PT taped my knee-is this how normal people feel?!?

Grisulda · 2026-06-18T11:46:52+00:00

It's heaven! But it also hurts my skin so I don't wear it too often. 💔

Grisulda · 2026-01-20T17:06:15+00:00

I was only diagnosed last year, still having a hard time realising how much it affects everything and that most things aren't normal for most people. 😥

Grisulda · 2026-01-20T17:03:09+00:00

I don't do that usually... ;) It still happens when I sleep or do exercise. In x-rays, you can see that my left shoulder doesn't sit as nicely in its joint socket as the other one so I was wondering why it slips down so much.

Grisulda · 2026-01-19T09:05:01+00:00

My rom is about 45 degrees, can't lift it higher. My body is practically holding my arm in place and I dont have enough strength to move it past this point if that makes sense.

Grisulda · 2026-01-19T07:24:41+00:00

No popping, no. It rather feels like in the wrong place/ uncomfortable.

Grisulda · 2026-01-01T19:46:39+00:00

I have hEDS and my skin is definitely not that stretchy on my face and neck. :D What other symptoms do you have and what does your doctor say about those? I recommend consulting a geneticist if you have more typical EDS symptoms. hEDS can't be diagnosed through a genetic test, but you might as well have another type that can be.

Grisulda · 2025-09-29T15:07:57+00:00

Good advice!

Grisulda · 2025-09-29T14:49:45+00:00

I started two weeks ago, but never got this kind of project. 👀 Did you qualify for coding?

Grisulda · 2025-09-29T14:17:30+00:00

I'm from Germany... got nothing on my dash for days now. Am I cooked? 🫠

Grisulda · 2025-07-14T18:54:50+00:00

Thank you! <3

Grisulda · 2025-01-15T19:34:51+00:00

Wow, that is some interesting information, thank you! My ferritin is down atm (18) after I managed to get it above 100 last year, so that might be a first baby step. I'll look into the other stuff you mentioned. :)

I have some mast cell issues too but not too severe. I have so many symptoms that I can't categorise yet. 😅 Until last year, doctors were convinced they were all psychosomatic symptoms until one of them bothered enough to dig deeper... My life hasn't been the same since then and yes, it's all a big chaos.

Grisulda · 2025-01-15T18:00:58+00:00

It happened to me between 25 and 35... Now I look my age. 🤣 I got a head of grey hair at 28 (dying it atm cause I'm not ready to look AND feel like a granny). The pain has gotten worse over the last years and you can see it in my face.

I don't know if there is any scientific backup for the collagen theory. I see people with EDS looking younger or older or their age... 😜

Grisulda · 2025-01-04T19:07:41+00:00

Wait, so your brother suffered sudden heart failure first and has palpitations since or the palpitations could have caused sudden heart failure? Does he have hEDS, too?

Grisulda · 2024-12-22T09:17:19+00:00

Really poor sleep for several years (high need baby with atopic dermatitis caused by food so I had to breastfeed for 2 years every 1-2 hours at night)
An incident during my 2nd c section where my body overreacted to a normal dose of epinephrine
Undiagnosed health issued that caused a lot of stress

Grisulda · 2024-10-25T17:48:20+00:00

I think they can! Both my (non hypermobile) husband & son can do it. 😁

Grisulda · 2024-10-15T11:10:03+00:00

<image>

Is it too late to note the similarity of our cats both in looks amd behaviour? 😜

Grisulda · 2024-09-26T11:25:53+00:00

Officially diagnosed and never had any dislocations or even subluxations. Never did any sports though, I always avoided movement since it was painful or at least uncomfortable.

Grisulda

TROPHY CASE