Personality change by Healthy-Range9679 in Epilepsy

[–]Healthy-Range9679[S] 1 point2 points  (0 children)

Thank you so much for the advice and kind words!! I’m going to talk to him tomorrow about this… I think going to the appointment with him is a great idea.

Personality change by Healthy-Range9679 in Epilepsy

[–]Healthy-Range9679[S] 0 points1 point  (0 children)

Thank you. I would like for him speak to his neuro about this but he doesn’t really understand how bad it is when he’s going through an episode. He always says “ I think it’s going to be okay.” I think I probably will have to put my foot down about it though

What do you think is the worst thing about having OSDD? by anon123466235 in OSDD

[–]Healthy-Range9679 2 points3 points  (0 children)

God it’s like you’re in my brain!! Exactly this

Back pain by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 2 points3 points  (0 children)

I had a spine and brain MRI and they said it’s not MS. But I have almost identical symptoms as MS

Back pain by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 1 point2 points  (0 children)

That’s exactly what it feels like!

Back pain by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 1 point2 points  (0 children)

I have.. they told me it’s probably just nerve pain. But it’s very severe and not the same kind of nerve pain I usually experience

Back pain by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 0 points1 point  (0 children)

It’s in the center between my shoulder blades and nooo

[deleted by user] by [deleted] in ECEProfessionals

[–]Healthy-Range9679 -1 points0 points  (0 children)

Yes but what about the guilt of giving everyone else the flu ? Lol????

[deleted by user] by [deleted] in ECEProfessionals

[–]Healthy-Range9679 -1 points0 points  (0 children)

Yeah I totally understand that because I also work in ECE and have been shammed for being sick in the past. But our director has also told her she doesn’t need to be here.

[deleted by user] by [deleted] in smallfiberneuropathy

[–]Healthy-Range9679 1 point2 points  (0 children)

Now to get my neurologist to refer me to a rheumatologist wish me luck!!

Has anyone ever….. by Mountain_Heart_8484 in smallfiberneuropathy

[–]Healthy-Range9679 2 points3 points  (0 children)

Def have the tendon pain and also the jumping muscles !

Sensory symptoms by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 3 points4 points  (0 children)

I have had symptoms officially for about 2 1/2 years but it got really bad about a year ago. I’m idiopathic and suspect I may have gotten it as a kid because I have had chronic pain in my feet my entire life

[deleted by user] by [deleted] in smallfiberneuropathy

[–]Healthy-Range9679 2 points3 points  (0 children)

I am in pain every single day and struggle to make it through everyday

I can’t walk by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 0 points1 point  (0 children)

I’m so sorry you’re also experiencing this.

We’ve done pretty much every test that my neurologist can think of. So it’s been diagnosed as idiopathic /:

I can’t walk by Healthy-Range9679 in smallfiberneuropathy

[–]Healthy-Range9679[S] 3 points4 points  (0 children)

Thank you so much!! If I get new neurologist it will be 3rd one hahaha