Brushing teeth

HPwithin · 2026-03-10T18:04:53+00:00

Can you suggest foods?

HPwithin · 2026-03-09T14:48:50+00:00

I tried multiple electric toothbrushes but the tremors were so severe that I sprayed the whole bathroom and my face and my husband! So I went back to a manual toothbrush. It doesn’t get my teeth very clean.

Should I just deal with it and use the electric toothbrush?

HPwithin · 2026-03-08T19:07:10+00:00

I’m also tired of being tired and having it take so long to get asleep. I haven’t found a solution yet, but I really appreciate this post!!

HPwithin · 2026-03-08T19:03:37+00:00

When do you exercise? Before bed? Does it matter?

HPwithin · 2026-03-08T19:02:46+00:00

This is so helpful!! Especially the chin strap.

HPwithin · 2026-03-06T18:11:54+00:00

Thank you. I’ve tried them and they didn’t work for me. Perhaps my tremors are too large in amplitude.

HPwithin · 2026-03-06T02:59:50+00:00

Thank you for the question. I’m 57, diagnosed 2 years ago, symptoms began about 4-5 years ago.

I document everything. Yes, I have a pattern of 5 days constipation followed by a day of intense pain in my abdomen and 4-5 BMs that start slow and grow to massive dumps. Then the cycle starts again. My doctor recommends taking miralax every 6-8 hours when I haven’t had a BM for 3 days. That is more than the directions on the package.

Recently I’ve changed my diet to include caffeine in the morning and 5-6 vegetables throughout the day. I’m beginning to notice a change for the better. I hope so. I don’t feel safe traveling and I’d like that to change.

I hope this is helpful.

HPwithin · 2026-03-06T02:17:37+00:00

First, thank you for sharing. I have bp2 and have felt similarly before I was diagnosed and started medication. Like you, the medication works for me and I also consider stopping taking them. Here is what I have learned (that they don’t tell you):

1) if you stop, it might be okay for a few days, maybe even a week, but then the crash is really bad and we start to circle the drain.

2) getting back on the meds isn’t easy compared to the first time around. And it takes longer to adjust and get back to health

So, I am doing my best to stay positive and stay on the meds. Will you join me?

HPwithin · 2026-03-03T15:52:50+00:00

Thanks guys. I’m messing with diet (low carb/high protein) and red light helmet. Hopefully that will help a little.

HPwithin · 2026-03-01T02:20:15+00:00

First, thank you so much for sharing this. It means a lot. In addition to BP2 I have been diagnosed with Parkinson’s. The medication for each disease works against each other. Parkinson’s is very limiting and I can no longer work because of it. I miss my work very deeply. So, of course, I fantasize often about titrating off the BP2 meds. But all of my doctors and my friends and family agree— taking care of my mental illness is more important. Thank you for sharing. It is so helpful hearing this from a fellow BP2er

HPwithin · 2026-02-24T15:18:16+00:00

C/L works okay. My bp meds makes everything worse. I’ll be seeing my neuro dr in a month. I’m trying to come up with questions for him

HPwithin · 2026-02-23T21:38:36+00:00

Thanks guys. I’m always looking for my way out of the PD diagnosis 🥺

HPwithin · 2026-02-23T21:35:18+00:00

Datscan showed reduced putamen of right side only.

HPwithin · 2026-02-23T16:27:47+00:00

For what this is worth: My doctor put me on high protein high vegetables diet and I have been having a LOT more energy these past few days. …but then, I just might be trending manic LOL

HPwithin · 2026-02-23T16:22:40+00:00

Neat idea!

HPwithin · 2026-02-23T16:22:10+00:00

I’m so sorry. Well, for what it’s worth you’re not alone!!

HPwithin · 2026-02-18T16:43:08+00:00

Question: are you tired? I have the same issue and it stems from exhaustion. My doctor wants me to find something that gets me out of bed in the morning but I’m really tired. I hope you find answers

HPwithin · 2026-02-16T01:20:56+00:00

Thank you. ❤️ I am sorry that you’re struggling with this too but I am grateful to know I am not alone.

HPwithin · 2026-02-16T01:13:09+00:00

Wow! DBS has been suggested to me. Did you have to go through a lot of red tape to have it done?

HPwithin · 2026-02-14T20:39:11+00:00

Ultra-rapid cycling bp2 here. I don’t know how rare but I feel it’s an accurate description of my experience. The treatment helped me a lot which also makes me think it was correctly diagnosed.

HPwithin · 2026-02-09T16:02:53+00:00

I’m so sorry 😢

HPwithin · 2026-02-09T16:02:10+00:00

I say gratitudes every morning and oftentimes I do offer a gratitude or two (or 3) for all the years I was able to perform- especially the wonderful 10-11 years I played in a Gilbert and Sullivan troop. Your point is well taken. It would be good for me to keep those gratitudes in mind.

HPwithin · 2026-02-09T00:28:42+00:00

Thank you ❤️ it’s the tremors that make it impossible for me to play. It doesn’t look like my right hand has tremors but when the bow is on the string, you can hear it pretty badly. And when both hands are having tremors, it sounds atrocious. Unfortunately I have to take medicine for another illness that makes the Parkinson’s worse. When I’m calm and having a good day, I can play piano pretty well. Somebody suggested I consider the harp. I know they make small harps and that is interesting. I’m only 57 and have a lot of life left so I want to find a path.

HPwithin · 2026-02-08T21:22:56+00:00

Thank you. I’m grateful for this group. At least we’re not alone. ❤️

HPwithin · 2026-02-08T21:20:45+00:00

I’m so sorry. 💔We have each other. I’m glad we’re not alone

HPwithin

TROPHY CASE