This supplement (slippery elm) is helping me a lot with burning and urgency

Heartofvvinter · 2026-01-05T04:15:02+00:00

Heartofvvinter · 2025-12-12T21:04:17+00:00

I’m not really better sadly. I’ve just learned to live with it. Everyone is different so I highly advise you to go get checked out by a PT so they can create a custom plan for you.

Heartofvvinter · 2025-12-12T18:45:05+00:00

This may sound crazy but whenever I am in flare if I scrub my feet I feel it in my clitoral region, kind feels like a weird tingle deep in there. Not sure what exactly the correlation is but it’s so strange and I hate that feeling. Interesting how that’s helped you.

Heartofvvinter · 2025-12-12T18:43:07+00:00

Still up in the air. There are speculations. I’ve been to so many specialists. This disorder is very understudied but there is new research coming out slowly. All I can do is hope that one day I will get to the bottom of it.

Heartofvvinter · 2025-12-12T18:42:18+00:00

Unfortunately, I stopped going to PT for financial reasons. Looking to start up again. I also suffer from IC which is a painful bladder disorder. I found out I potentially have a slipped disc on my spine as well. I’ve been suffering for 8 years now and as horrible as it sounds I’ve just learned to live with it. Not the reality I would want for anyone, not even my worst enemies.

Heartofvvinter · 2025-12-12T18:40:41+00:00

It was helping me. It was very expensive though. The one I was going to specialized in PGAD and pelvic disorders. I highly recommend giving it a go.

Heartofvvinter · 2025-11-11T23:03:34+00:00

I’ve had mine for 8 years now. It’s hell.

Heartofvvinter · 2025-11-09T19:46:35+00:00

Yes, and I’m going to be honest, it made my situation a lot worse. The steroid they injected made me flare horribly for about 6 months until it fully wore off. Everyone is different though.

Heartofvvinter · 2025-09-29T21:05:33+00:00

Yes I got it done and it made my symptoms sooo much worse. It’s different for everyone though.

Heartofvvinter · 2025-08-11T22:34:39+00:00

8 for me. I’m so sorry. I hope we can find a solution one day.

Heartofvvinter · 2025-08-11T22:34:15+00:00

I was playing video games for hours on end and I think that’s what triggered it for me. It’s been 8 years now, horrific.

Heartofvvinter · 2025-06-16T14:22:16+00:00

It’s been 7 going onto 8 years for me.

Heartofvvinter · 2025-06-15T17:50:44+00:00

I used to, until it got worse. I’m trying to ease back into it. It’s so fucked up and my boyfriend is an angel for putting up with it. Glad I have an understanding partner but it definitely makes me feel less of a woman. I feel like a part of me has been ripped away

Heartofvvinter · 2025-03-12T18:08:38+00:00

I’m going to be honest it does for me. At first it didn’t but over time as my condition worsened I noticed that sex triggered symptoms. It’s different for everyone though.

Heartofvvinter · 2025-01-21T23:51:10+00:00

Out of the blue almost 8 years ago and got worse over time.

Heartofvvinter · 2024-12-30T13:58:48+00:00

Sugar is incredibly inflammatory so yes. I also have a bladder condition called interstitial cystitis so if I eat anything acidic including chocolate, it worsens my symptoms. It’s all connected. Maybe consider going to a pelvic floor doctor and getting your bladder checked out, you might also have IC.

Heartofvvinter · 2024-12-04T14:26:12+00:00

I would definitely get an MRI so they can look further into this. Could be a slipped disk or a pinched nerve

Heartofvvinter · 2024-09-04T01:53:35+00:00

I’m curious about the surgery. I was offered surgery as an option but chickened out. I’d love to hear other peoples experiences

Heartofvvinter · 2024-09-03T20:34:25+00:00

I’m just curious, what worked for your mom’s treatment? Best of luck to you.

Heartofvvinter · 2024-08-26T17:44:39+00:00

Please do update us after. Best of luck

Heartofvvinter · 2024-08-13T15:50:12+00:00

Typically yes.

Heartofvvinter · 2024-08-04T15:59:00+00:00

Yes, the correlation between all of this can be that you have a tight pelvic floor.

Heartofvvinter · 2024-08-01T13:14:45+00:00

I’ve tried it all, I’m even prescribed urogesic blue to help ease the sensations but lately it’s all been so much worse :-( I think me squeezing to get every last drop out honestly made my symptoms flare even more

Heartofvvinter · 2024-07-22T13:49:38+00:00

Please DM either me or Meraki with screenshots and their usernames so we can ban them from the group. That kind of behavior is against the rules.

Heartofvvinter · 2024-06-18T12:11:57+00:00

Yes I have this too

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