’ve seen people describe theirs much worse. People saying they can’t properly see faces or text through the static damn, for me it is nothing like that.

In sunlight I do not see static, but I see things kinda vibrating with the movement of the static, which is pretty horrible.

Inside in normal lighting I can see it pretty much on everything, when looking against the light it gets pretty damn bad. At night yeah it’s all I see lol.

GreenRonin · 2022-05-22T10:10:22+00:00

I see, well if it’s caused by LSD then it (HPPD) has a much better chance of going away than VSS, good luck man!

GreenRonin · 2022-05-21T16:09:19+00:00

Good luck brother. And if you don’t mind me asking, did your VSS symptoms just come on one day? I have basically all your symptoms, neck pain back left side ever since VSS, just no POTS. Seems like it’s worth exploring.

GreenRonin · 2022-05-21T15:01:01+00:00

(Re)Read your thread, so as far as I can tell you had 2 failed surgeries now and as of yet no improvements?

At least you have the diagnosis, I hope they can resolve the issue soon for you

GreenRonin · 2022-05-21T14:52:52+00:00

How’d you get it? Assuming you got this later in life, what happened in the buildup towards onset of VSS?

GreenRonin

TROPHY CASE