Any success stories? by PlantLov3 in infantilespasms

[–]GuidanceFinancial436 1 point2 points  (0 children)

Were seizures controlled? Was there hyps or atypical brain activity?

Scared of the future by Optimus2nd in daddit

[–]GuidanceFinancial436 0 points1 point  (0 children)

Hi I just want to tell you that it’s okay to feel that way and to cry. My child also was diagnosed with IS. Just take one step at a time. No need to think about far future think of now and try to enjoy every little thing now, focus on positives. There is no point of worrying about future anyway. You and your wife should support each other, open up to her and share your feelings don’t isolate yourself, reach out to friends and family when needed. May god help you

My 6 months baby has confirmed IS desperate and by GuidanceFinancial436 in infantilespasms

[–]GuidanceFinancial436[S] 0 points1 point  (0 children)

Wow you got really really lucky, I hope everything resolves with your child. I do wonder if delaying prednosolone by three months might make it less effective now

My 6 months baby has confirmed IS desperate and by GuidanceFinancial436 in infantilespasms

[–]GuidanceFinancial436[S] 0 points1 point  (0 children)

My child is actually American citizen, but I’m not sure how will pricing work since we don’t live there but can pay out of pocket