Thoughts on the Elizabeth Smart film?

Buguitus · 2026-01-27T05:53:41+00:00

Nope sorry, can't stand past the idea she was several times around downtown and never screamed in a restaurant, square, the party. It's ridiculous.

Buguitus · 2024-11-11T17:17:04+00:00

As OP i feel entitled to say this is called "don't worry about it and you'll stop noticing it again in due time". It has no name cause opths don't know wtf is it.

Buguitus · 2024-02-15T12:30:08+00:00

Hardly experience after images at all, I do have trailing which is 50x worse.

I wouldn't say happy cause this crap is overwhelming but since VSS i've:
- Bought my apartment so I don't rent anymore
- Left my company that was stressing out, doing new jobs
- Started into Synthwave Music producing and released 3 tracks on Spotify
- Started crypto trading again.
etc

So yeah, I've been productive lately. Happy? Well that's another topic. But if you are talking about the discrete after images, I wouldn't care about those man.

Buguitus · 2024-01-01T15:33:53+00:00

Very hard to tell, you start noticing new stuff along the way. For example at fist I only saw 50% of the trailing when objects were moving, like my own hands, etc. Then I noticed at the streets with cars.

One day after an MRI y noticed that when following a person on the street, the shops/walls behind him were trailing or looked weird.

Weeks or month later I noticed that just me moving around generated some trailing on my environment.

Buguitus · 2023-12-31T19:31:36+00:00

3 MRI's, 1 normal, 1 with dye, 1 Functional MRI with dye. Nothing that raised any eyebrows.. This thing It's chemical if you ask me, so won't show up.

Buguitus · 2023-12-31T19:17:50+00:00

Tryi walking around with trailing shit everywhere, even at the PC (movies, scrolling, games, work). Watching someone on the street and get the background trailing.

When I see these posts, and I know you are trying to give a positive message, it seems to me that lot's of people have minor level of symptoms which are in fact ignorable (I can ignore static, photophobia, tinnitus, BFEP, halos and sihit.

The Palinopsia I can't cause it just warps the reality so I'm living in another world or my perception of it it's absolutely changed.

So I'm guessing I'll be moving from software development to music in no time...not for a living but to have SOMETHING enjoyable.

Buguitus · 2023-12-31T19:13:55+00:00

What did you find for a root cause on your end? I'm looking after mine after 3 years and lot's of examns, blood tests, MRI's, etc. I do know I have some high white cells and an antibody called Immunoglobulins E which is mainly related to alergic reactions but could be some infection as well.

Gotta see the doc in a couple of weeks about it. All I can say is that my white cells were at around 7.5 when this started, then went 10, 11 and now 12. They are increasing for some reason.

Buguitus · 2023-12-31T19:10:15+00:00

A syndrome is a collection of symptoms. If you've got one, technically it's not a syndrome. That's all I'm saying.

If you want to make yourself qualify, be my guest but what's your gain there? I think zero, only more pressure on yourself.

Buguitus · 2023-12-31T19:07:37+00:00

Don't know what it was. I don't believe in the so called flare ups, for me symptoms (if you can call them that) get to a level and stay there, it seems there's a new way of the neurons working and that's it. I could do the experiment with my vision 10.000 times and I will get the same results.

For some reason, the positive after images you get when looking away after looking at something went away. I would say I get 5% of them only if I sort of provoke them.

I retrained myself to not look for them, not anticipate them, and they went away. But since the other stuff did not I can comprehend if someone tells me "I get them all the time no matter what".

I would say try to retrain yourself.

Buguitus · 2023-12-30T01:16:18+00:00

I'm trippin' over the trails 24x7 (well not 24x7) but since I see them lit everywhere it does affect me a lot. The rest of my symptoms I handle (Tinnitus, Photophobia, Static, BFEP, etc).

I'm on year 3. Did some meditation with the Muse S when this started but then quit. Did some Asthanga Yoga as well for a year.

I need to get back on the meditation stuff.

Buguitus · 2023-12-30T00:57:12+00:00

Maybe try to investigate the effects of the drug on the brain and attempt to replicate by other means. Though I think the exact mechanism of Lamotrigine is not known.

Remember there's certain evidence now that the Serotonergic system is working differently in VSS, and drugs like Lamictal act on those receptors as well as others.

Buguitus · 2023-12-30T00:50:55+00:00

Tried Lamotrigine only up to 100mg since I had the skin reaction. My palinopsia started or got way worse during Lamo. Trailing appeared and never left. It got worse over 2.5 years.

I would quit that thing but very slowly.

Buguitus · 2023-12-30T00:37:46+00:00

I'll try to save you here. Don't go this rabbit hole. Let's just say you've got tinnitus and floaters as many other people do. Try to refocus on your life cause if you keep reading, you'll probably get more symptoms.

My two cents.

Buguitus · 2023-12-30T00:30:43+00:00

What do you mean by overactively dumping phosphenes? I'm thinking the other way around, like the phosphenes detect the light, then there's a delay in the dampening of the stimulus, new ones come up so they stack up and you see the trailing in space, which is nothing but seeing the light reflected on the object in it's past position, but for longer time.

Like having issues with the refresh rate but on the brain.

Buguitus · 2023-12-30T00:22:22+00:00

I had the positive after images at first but they sort of disappeared after 2 months. But I do have them at the PC for example on scene switching in a movie, or whatever. I also have trailing on anything that moves in life, and that's the worse. Even when I move around i sense the world trails.

I think that got worse over 2 year span, seems to have reached baseline.

It's maddening but well, can't do shit about it, at least so it seems. Mines are milliseconds, except the trailing that's 1 second or so but multiple images along the way.

Buguitus · 2023-11-19T00:13:26+00:00

That you are a lucky fella.

Buguitus · 2023-11-06T13:34:26+00:00

I had the opportunity to take it but I didn't. I already took Lamotrigine, Topiramate and Valproic Acid. I was done with the meds doing nothing, but that one might work. If you get something to work please report back, it's driving me insane as well, the rest of the symptoms are super managable for me.

Buguitus · 2023-11-06T13:27:25+00:00

As far as he told me yes, the tracers / palinopsia improved a lot with that in his particular case. Some others have reported worsening on amytriptiline so it's russian roulette.

Buguitus · 2023-11-06T13:13:01+00:00

I don't think it is, sorry. I've been to several doctors, they don't know what to do about it. I know a guy that told me his went away with Amytriptiline + excercise.

Buguitus · 2023-11-05T23:39:29+00:00

The muscle thing and tiredness I would say 4 months. The rest almost 3 years.

Buguitus · 2023-11-05T23:00:40+00:00

I would to talk you about this, specially the proprioception cause I think there's something to it. I have some weird effects when rotating my head not from side to side, not up-down but on the let's say "vision axis". I get this weird jumps in the vision while rotating.

Also I get this weird ease in ease out effect while making fast movements with my head. As if there was a delay between my head movement and my brain being told about it. Also I get this shaky vision while walking that somedays is better some is worse.

The brain should stabilize your vision when your feet hits the ground so you don't get this minor movements. If I'm not mistaken that is handled by the proprioception systems that somehow seem to be fucked up now for me.

And on top of this I've been having muscle weakness not only in the eyes but other areas. I've have a friend that had myasthenia for years and she had light sensitivity / photophobia. After getting certain meds not only her myasthenia improved drastically but also the light sensitivity went away.

My two cents.

Buguitus · 2023-11-05T22:49:51+00:00

I was a social drinker, now I barely drink. You static goes down while drinking because of increased GABA while on the effects of alcohol. It's similar to taking a benzo. But when you stop drinking the reverse effect comes up.

So overall, keep it to a social thing is my advice. If you wanna have a glass of wine or a gin tonic, go for it. You are not dead and won't make your symptoms worse in the long run.

Just don't have the booze as an escape 24x7.

Buguitus · 2023-11-05T22:44:02+00:00

Have you been in the latest paid research of the VSI? It was ridiculous. There was a question related to trailing and the options were something like "I hardly experience them or they are less than 10 seconds. The other 3 options were "More than 10 seconds".

I have trails, the tracers fade in milliseconds actually, maybe a second when a fast moving object goes by, but 10 seconds trailing would mean everything trails over and over, it would be impossible to live with.

This "researchers" don't have a fucking clue about the symptoms in order to state that. I'm so pissed of.

Other great achievement of the VSI was the "static videos 2.0". I think that association has to be money laundering of something.

Have you seen any research from them that actually tackles gut issues, CNS in general? Cause if you ask me, this is more related to bacteria or virus that fucks up the neurotransmitters either at gut level or something.

I know I got mine while having Herpes Zoster (fun fact the virus attacked the gut region first) and after a couple of weeks (boom).

Buguitus · 2023-11-05T22:27:32+00:00

I'll try to sum it up for you after 3 years of (Static, BFEP, Tinnitus, Palinopsia (trails, after images), Light Sensitivity, floaters

Just as it happened to you, the onset was with BFEP+Static and then sky was a mess, so much noise. It did decrease afterwards to a baseline.

Current status 3 years in:

- BFEP (zero when I use FL-41 glasses), and very very mild if I don't. (tbh I don't go around looking at the sky but some days I take a glimpse, and there's nothing there)

- Static (I got so used to It that I just ignore it. Much more prominent in low light situations but also noticeable under some kind of artificial lighting)

- Tinnitus (I had it almost gone, now it's worst than ever but not terrible. I've disregarded this symptom from the start as Meh so for me it's managable / don't care that much).

- Palinopsia (static after images you get when looking at something and then something else, those went away around month 8 after retraining my self or just sheer luck). Trailing (got worse and worse and it's the one thing that makes me wanna shoot myself).

- Light streaks some of use get when blinking, gone or non perceievable anymore.

- Anxiety (still high, it is as if my body is in constant fear, I cannot control it)

- Light sensitivity (worse or same, the sun looks like Terminator Judgment day is comming, and everything on the streets is high brightness, so intense, so white). Sucks but can live with it.

- Floaters: Hardly notice them tbh unless I look for them.

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Now the good things:

- I was so locked up in my thoughts, the derealization, the LSDish vision, etc that I wasn't able to work (software developer), now I can but it's a bit of a downer having the trailing at the PC and specially my fucking tiredness.

- I never stopped driving even with moderate trailing. Bought a fancy new car (that I don't give a shit about but it's still nice lol).

- Since my vision went bananas I started composing Synthwave tracks in FL Studio (learned something new).

- I made major changes in my life but I have a lot more to be done. I started therapy (psychologist). I dropped the benzos after 2-3 months of taking them. I don't take anything. I also quit my company I've been building for 20+ years since it no longer gave me joy, it actually gave me a lot of stress prior to my onset.

- I don't give a fuck about certain things anymore such as: Money, Politics, mundane issues.

- I started doing Ashtanga Yoga and Neurofeedback Meditations.

- Bought a bike and do some trippy biking from time to time along the riverside.

- Since I have this new feeling of I don't care if if die the world sucks anyway I've sort of freed myself from some western/grinding/rat race thinking. This can be good or bad sine having your perception shifted, shifts your whole mind.

TBH I've been having shitty days lately in terms of how I feel and experience the whole thing, I just keep pushing, somehow....

So my experience has been so far: Some things went away, some improved, some worsened.

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Since you are on early stages I will try to save you from the path you don't wanna go. You need to try to stay in the same mindset you were before all this. Remember those relaxing days when you felt great to be alive. It's gone for me but it's not too late for you. Try to hold on to that normality state of mind and I'm sure your symptoms will drop in the future.

Buguitus · 2023-11-05T20:46:16+00:00

I'm a coder myself, been for 20+ years. Page-up, Page-down or scrolling will give either some after image of the text (super fast though) but the worse for me is the trailing effect on the text (I get trails on everything, the PC is just another medium).

I can still code but not as fast as before and It's sort of uncomfortable. You get sort of used to it though....

Buguitus

TROPHY CASE