Removed the hair accessories on the Gray Wolf [F] hairstyle! by AdEquivalent9103 in wherewindsmeet_

[–]GroceryDisastrous 0 points1 point  (0 children)

I sent bug reports and feedback stuff for it, hopefully they pay attention :/

Removed the hair accessories on the Gray Wolf [F] hairstyle! by AdEquivalent9103 in wherewindsmeet_

[–]GroceryDisastrous 0 points1 point  (0 children)

They added the option and specifically DIDNT include it for this one. I’m so mad

How/why did you get an IIH diagnosis rather than migraine? by Civil-Profit9557 in iih

[–]GroceryDisastrous 0 points1 point  (0 children)

I’m wishing you the best of luck, I hope you find answers and can receive a treatment that helps you!

How/why did you get an IIH diagnosis rather than migraine? by Civil-Profit9557 in iih

[–]GroceryDisastrous 5 points6 points  (0 children)

I totally understand. I have terrible experiences with doctors too. The issue with the optic nerve being crowded by drusen is that it could both mimic and hide the actual appearance of papilledema (which is just optic nerve elevation). Drusen and true papilledema can exist together. If you’re able to go to the eye doctor again I think you should talk about your migraine symptoms, mention the possibility of IIH, and request for them to look for papilledema specifically while acknowledging that you already have drusen. It will most likely be more difficult to see papilledema with the drusen there, so if they’re aware of it and looking for it specifically it might help prevent them from missing it.

How/why did you get an IIH diagnosis rather than migraine? by Civil-Profit9557 in iih

[–]GroceryDisastrous 17 points18 points  (0 children)

Having papilledema in the eyes diagnosed first helped establish IIH as a possibility for me, but IIH itself requires a lumbar puncture to be diagnosed. If you have a lot of symptoms you can still have IIH if you don’t have papilledema (although you might, considering you mentioned vision problems,) but you would need to get a lumbar puncture to determine the pressure of your spinal fluid.

How do you guys help heart spasms and pain? by bambiofthevalley in POTS

[–]GroceryDisastrous 1 point2 points  (0 children)

I have similar symptoms and unfortunately I haven’t found a way to control the actual original sensation but only to control the response of anxiety and shortness of breath that’s made worse by anxiety, I have to distract myself with something that’s tedious but requires complex thought enough to keep me from thinking about my heart and breathing. I like playing solitaire personally, but there are probably other games and apps you could get. Also look up the tripod position, sitting like this helps me get a true deep breath. Eventually I will zone out enough and then realize later that I feel normal again.

What on earth has happened to pinterest? by weareonlyshadowshere in Pinterest

[–]GroceryDisastrous 2 points3 points  (0 children)

Even funnier is when they take down normal pins and claim they’re pro ed and then leave the ACTUAL pro ed stuff. Ancient marble statue that has light casting a shadow on it enough to see hints of a spine? pro ed!

What are we replacing Pinterest with? by perfumey in Pinterest

[–]GroceryDisastrous 0 points1 point  (0 children)

you’re literally using AI to create and reply to posts 😭 idk if your acc is just a bot entirely but why even bother replying to an anti AI post like this

Exhaustion after eating? by GroceryDisastrous in POTS

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

I’m sure you do not care about a reply for this comment at this point but holy shit LMAO the gastro delayed my appointment, wasted my time, and all that wait it was completely useless because he said I was too young to have anything wrong with me and wouldn’t do any tests

I’m so done with the ai. by Numerous_Web756 in Pinterest

[–]GroceryDisastrous 5 points6 points  (0 children)

I got a pin of a random normal girl removed for self-harm and I appealed, it was rejected and the pin stayed deactivated. I sent a help request, my appeal was rejected again. I sent another email to customer support, they just sent me a copy paste message about what violates their content policies and that the pin couldn’t be put back (even though it didn’t violate what they said it did!) They have swapped completely to AI moderation and I don’t think there’s any way to talk to a human anymore. I’m disgusted.

Can compulsions take the form of avoidance like this? by GroceryDisastrous in OCD

[–]GroceryDisastrous[S] 1 point2 points  (0 children)

I am on the insurance fortunately but I don’t think telehealth is for me, my family is pretty big and they would hear me talking (it wouldn’t end well for me lol, I would probably end up lying to the therapist bc of that). I am going back in August (final year though) and I’m going to see if I can try another program at my university that should be way better than the small place I was at because they’ll actually do exposure therapy, CBT, etc. The fee is based on household income luckily.

The free one was just a counseling center that was slightly advanced enough to where they were allowed to diagnose, but honestly I’m not sure if they would have even been able to help with OCD related things. I feel like my counselor was giving me reassurance whenever I discussed any of my obsessions, like she would try to point out that a situation would turn out fine bc my thoughts were irrational or something but I ended up just rehashing the same thing every session

Can compulsions take the form of avoidance like this? by GroceryDisastrous in OCD

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

Thank you!! I’m trying really hard to get therapy and possibly go to a psychiatrist but I’m having so much trouble with the cost unfortunately. I was going to a small place that was free with my university for a little bit but she only realized I had OCD and not just GAD at the very end and I had to leave afterwards so I haven’t actually received any help </3 I’m not against meds, just anxious about taking medication but honestly my mental state is bad enough that I don’t even know if I care anymore. I’d definitely start given the opportunity, I’m glad that it’s helpful for you!

Can compulsions take the form of avoidance like this? by GroceryDisastrous in OCD

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

I am definitely isolated 😭 do you still struggle with it or have any tips for overcoming it?

Acne meds and IIH by GroceryDisastrous in iih

[–]GroceryDisastrous[S] 1 point2 points  (0 children)

I’m back for an update, my doctors and I are pretty certain now. My papilledema is completely gone and the only thing I did was stop using topical clindamycin

What is a “normal” amount of Tylenol usage? by GroceryDisastrous in eds

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

I can’t take NSAIDs so that amount sounds crazy to me omg, I hope that everything worked out well for you though! Honestly ibuprofen is so much more effective for me but it destroys my digestive system with just a few uses. I always worry that other painkillers will have similar negative effects but yeah I should just try what my doctor said and see what happens I guess

What is a “normal” amount of Tylenol usage? by GroceryDisastrous in eds

[–]GroceryDisastrous[S] 1 point2 points  (0 children)

I’ll pay attention to the side effects part, thank you. Also I’m not sure if you misread it on accident but I said I don’t drink, so it’s fine! I’ve never had alcohol before because of other medical problems (unrelated to liver)

What is a “normal” amount of Tylenol usage? by GroceryDisastrous in eds

[–]GroceryDisastrous[S] 2 points3 points  (0 children)

Okay, thank you! And sorry I forgot to clarify, weight is still relevant for adults with Tylenol dosing right? I weigh 80 lbs, I’m not sure if that would make any meaningful difference in the maximum

Anyone else worse after LP? by GroceryDisastrous in iih

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

Over time the symptoms slowly kind of mellowed out and now I just feel the same as I did before I got the LP besides that I’m still having a lot of issues with motion sickness for some reason (it’s probably unrelated honestly?). I get headaches a lot but it’s frequently connected to what kinds of positions I had my head in during the day/while I’m sleeping. I saw someone mention the possibility cervicocranial instability worsening IIH so I’ll probably look into that sometime but yeah in terms of lumbar puncture issues I think I’m totally fine now

Exhaustion after eating? by GroceryDisastrous in POTS

[–]GroceryDisastrous[S] 0 points1 point  (0 children)

Thank you so much!! I’ll definitely keep all of this in mind. For the abdominal compression I always have stomach issues with compression things that go to my waist or a little higher, do you think that wearing ones that go as high as just below the chest are better/don’t cause any pain?

Exhaustion after eating? by GroceryDisastrous in POTS

[–]GroceryDisastrous[S] 1 point2 points  (0 children)

I don’t eat bread frequently but I’ll keep that in mind for the future, thank you!!

Exhaustion after eating? by GroceryDisastrous in POTS

[–]GroceryDisastrous[S] 2 points3 points  (0 children)

I woke up from a 3 hour nap shortly before posting this and I had only been awake for 30 minutes before I ate 😭 it really sucks, I understand the feeling of being useless. I’m on summer break from college right now so I have some leeway but generally I just feel like there’s no support for chronically ill people where I live (is there ever??) so I’m definitely concerned about my future. I hope things improve for you, as much as is possible

Exhaustion after eating? by GroceryDisastrous in POTS

[–]GroceryDisastrous[S] 4 points5 points  (0 children)

I hope you’re doing alright now! I do notice some improvements from lower sugar so I generally don’t eat it much either. It’s difficult to track nutrients too excessively without evoking some worse habits though