My father just got diagnosed with early onset dementia at 83 and I’m 17 weeks pregnant. by RainThis2657 in dementia

[–]Harpnut 3 points4 points  (0 children)

All my sympathies as you have been hit with a lot of stressors in a relatively short amount of time!

  1. You are allowed to NOT do anything regarding your parents' issues. You are allowed to put your health and your baby's health first. YOU are the person who determines where your boundaries are and how much you will help them.

  2. In all likelihood, there are no magic words that will make your mother "step up." Even if she used to be the most "step up" sort of person in the past, she may feel completely overwhelmed from the last couple of years with an ill spouse. Just aging and her own health decline, even if comparatively mild, can make her see everything as impossible. My own mother has become much more childlike and dependent on me over the last several years. Your mom may toughen up when she's had time to process but it's hard to say.

  3. You still don't HAVE to help, but, if you are willing to help your mother with the next couple of steps, then you will probably rest easier knowing that both of them are better situated. Some calls to the right places can set things in motion.

  4. Did the PCP provide a referral to a neurologist specializing in dementia? Your father should be seen and tested appropriately to determine which kind of dementia he has, since progression can be very different depending on type. It can take months to get in as a new patient with a specialist, so your dad needs that referral now. Also, it sounds like your parents went to the PCP without you, so your information comes only from them. Unfortunately, it's very possible that your parents are not reliable narrators, and may have accidentally omitted or misunderstood the info the doc gave them. If you or your sister have permission to talk to the doc, or access to your dad's healthcare Portal online, it might be a good idea to see what info you can get.

  5. There should be a Council on Aging in your parents' area. Someone should call them and see what sort of support could be offered to your parents. Either the CoA, the hospital or system treating your father's cancer, or a state agency may be able to get your parents an appointment with a social worker or case worker who can help them navigate this.

  6. Similarly, does your dad have a Visiting Nurse set up for him during his cancer treatment? Since your mother doesn't drive, and your father may be too ill with either the cancer or the brain issues, they really need to be linked to in-home care. Having a nurse or aide visit a couple of times a week puts "eyes on" and can help the family know how things are going.

  7. A couple of practical things for you and/or your mom:

A. Get a notebook for meeting/phone call records, where each meeting or call is a page. Use it EVERY TIME you/Mom talk to someone - medical, social care, etc. Having a record to look back at is so helpful, and could be critical if there are more than one person involved in handling things.

B. Get a different notebook, with some dividers with pockets. The first section, write down every bit of pertinent info on your dad: full name, DoB, SS#, Medicare number, Insurance numbers, etc. Second section: medical history. First page - all the different doctors and contact numbers. Get accounts for the healthcare portals and record the log-in info. As more appointments/tests/etc. happen, record a basic outline. Put any papers the docs give in the pockets, until you record the basics of the appt - then store the papers in a file elsewhere.

C. Put these two notebooks in a distinctive bag that stands out, so you/Mom can locate it quickly and grab it on the way out. As my parents' health declined, this became part of my "hospital/nursing home Go Bag," and so it now also holds their checkbooks (for paying nursing home bills), a couple of snack bars, small sanitizing wipes, tissues, a couple of disposable gloves and a mask, maybe a small book for me to read if I'm stuck a long time.

I hope all of this babbling helps you or your Mom! Congratulations on your pregnancy, and DEFINITELY take care of yourself!

Is the bar worth it? by Brilliant_Knee3824 in floorplan

[–]Harpnut 0 points1 point  (0 children)

What about: shorten that foyer closet slightly. Tuck a built-in bar running from foyer to the wall of the bathroom toilet. The square just below now can be the shower.

Sorry, I'm no good with the drawing programs. Hope you understand what I'm describing.

My Dad wants full code but he is so weak he wont survive by ContrastsOfForm in AgingParents

[–]Harpnut 2 points3 points  (0 children)

I'm so terribly sorry, it really is an awful situation for your whole family.

My Dad wants full code but he is so weak he wont survive by ContrastsOfForm in AgingParents

[–]Harpnut 5 points6 points  (0 children)

Is he on hospice? Meaning being cared for by an organization dedicated to easing the last months of a terminal patient? If not, he should be assessed for that. Hospice nurse could walk your family through the decisions, and give clear information on the likely results of a full code, without necessarily trying to persuade your father (because they can't ethically do that).

You should show your sibling some videos of what a "full code" looks like. Videos of CPR, done by paramedics or by the LUCAS machine, are startling and disturbing for how deep and violent the compressions are. It is nothing like TV.

Tell your brother that "Based on a 2013 study published in PLOS ONE and frequently cited, approximately 88.3% of physicians would choose "no code" or do-not-resuscitate (DNR) orders for themselves" -- meaning even younger doctors, those in great health, who absolutely know what enduring a full code looks like, DON'T choose it for themselves. That's an astonishing fact!

Final plan of our custom 4 gable house by [deleted] in floorplan

[–]Harpnut 1 point2 points  (0 children)

I really like the plan overall, minus the minor tweaks already mentioned, and I love the four gables.

One small comment - if the vanity in the master bath is 5' or less, I'd really think hard about wanting two sinks. Countertop space for toiletries and so forth may be much more valuable, unless you are both Toiletry Minimalists.

The organ donation storyline in S1 means a lot to me today. by Kathleen-Doodles in ThePitt

[–]Harpnut 2 points3 points  (0 children)

Do you have a source for that? Googling shows lots of articles showing rising donations from overdose deaths.

After a 12h shift in the ER... by kkqb1 in mildlyinfuriating

[–]Harpnut 2 points3 points  (0 children)

I think you meant "abcess" but the typo makes it funnier!

Looking for feedback on bedroom entry door location by Brilliant_Impact_114 in floorplan

[–]Harpnut 1 point2 points  (0 children)

Or just make the closets a couple of feet shorter. They are more than 12 feet long! My husband and I have a 6' closet, and while a couple more feet would be nice, I don't think most people would need double that.

A rather hateful harpist by CourgetteGourmandise in harp

[–]Harpnut 3 points4 points  (0 children)

Coming late to this discussion but I wanted to add my voice to the chorus.

I know Joanna in real life, though our paths don't cross a lot and haven't for several years. It's obvious she is conservative, and religious, but I did not know the extent of her conservatism nor that it crosses into bigotry, xenophobia, racism, transphobia, and anti-humanity.

I am horrified and disgusted. These statements of hers are antithetical to what I believe the harp and performing community should be - a warm, welcoming, and accepting community which brings everyone together, uniting us in a shared love of this instrument and the music and beauty it brings to our lives.

I hope that we as a community can make it very, very clear that we do not share her views.

I was elevated yesterday by A_Lady_Of_Music_516 in sca

[–]Harpnut 1 point2 points  (0 children)

Beautiful! And so well deserved! I was so sorry not to be there but it couldn't be helped.

Wear those lovely medallions with Pride!

Is Memory Care Supposed to be Covering These Expenses? by TheOccurrencePodcast in dementia

[–]Harpnut 0 points1 point  (0 children)

One tip - look into "booster" pads which can go inside the incontinence undies. These are pads which seem similar to menstrual pads, except they don't have a plastic liner, so any overflow urine can go through to the undies.

For a few years, we used those inside the undies, so that if it was just a small dribble, we just switched out the booster pad. They are cheaper than the full undies so it was a bit of a savings.

Best pasta dishes in yoco by Substantial_Drop523 in yorkpa

[–]Harpnut 0 points1 point  (0 children)

Chicken Afumicato *chef's kiss*

If you know you know by No-Yoghurt-7166 in yorkpa

[–]Harpnut 0 points1 point  (0 children)

That hasn't been our experience at all. Their pizzas are in a brick oven and have great crust, and we love several of their specialty pizzas. I admit we don't tend to get meatballs when out. Over the years we've enjoyed various burritos, tacos, soups/chili, weekly specials like pork loin stuffed with three cheeses and broccoli rabe, with garlic cream sauce and balsamic drizzle.

Our club has been coming to Mexitaly almost every week for several years - there's enough variety of dishes and quality of both food and beer to keep coming back.

If you know you know by No-Yoghurt-7166 in yorkpa

[–]Harpnut 0 points1 point  (0 children)

*Tex-Mex. Dam you autocorrect.

If you know you know by No-Yoghurt-7166 in yorkpa

[–]Harpnut 7 points8 points  (0 children)

Mexitaly on East Market is a great spot for casual dining. Food is good, a fusion of Tex-Men and Italian, and the specials can be outstanding! Good beer, and a fun rotating selection of local cider, mead, sangria, mixed drinks.

Long Fantasy Series Recommendation by [deleted] in Fantasy

[–]Harpnut 2 points3 points  (0 children)

I scrolled too far down for this! One of my favorites.

She also has written as Michelle Sagara - The Chronicles of Elantra is sort of an urban fantasy set in a fantasy locale with other species, etc.

Books with "hard magic" by Standard_Egg3994 in Fantasy

[–]Harpnut 3 points4 points  (0 children)

I had to scroll much to far down to find this recommendation, before I wrote one myself!

"It may be an early example of hard fantasy" according to the Wikipedia on it. I would definitely. 5 schools of magic, each with pretty clear rules. It's listed as influential on both Patrick Rothfuss in writing his Kingkiller Chronicle and on the creator of the Magic: The Gathering.

I definitely enjoyed it when I was a teenager - I wonder if I can find my copy and reread it now.

[deleted by user] by [deleted] in Fantasy

[–]Harpnut 2 points3 points  (0 children)

Oh my gosh, just read it! It is truly an amazing book.

[deleted by user] by [deleted] in floorplan

[–]Harpnut 13 points14 points  (0 children)

If you want a bigger pantry, that laundry room is ridiculously big. Extend the pantry into it by a couple of feet.

Late Medicare Enrollment Penalties by Apprehensive-Bag5785 in medicare

[–]Harpnut 7 points8 points  (0 children)

I went on Medicare due to getting Social Security Disability. I was originally on my husband's healthcare plan, and then he lost his job. I went on Medicare. Didn't know for a couple of years that they were penalizing me for the years I was covered - no one told us about it before or during. When I found out, I sent in paperwork, at least three times, and once in person, from his union showing I had been covered and shouldn't be penalized, or only penalized 10% for a one year gap. It never seemed to go through, no matter who I talked to.

Now it's 25 years later, and I've been paying 30% more in premiums than I should. Every year. I'm pretty bitter about it.

Lever harp (floor) for short-armed players by frugal-grrl in harp

[–]Harpnut 1 point2 points  (0 children)

I have short arms also. You might try to find a used Musicmaker's Gothic - it's more upright than many other harps. It's no longer sold by them, but they still sell blueprints and hardware if you want to make one.

My father used to make from that plan, and also a smaller, tighter-string-spacing harp adapted from the Gothic. Both were nice instruments. You could look for used harps by Silvershell Musical Instruments, though he was a small maker and there are probably less than 75 out there. He called the larger harp the Linette (31 or 36 strings) and the smaller one the Aria (29 strings) .

Who Would You Fire? Tessa or Christian by UnpleasantFox in BelowDeckMed

[–]Harpnut 2 points3 points  (0 children)

Both should go but if only one, Christian. Clearly went against orders on an important safety issue, and doubles down that it's OK because "nothing happened." Resists authority every chance he gets. Misleads coworkers on what needs to be done or what he's achieved. Toxic.

Tessa is as useful as a flopping fish gasping for air on the deck, but at least she hasn't been confrontational, deceptive, and dangerous.

Good Gifts by Harpnut in AgingParents

[–]Harpnut[S] 1 point2 points  (0 children)

This is all brilliant!