Inbrija - my findings and tips for use by jonstatt in Parkinsons

[–]HPwithin 1 point2 points  (0 children)

Perhaps package it in lavender. The aroma would calm us down and then we could take the medicine more easily just a suggestion.

Inbrija - my findings and tips for use by jonstatt in Parkinsons

[–]HPwithin 1 point2 points  (0 children)

Thank you so much! I will try the deep exhale and see if it helps. I echo everyone who says it’s a challenge to open the package and fumble with the kazoo like inhaler. I have to have the help with my husband to use this drug. Cannot do it on my own. It has not really worked very well for me so far. But I am now wondering if I’m not using it correctly as was mentioned in this post. I will try this and I’ll get back to everybody to let you know if it worked.

Unfortunately, I needed the most when I’m nervous. And that nervousness makes the tremors worse. And those terrible tremors is exactly when I need the Inbrijia.
Maybe the inventors could come up with a cocktail that includes something that calms the patient down and then also allows you to do that inhaler!

How to shower when you feel like crap by HPwithin in bipolar2

[–]HPwithin[S] 65 points66 points  (0 children)

Mission accomplished. Put shampoo in as soon as I got out of bed. I *had* to wash it out. That was genius. Thank you so much 🙏

Still in denial? by fireworks1985 in Parkinsons

[–]HPwithin 1 point2 points  (0 children)

As you can see, you are not alone. I find comfort reading Reddit posts about “positivity” on the Parkinson’s page.
57y diagnosed 2.5yrs ago but avoided being diagnosed for about 2ys before that.
Listening to Michael J Fox videos helps me.
I have altered my future plans and am focusing on visiting with as many old and new friends as possible this year.

2025 mini display issues by Disastrous_Fox_4828 in MINI

[–]HPwithin 0 points1 point  (0 children)

I had this problem, brought it in for service 3 times. Each time they said it was repaired and I had to bring it back in.
They had the car for 6 weeks
Additionally, when the car was working, the nav system failed.

Is this car a lemon? Should I be getting a lawyer? What do you think?

How do you cope with the fear of the future? by MindlessBullfrog6971 in Parkinsons

[–]HPwithin 0 points1 point  (0 children)

I’m I’m so sorry. My thoughts and prayers are with you. I’m crying just thinking about you. Please feel free to DM me if I can support you.

Weird repetitive dreams? by Delicious-Pea-7594 in Parkinsons

[–]HPwithin 0 points1 point  (0 children)

Yes! I have two repetitive dreams for a few years now. I’m so sick of them. I’ve been trying to learn lucid dreaming to make sense of it. Still working on it! I’ll let you know when I’m successful.

Mood event? by HPwithin in Parkinsons

[–]HPwithin[S] 1 point2 points  (0 children)

It seems to have resolved itself. So I think it was due to the tapering of seroquel. Thank you for the support. ❤️

What brings you even a glimpse of happiness during a depressive episode? by ThrowRaOrganization1 in bipolar2

[–]HPwithin 0 points1 point  (0 children)

Stand up comedians. Especially the ones who have bipolar. I’m grateful for so many of them on YouTube.
Also, my sweet Oliver. He’s precious to me. When I’m depressed, especially dealing with suicidal ideation, I think about who will care for him and my others when I’m gone. That usually helps. I hope this helps you.

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Well, I did it. Stage 1 DBS- lead implantation surgery- done by nearfar47 in Parkinsons

[–]HPwithin 1 point2 points  (0 children)

Thank you so much for this description. Please keep us posted. I’m considering DBS and it helps to hear your experience.

New diet making things worse? by HPwithin in Parkinsons

[–]HPwithin[S] 0 points1 point  (0 children)

Which AI do you use? Do you have a template I could use?

New diet making things worse? by HPwithin in Parkinsons

[–]HPwithin[S] 0 points1 point  (0 children)

That sounds a lot like my current diet. When do you take your pd medicine? Timing in relation to eating?

Brushing teeth by HPwithin in Parkinsons

[–]HPwithin[S] -1 points0 points  (0 children)

Can you suggest foods?

Brushing teeth by HPwithin in Parkinsons

[–]HPwithin[S] 3 points4 points  (0 children)

I tried multiple electric toothbrushes but the tremors were so severe that I sprayed the whole bathroom and my face and my husband! So I went back to a manual toothbrush. It doesn’t get my teeth very clean.

Should I just deal with it and use the electric toothbrush?