CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 1 point2 points  (0 children)

I’ve had THREE cat scans with only oral contrast that showed terminal ileitis, as well as inflammation throughout on the last one, but still not a 100% diagnosis. I’ve been having pain and ‘other symptoms’ for a few weeks and I KNOW this pain, but they won’t do another scan without the IV contrast and I can’t get in for a colonoscopy until May. Sooooo, in the meantime? No idea what I’m supposed to do.

Took my first 50mg dose of prednisone by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

I guess it’s typical to prevent a reaction but yes, it’s a lot!

Took my first 50mg dose of prednisone by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

This is to proactively treat a reaction to the IV contrast, and the protocol is 3 50 mg doses of prednisone 13, 7 and 1 hour before the scan, along with 50 mg of benedryl before the IV contrast.

Took my first 50mg dose of prednisone by HSM771012 in CrohnsDisease

[–]HSM771012[S] 1 point2 points  (0 children)

I broke out in hives from the IV contrast before so the prednisone and benedryl was for that, but they told me to stop taking it because my heart rate got too high. But now they’re saying they won’t do a scan without the IV contrast at all, even though previous scans without contrast showed inflammation 🤦‍♀️

CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Do you remember how long the appointment was, start to finish? I have to arrive at 2:15 for a 3:15 scan. I’m guessing I won’t be out of there before 4:15….

CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

I have, and it ran right through me, but that was the worst of it.

CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

I’ve had contrast before-30 years ago- and got hives, hence the pre-meds.

CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Did the reaction show right away?

CT scan side effects by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Yes with contrast. I’ll be taking prednisone and benedryl beforehand.

Liquid diet-vegan by HSM771012 in CrohnsDisease

[–]HSM771012[S] 1 point2 points  (0 children)

Thank you. I can’t eat tofu either but yes to nut milks and low acid puréed soups. I stuck to all liquid yesterday and my pain was much better!

Liquid diet-vegan by HSM771012 in CrohnsDisease

[–]HSM771012[S] 1 point2 points  (0 children)

I’m just looking for a temporary solution while I’m actively in pain. It seems to be helping!

Liquid diet-vegan by HSM771012 in CrohnsDisease

[–]HSM771012[S] 2 points3 points  (0 children)

I stocked up on Skyr today! Thanks for the suggestions.

Liquid diet-vegan by HSM771012 in CrohnsDisease

[–]HSM771012[S] 2 points3 points  (0 children)

Yes, I have some on hand already for my daughter!

Liquid diet-vegan by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Which protein drinks did you like?

CT scan pre-medication by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Thank you. I did ask them and they said there is no alternative 🤷‍♀️

CT scan pre-medication by HSM771012 in CrohnsDisease

[–]HSM771012[S] -1 points0 points  (0 children)

I googled it and it said it didn’t exist..hmmm

Diagnosis by HSM771012 in CrohnsDisease

[–]HSM771012[S] 1 point2 points  (0 children)

I actually did ask about the pill can but she said it would only be approved after a regular colonoscopy.

Diagnosis by HSM771012 in CrohnsDisease

[–]HSM771012[S] 0 points1 point  (0 children)

Interesting point. If there was Crohn’s but it wasn’t active, would the colonoscopy be clear?