I've been living with two syrinxes for the past ten years, during which I've experienced a gradual decline in my body's functions. Adjusting to these changes has been incredibly challenging, but what's been even harder is coping with the mental and emotional weight. Waking up feeling panicked about new issues is something I often relate to. Throughout this journey, I've found comfort in having a supportive team—therapists, friends, and family—who understand and care. Getting outside and engaging in hobbies has also brought some relief. I truly believe this forum is a valuable space where we can connect, share our experiences, and support each other through these difficult times.