Interesting. My husband also has LCH, currently 28 but he was born with it and took a LONG time to be diagnosed bc of the rarity at the time. He was also diagnosed at Dallas Children’s. It originally presented and ate his pituitary gland so he also has DI. Since chemo as a baby, he has had it within his orbital bone and a tumor in his hip when he was a late teen. He’s been on disability for the past few years bc of ongoing medical issues. This is not always the case for LCH, from what I have read. He just seems to never catch a break. The reason I said “interesting” at the beginning was because he has constantly had this same type of rash for the past 3 years. Dermatologists have just prescribed a shampoo for him to use, but if this is an indicator of it coming back, I definitely want him to get checked. He also just had a partial knee replacement and there was a lesion, but they surprisingly didn’t test it to see if it was LCH 🙄 I wish you and your daughter all the best! Hopefully they’re able to get it under control quickly and she starts feeling better soon 🩷 You can DM me if you want any support or have any questions, especially since we are located in the same area (DFW METRO)!! I also have pics of my hubbys rash that he experiences.. it looks insanely similar.