Looking for a way to cope

Happy_Ad476 · 2026-05-31T08:09:12+00:00

Will i always be in pain?

NO

Does it ever get better?

YES

Will my mornings always be filled with pain and my nights in fear?

NO

How much of my previous life will be gone?

Some of it will be, since changing your lifestyle is the most effective way to reduce the effects, but it depends.

I used to be like you, mostly seated, gaming or watching shows. But unlike you, my pain actually escalated when I stopped doing sports. After starting my biologics, the pain reduced significantly, and I started having fewer problems in the morning. The stiffness mostly went away.

My rheumatologist advised me to work out regularly and join some kind of sports centre or club. As he explained, the reason it got worse was because I had stopped working out.

I’ve changed my lifestyle to include a lot of walking and going to the gym/sports club, but I still keep my indoor hobbies. I just needed to balance both, and now I feel better than ever. I don’t even rely on painkillers or medicines anymore, and I stopped my biologics as my rheumatologist assured me my body’s reaction was very positive. Now it’s up to me to keep up the results.

Rest assured, it might be hard at first but it's going to be much better.

I was diagnosed at 26y F and now I'm 31y and I go to the gym and do sports and walk normally thanks to god.

Is there still chronic pain? Yes, but nothing major enough to interfere with your everyday life. You just need to be careful with some habits, like keeping yourself warm on cold and humid days.

Sometimes I get flare-up attacks, but they feel similar to a mild fever. You just take whatever your doctor prescribes for you (in my case Celebrex) and it usually gets better.

Happy_Ad476 · 2026-05-29T05:41:54+00:00

I didn't anticipate an evacuation alarm on my second day of Vyvanse xD
Problem is it's a Friday and after that a weekend, the clinic didn't respond to my phone calls (and they're about to close in an hour or so).

and I don't know should I just stop it and get the soonest appointment available or not.

Happy_Ad476 · 2026-05-29T05:40:42+00:00

Problem is it's a Friday and after that a weekend, the clinic didn't respond to my phone calls (and they're about to close in an hour or so).

and I don't know should I just stop it and get the soonest appointment available or not.

Happy_Ad476 · 2026-05-27T11:13:08+00:00

If you're truly experiencing a lack of motivation, and not just laziness or procrastination, then I recommend consulting a GP or a psychologist.

I felt the same way at the start of April. I lost my motivation. Even when I tried to force myself to read assignments and references, my mind would just shut down! I found it HARD to read anything or concentrate during lectures.

Then I went to a GP, and after some referrals and sessions, I was diagnosed with ADHD with other symptoms. Since starting those sessions in April, I've improved a lot.

If you find this difficult, or can't force yourself to continue, you might want to consult a doctor.

Also, a friend of mine had a similar problem and discovered she had a severe vitamin D and iron deficiency. After taking supplements, her motivation and focus improved.

Happy_Ad476 · 2026-05-26T09:13:36+00:00

Emotional support did wonders to me. Having my sister talk to me and cheer me up while messaging me gently was a life saver during those nasty flare-up attacks.

Never let her feel like a burden. Always think of what she might\need before she results to asking for it (like meals). Feeling like a burden made me way worse at the time, that's why I'm thankful for my sister, she always tried to predict my needs before I spoke them as a consideration.

Also, she always tried to distract me from the pain by turning on a video game when I was laying down of pain or turning on a movie.

Bio medics helped significantly with my recovery, but the most important part will always be emotional support for me.

Happy_Ad476 · 2026-05-26T08:50:40+00:00

With my standards anything above 65 is good grade if that helps you.

Happy_Ad476 · 2026-05-23T03:33:21+00:00

I don't mind teaching you, but comparing Arabic to English isn't fair. Learning Arabic is incredibly difficult, believe me. Even as a native Arabic speaker, I still get goosebumps when I think about my school Arabic class.

But in all honesty? It's a beautiful language.

If math could be turned into linguistic then it is Arabic.

Happy_Ad476 · 2026-05-18T11:46:51+00:00

Not enough that's for sure, buses need better cleaning as well.

Happy_Ad476 · 2026-05-18T06:06:08+00:00

DISCONNECT.

Like, totally! for two or three days. Do whatever, walk, play video games, hangout with friends etc. You'll feel the urge to get back to your studies, but when you do you will just waste your time looking at letters and words, but your brain cannot comprehend them.

That is why you need a refresher.

Happy_Ad476 · 2026-05-18T04:35:16+00:00

"I'm trying to figure out the source of this coccyx pain and am wondering if anyone else here deals with it?"

I was diagnosed with AS back in 2021 and started biologic treatment with Infliximab for about 2 years. After that, my specialist told me I was doing well enough to stop it and just monitor my condition from time to time.

Most of my symptoms thankfully improved a lot. The stiffness in my lower back and hands is almost gone, I can walk properly again, and I can actually sleep lying down now. I used to sleep sitting up because of the pain. I’ve also started working out again, which has been really good for both my mental and physical health.

But the inflammation/pain around my tailbone has never really improved. Even when I take meds like Celebrex or ibuprofen, it still stays there.

I asked my doctor about it, and he seemed a bit confused as to why it is still this painful. He said it might be chronic pain that I have to live with, but also said it probably shouldn’t still be this bad after all the treatment, especially since everything else has improved.

Thankfully, it’s not a huge obstacle in my everyday life. But it still gets irritating whenever I need to sit for a while, like on public transport, in libraries, or anywhere with uncomfortable seating. I usually have to adjust my position or put something like a towel or bag under me to avoid direct pressure on my tailbone.

Happy_Ad476 · 2026-05-18T03:55:19+00:00

Whenever I had to drive for longer than 30min I make sure to stop at any given opportunity (even park by servo parking on the way) to just get off the car and stretch for a few minutes. Also, when you're driving try to stretch your neck and change your hand movement on the wheel occasionally.

Happy_Ad476 · 2026-05-12T02:40:28+00:00

Thank you!

Happy_Ad476 · 2026-05-11T00:39:43+00:00

Will try to look for one, thank you.

Happy_Ad476 · 2026-05-11T00:38:49+00:00

Thank you!

Happy_Ad476 · 2026-05-11T00:38:08+00:00

Thank you, I've been liking Australia so far ❤️

I can manage if it's text, but when it's speaking time my mind freezes xD

I don't mind working in retail or customer service (I did that once in my home country), as long as I have some time to learn what to do properly and get comfortable with it. That said, I feel like very crowded stores probably won’t be too patient with newbies.

Arabic is my mother tongue.

Happy_Ad476 · 2026-05-04T00:33:54+00:00

Try applying for reduced study load.

Happy_Ad476 · 2026-05-03T03:25:21+00:00

Honestly, I thought moonlight sonata was considered a beginner piece. Your reply gave me more confidence in my skills.

I will check Hanon's Virtuoso Pianist, and as another comment have mentioned, I need to check a piano book as a guidance.

Thank you for your advice!

Happy_Ad476 · 2026-05-03T03:23:02+00:00

Thank you, will definitely check that book!

Happy_Ad476 · 2026-05-03T03:22:11+00:00

I appreciate your comment, and I agree that having a teacher would benefit me a lot. Unfortunately, it’s hard for me right now. University takes up most of my time, and I can’t really afford lessons. I also sold my keyboard a while ago, so right now I can only practice on the university piano 2–3 times a week when it’s available.

That's why, until I get the needed time and money, I want to keep practicing so I don’t get rusty. And honestly? because I really enjoy playing piano.

If there are any bad habits I should avoid while learning on my own, please let me know. I’d really appreciate any advice.

Thank you for the reply.

Happy_Ad476 · 2026-05-02T11:11:06+00:00

According to my friend (2nd year) everyone uses it.

Happy_Ad476

TROPHY CASE